View Full Version : New member

01-09-2013, 09:41 AM
Hello, Im new, Ive been reading on here for awile and everyone seems to be real helpful. I was diagnosed almost a year now withdrew SLE Lupus. I have not found the right meds.Ive tried plaquenal and now im on Cellcept, i can not handle the full dose (2000mg) so im taking half that and so its not much of a help. The dr wants me on Benlysta,opinions?

01-09-2013, 07:38 PM
Hello and Welcome to our family. We have a forum here entitled "Lupus Medications" wherein we discuss many of the meds and treatments for Lupus.
For almost all of us, finding the right mix of meds was a trial and error process. Dosages had to be changed, different meds prescribed, other meds discontinued, etc. So, do not feel alone and try not to get too frustrated.
Work with your doctors in trying the find the right combination and dosages of meds that work for you and alleviate your symptoms. Be patient, it does take some time.
I wish you the very best.

Peace and Blessings

01-09-2013, 08:02 PM
Hi and welcome to our WHL family. As Susie said, medicines are trail and error and it usully takes us quite awhile to find the right combination for our syste
. Lupus attacks us each differently so the meds needed to work on it are also different for each of us. Hopefully you will find the right combo soon and we will be here for you as you search.

i have not personally tried Benlysta but a couple here have. You can look in the meds sections and also try doing a search in the search box on the right hand side of the page. It should bring up some threads where it was discussed

01-10-2013, 11:21 AM
Yes, thank you...i did look on there as well.I have been concerned because my rheumy says that there are no other meds for Lupus besides plaquenal and cellcept....the plaquenal i had terrible suicidal thoughts on, and cant take it,and this cellcept makes me sooo sick....but im still taking it for now. So Benlysta is like my last chance according to him. However im pretty sure my dr hasnt had many lupus cases, and not one as severe as mine ( live in small town) so i might take the 2 hour drive into the city and try someone who has seen more cases of lupus.