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View Full Version : Cold sensation in mouth...Weird!



jolynnhughes
01-01-2013, 06:35 PM
Okay, I feel sure you will all think I am a total wacko, but here goes. Recently, I have a new, very strange sensation in my mouth. When I inhale, I have a cold feeling, like I have menthol in my mouth or like I am breathing in very cold air. It goes down into my throat as well. I've never experienced anything like this before. It is not painful, but it is quite annoying, and it seems to be getting worse. I have no other problems with my mouth or throat -- no sores or color changes of the mouth tissue. Anyone have any ideas, or should I just call the men in the white coats to come and cart me off now?

jmail
01-04-2013, 03:01 PM
I'd call the doctor's office nurse line, and put the question to them, and see what they say about.

jolynnhughes
01-05-2013, 05:59 PM
I was really hoping someone else had experienced this before. I go back to see the rheumy next week. I'll ask then. It's getting worse though, and this morning, the end of my tongue was a little numb feeling. That went away after a few hours. So weird. I always feel like the doctor thinks I'm a big psycho. This type of little strange symptom always seems to come and go so quickly. The big ones remain, but those pesky ones...

Saysusie
01-06-2013, 09:39 PM
Never Ever call the men in white coats. With this disease, there is no such thing as crazy!!

With reference to a cold feeling when breathing - have you ever been tested for asthma? While this did not occur to me personally, it did occur to my son and it was found that he had asthma... a tightening or constricting of his airways caused the cold sensation.

I agree, you should speak to your doctor about this in order to get a definitive answer.

Best of Luck
Peace and Blessings
Namaste
Saysusie

jolynnhughes
01-13-2013, 12:23 PM
Rheumy said could be from Sjogren's -- damage to tissue from dryness. Of course, he said we would wait and see results of bloodwork. Should find out tomorrow. Don't want it, but sure do want some Plaq, and the only way he is going to prescribe is if he gets a posituve on something other than ANA. Uugh!

ItsLupus2007
01-13-2013, 05:55 PM
If he thinks it might be issues caused by the dryness be sure to stay hydrated.Sugar free lemon drops work wonders even for us who have the sahara mouth and dust bowl eyes.I also highly recommend Altoids(red tin unfortunately not sugar free and dont feel froggy and do more than 2-3 or your eyes will have moisture just not the right kind-more like tears of pain)for when your sinus acts up as they work wonders for opening up the nasal passages(along with neosporin coating on a q-tip*dont double dip-smiles-*and a cool mist humidifier.Freeze everyone in the house out as heat will make all Sjogrens symptoms worse.

Its a horrid illness comparable I feel on every level to SLE but just everything that should be moist isnt and this causes you to about to go nuts trying to keep your mouth wet,eyes moist and nose not to feel like you have been packing it with cotton soaked in acid.You go to the ENT for advice on the chronic sinus infections and they say antihistamines,then the eye dr says absolutely not it will dry out your eyes even worse.

The Plaq can take up to 6 months to show any improvement and you do need to have a baseline field vision test done prior to or within a couple of weeks of starting the med and every 6 mo or yearly whichever your dr requires.It can cause damage but is very very rare.

I wouldnt make a call to the men in white coats either-the sensation could quit but then they might not let you go.You do know the more you say you arent crazy then the crazier they assume you are.

Just remember these illnesses are so different that your post is probably resonating with someone somewhere who has had it and is looking to see if anyone else has.

Hope you get some concrete answers at the dr tomorrow and if I repeated things already gone over.I am a new member and havent read everyone's background but just wanted to offer some suggestions from a fellow sjoggie who doesnt have that particular issue but likely shares quite a few others with you.

be well.

tgal
01-13-2013, 07:13 PM
Does it ever go down into your chest? If so it is really important you get it looked into because the moment I told my doctor they ran me back and hooked me up to the EKG machine. Apparently cold feelings from your throat to chest can be heart issues (who knew?).

I agree with everyone else. Let the docs know. You never know what weird things this disease can do.

jolynnhughes
01-14-2013, 05:40 PM
So you have this feeling, tgal? Mine goes down into my windpipe. I can feel it inside, as far down as between my breasts. I was hoping the rheumy would call me with bloodwork results today, but I did not hear from him. If I don't hear by noon tomorrow, I'll call. I'm sure they love that. Oh well! When they call, I'll ask about the possible relationship to heart problems. Thanks for responding. I was beginning to think no one else had every had this. Comfort in number, you know?

akwildlife
11-23-2013, 09:11 PM
Hello--
I found this thread and wondered what either of you may have learned.
I am having this cold feeling on one half of my tongue-- like wind is blowing on it, or like I'm drinking bubbly soda. Very distracting when I talk. Very strange. A little weirdness with swallowing too. Along with this, I thought I was getting a uveitis attack, that side of face feels swollen/achy etc, as with a flare up. There is also weakness in my neck and cramping... I suppose maybe the lingual nerve could be pinched by something happening in my neck or jaw. Or. shucks, I don't know. I also saw the post about this being a potential heart symptom (I have high cholesterol, so this is not impossible)... yikes.