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mastiff0
07-11-2013, 10:28 AM
I was diagnosed with lupus about 6 weeks ago, and have just started treatment. My most painful lupus symptom is what I've self-diagnosed as chronic myofascial pain. From my understanding, Myofascial pain is similiar to fibromyalgia, except that the pain is in very specific locations, and is deep in the muscle. It can be activated by pressing certain trigger points in your muscle. I have a classic myofascial pain from my scalenese- muscles on the sides of the neck. The pain runs down my chest, shoulders, biceps, forearms, and shoulder blades, and feels like a deep lactic acid burning.

There is a type of massage called trigger point massage or myofascial release that I continue to do, but its a very temporary relief, and I'm on some daily vicodin to make the pain tolerable. The doctor has given my lyrica, but because of memory side effects I have had to increase the dosage very slowly, and my current dosage still doesn't eliminate most of the pain.

Does anybody have any experience with this and other treatment options? I don't want to be on lyrica forever, and I've heard the side effects when you get off of it are pretty bad. My doctor thinks that once the plaquenil starts to work, it should help with pain, but I just started treatment, so that relief is still months away.

Shanna
07-11-2013, 08:32 PM
What about prednisone?

mastiff0
07-12-2013, 09:17 AM
I haven't heard about prednisone being a treatment for chronic myofascial pain, but I am not on any steroids right now.

ItsLupus2007
07-13-2013, 11:50 AM
You probably need to be evaluated and be sure that it is in fact MF pain. If so then the trigger point is only a temp fix like you said and you would likely benefit from finding out where the problem is originating from and deeper treatment. See if that can be isolated and then see about finding a really good massage therapist who is accustomed to working with AI patients. A regular Deep Tissue massage is not recommended for AI diagnosed patients as it causes a release of toxins into the system and must be processed out. It activates the immune system and that is a contradiction when you are trying to suppress it. That is why I recommend not self diagnosing but being sure and then finding a really good MT who knows their stuff. You will not be so sore and should notice relief.

Hope this helps.

mastiff0
07-15-2013, 07:13 AM
Thanks for the info. I self-diagnosed this pain as stemming from my scalenes, but I have been diagnosed with trigger points from my pain management specialist, who prescribed me lyrica, and considered trigger point injections. So this has been diagnosed as myofascial pain in a general way. Since the lupus diagnosis I have asked about MF massages or injections, but the doc has been hesitant to add more therapy or prescriptions that could cloud the effects of the current treatment and the accuracy of the lupus diagnosis. I see him again in two weeks- maybe he will have changed his mind by then.