03-07-2013, 11:12 AM
Hello all this is my first time well with me everything started in 1983 I was tested and told I have polymyositis my muscles were off the charts in weakness. As the years pass I have come along, in 1995 I was told I have lupus I am now on methotrexate what happens to me is my muscles especially the hip muscles are very weak, I can't climb stairs very well and I can't sit in normal chairs. I look strong and healthy to other people but looks are not the true story meaning I am a very weak person I must be very careful when walking not to trip or drag my foot because I will have a complete fall where as I can not catch myself to break the fall. When I go to fall or trip my muscles shut down from the time I go to fall until I hit the ground, I can not get up by myself, if I'm out in public it must be a very strong person to help me up and I hate that because people don't understand. I have fell many times at home and when I do where ever I am I must crawl to my bed room to pull up on my bed because the bottom of my bed is hard wood it takes a while but I manage to get up then for the next few days my body muscles are very weak to the point its hard to do anything.Is there anyone the goes through this I call it muscle lock down when I tell the doctor they just look at me I guess people can't picture it unless it was happening to them.