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View Full Version : I saw something shocking.



debbie-b
08-28-2013, 03:16 PM
I was looking for an explanation for "What is Lupus" in german, so that my family in Germany can read it and better understand.
Well I came across this youtube video, it is called ( Systemischer) Lupus Erythematodes (SLE) Beitrag auf Akte 2010
I don't know, how to put it in here, but you guys need to see this. There is a young woman who has lost half of her face, from a Lupus rash, that ate away her face. It started with a sore in her nose.
Now I know, you guys don't speak german, but you have to see this.

Debbie

lucky7
08-28-2013, 03:41 PM
HI Debbie! Good idea about your relatives being able to understand better in Germany! My husband is mostly German! Im not sure I CAN see it....How SAD and SCARY! Scary too because I GET NOSE ULCERS all the time! Nose bleeds almost daily...UGH...I get a face rash that comes and goes considering on how bad my flare is. THANK YOU for the information!

debbie-b
08-28-2013, 03:53 PM
HI Debbie! Good idea about your relatives being able to understand better in Germany! My husband is mostly German! Im not sure I CAN see it....How SAD and SCARY! Scary too because I GET NOSE ULCERS all the time! Nose bleeds almost daily...UGH...I get a face rash that comes and goes considering on how bad my flare is. THANK YOU for the information!

Hi Jeannette,

It scared the heck out of me, because I get nose and mouth sores as well. Maybe we should make sure, if the nose gets infected ( like hot and really painful), that we go to the doctor right away and not wait.
Of course, I can't send this video to my family, I don't want to scare the pants off them.

Debbie

steve.b
08-29-2013, 04:16 AM
to see the youtube video .... http://www.youtube.com/watch?v=X23Y75En1K8

debbie-b
08-29-2013, 05:14 AM
to see the youtube video .... http://www.youtube.com/watch?v=X23Y75En1K8

Thanks Steve, I still don't know how to do that, I mean posting the video.

Debbie