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ButterflyTasha
02-10-2013, 01:41 PM
Has anyone every had Retina problems with lupus and plaquenil? I recently was told that I have multiple white dot syndrome. I haven't noticed any changes but for now I'm off plaquenil.

Nonna
02-11-2013, 04:49 AM
Have you seen a retina specialist? I had problems with my tests and they sent me to a specialist. He confirmed no damage and I'm still on the plaquinel.

Good Luck,

ButterflyTasha
02-12-2013, 12:22 AM
I went last week to a retina surgeon. He took me off plaquenil. I go back in 5 weeks. While I was there, he saw the same damage to the eyes.

steve.b
02-12-2013, 07:05 AM
i am sorry that you are going through this !!!!!!!!!!!!!

please keep us updated as you recieve more testing/treatment.

SNR
02-12-2013, 08:01 AM
I see my optometrist every 6 months for a retinal scan but from time to time I see dots on the side of my eyes.

ruziska
02-12-2013, 09:19 AM
I have a "blip" on my retina. Had it since fall of 2010. Was sent to a specialist who said it wasn't a problem, couldn't do anything about it and labeled it "this things happen". Well alrighty then... It doesn't affect my vision, but does annoy me from time to time. What it appears like to me is like when you have your picture taken and the flash goes off and you have that circular visual disturbance that slowly fades away. My blip is very faded, sometimes pronounced, sometimes not noticeable at all. Yesterday I had an eye exam (bifocals time). I didn't mention the blip to the doctor. He did find cataracts, the beginning stages. After he dilated my eyes, he found the blip. I told him what the specialist had said and gave him permission to access my records from the specialist and we'll take it from there.