06-20-2013, 09:11 AM
hi. im 45 and i have fibro and cfs. my dr thinks i have lupus, but im not sure. firstly, i tested negative for it last year. also, the rash i get is more like a flushing on the face. its the butterfly pattern, but it doesnt have a thick raised appearance. i thought i had rosacea. maybe i do. i have so many questions which is why i joined. he took my blood again yesterday and im awaiting the results. he gave me a lupus medicine, but my pahrmacist told me it causes hair loss and gave me some advice. she said wait for the results before i take it. i have lost quite a bit of hair lately. i get these flares where i feel like im getting the flu, but it never comes. they last about a day and are usually better after some good sleep. ive had them for years though and thats when i was diagnosed with cfs. the symptoms of fibro are so similar to lupus. i just dont know. i do want to know though. not too happy about this. thanks for any info.