View Full Version : Hi from Adelaide. New today
01-04-2013, 05:40 PM
Hello, this is my first time on any forum. I have been recently diagnosed with Rhumatiod arthritis, still unable to confirm if Lupus. Went away on holidays and forgot medication (methotrexate, plaquenil and folic acid.) for 4 weeks. Now feel like I have been hit by a bus. Back on medication but now Vit B is rock bottom so now taking Ostilin x2 tabs a day as well. I am so confused what to take when. This is not my field of medicine so am in the dark. I feel like a rattling walking chemist shop. Would appreciate any ideas. Thanks for any advice.
01-04-2013, 08:06 PM
Hi Aussiegirl, and welcome to WHL. Be sure and browse around the site, read the "stickie" posts at the top of each section, get "acquainted" with folks via their posts & profiles, etc. Ask questions, vent, express your opinion, etc. Big thing though is to get together a medical "team" if at all possible. This would include your docs (a "regular" doctor - pcp, gp, etc. - and a rheumatologist, or other needed specialists) but also you and any family you can gather. Educate yourself & them as much as possible. Start writing things down, sort of like a diary (I still can't get into that discipline enough yet), and track your symtoms and/or reactions to different things if you can, then communicate (two way conversation) with your docs. Don't just arbitrarily do something pharmacologically just for the sake of doing something. Know why, and with proper advice from your doctor(s) before you make a decision about treatment.
01-05-2013, 01:35 AM
hi aussiegirl, and welcome.
there are a few of us aussies on here.
this is a nice active forum, where people really care about each other.
i call this place my cyber family.
hope you will too.
01-06-2013, 04:59 PM
Hi Jmail, hope I got that right.
Thank you for your reply
Your advice is spot on and am in the process of getting into my rheumatologist earlier than my next scheduled appointment. A diary is a great idea because I forget which part of me is sore on any given day. Thanks again
01-06-2013, 05:06 PM
Hi Steve.b fellow Aussie.
Hope your not boiling to death over yonder. Crazy weather.
Anyway thanks for your reply. I have resigned to the fact that I am going to be popping pills forever and missing them is not an option if it makes me feel like a bus wreck. Going to try to get into my rheumatologist earlier than scheduled appointment. He is fantastic and seems to be on the ball with the latest trends. Thanks again
01-07-2013, 12:25 AM
Hi aussiegirl, I'm from Melbourne. I have Lupus and can totally relate to your description of how you feel. Take your meds girl! It's not worth it, as you now know. I've tried to skip meds, take myself off them...to no avail; I always end up back at the rheumy's office pleading for treatment. I've come to accept that he probably does know best, even though it's my body and I am a knowitall!:yes:
01-09-2013, 03:56 AM
Loved your post.... That is so me.
02-18-2013, 03:52 AM
hi aussie girl - im from Adelaide too!! I only just joined this week also - have my first rheumy apt tomorrow morning - im seeing a Dr William Hill - do you know who you are seeing yet..maybe we can compare notes?? :)