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View Full Version : A newbie here, but not with Lupus.



AK McSkillet
06-24-2013, 03:46 AM
Hey everyone, my name is Andrew, I'm 20 and I was diagnosed with SLE when I was 15.
5 years with Lupus seems to feel...longer? It's definitely been a journey, and I feel stronger for it. I feel as though I look at the world differently then my peers, from a point of view that I can't really explain. Every time I do research on the different types of Lupus and the statistical chance of even getting it I start to feel...I don't want to say lucky because that is NOT the right word. Lol I don't know, maybe its the lesions' on my brain talking.

It was about a year and a half of excruciating pains that seemed to appear on and off from the age of 14 before we started getting suspicious. I HIGHLY recommend Epson Salt baths for joint pains, got me through my childhood. Lol I still remember the day the Rheumatologist broke the news, I only remember because it was the first time I had ever seen my dad cry. I had no idea what I was in for, but he knew it would change how I would live everyday.

Fast forward 5 years and I've got my own Rheumy, Neurologist and a shelf full of daily-dose medications. I have had what feels like hundreds of gallons of blood taken for tests, and you know what? Not big on needles guys'. Lol I also got to experience the joy that is a Spinal Tap, did I mention my distaste of needles? Yeah I was not clued in on the weeks of teeth-grinding headaches, do your research. Let's see, oh right! Had a few strokes. I guess you just totally forget who you are and what you're doing. You don't know bad timing until you have a stroke during orientation for a new job. Lol its cool though I just kept quite until I came back to reality. Those went away after a while though, that's when they found something on my brain; lesions they think..

Anyway, I wouldn't be where I am today without the support of my parents. I chose not to tell most of my friends as to not be showered in pity, but there's nobody who truly understands a disease like this. I haven't had a sever flare up since January and I've been able to hold many part time jobs, but I'm always on my toes.

I guess it's not answers I'm looking for here as much a place find others' point of views, and if I can help at least one person with what's going on, It would feel as though my experiences have been worth the struggle. About 5 million in the world with Lupus. About 1.5 are American. About 90 percent are women. Again, LUCKY is not the right word. Lol

Thanks for listening.

steve.b
06-24-2013, 06:21 AM
hi Andrew, you will find a few other "lucky" males here. welcome

Saysusie
07-01-2013, 09:12 AM
Hi Andrew;
Welcome to our family. You have come to the right place to find support, information, understanding, and even answers. As Steve mentioned, we have a number of male members here and a forum for males to interact with one another. We want to make sure that you know that you are not alone and that you are amongst people who care and who understand!

Peace and Blessings
Namaste
Saysusie