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Heather
02-15-2013, 05:26 PM
Hello!

I have registered today in hopes that I will find out some info on this condition. I have not been diagnosed with Lupus but I fear this will be something happening soon. I am waiting on my first Rheumatology apt in 2 weeks and as I am in a fair amount of pain and the fatigue is really bothering me i'm trying to find out how to reduce the symptoms.

I have been tested positive for a connective tissue disease - I have a family history of AS, Sjrogren's, and Rheumatoid Arthritis. I myself have Hashimotos Thyroiditis for about 9 years which is also another autoimmune condition. So from what I have read about these other conditions I don't really 'fit' that mould with my list of symptoms.

The most recent blood test I have had tested positive for CTD and a deficiency in Factor VIII. I have no idea really what this means but all I know is that for the last 9 weeks the symptoms have come on thick and fast and I am not sure where to turn. My gp has prescribed Mobic 150mg is not doing anything for me and neither is panadol or nurofen.

I don't have the rash on my face however skin rashes have been common for me with the Hashis - but I guess as the symptoms are so similar for both diseases it would be difficult to differentiate.

If anyone can suggest what blood tests they have had done to confirm their diagnosis this would be great.

Look forward to hearing from some of you soon!! :)

steve.b
02-15-2013, 06:51 PM
hi heather and welcome,
there are quite a few other australians on here, i am in wa

when my rhuemy fist did his round of blood tests, i had 15 vials drawn.
lupus is diagnosed by ruling out many other options first.
so lots of tests is a good thing.

please take the time to read some of the older posts......
they are our personal experiences with lupus.
also the search feature is very beneficial.

some of the things many of us found useful include.
keep a pain diary
list your symptoms, even if you think they are unrelated.
list your known ailments.

i hope you find the corrct title to your problems....
so effective medication can be started.

Heather
02-16-2013, 05:38 AM
hi steve, thanks for the welcome!

I have been a pin cushion for a while now - so am used to it but hopefully it wont take 15 vials!! I think I had 8 in one session and lost consciousness - eeeek!! anyway I have been reading through the posts and seems like its a very long road and this disease is quite individual.

Im going to start my diary today and try and be more specific as suggested previously I was just documenting little things but would be good for the specialist to see the whole story to get my diagnosis underway...

Thanks again will update im sure once I know more - and have 1000 more questions to ask!!! :)

tgal
02-16-2013, 08:08 AM
Just stopping I. To welcome you to WHL!

Make sure to let all docs/hospitals/dentists know about your Factor VIII def. It could cause you not to clot correctly after a surgery or proceedure so that is very important for them to know (I have the opposite problem)