View Full Version : new and confused

12-22-2012, 11:40 AM
Hi, I was partially diagnosed from a positive ANA test done because my index finger had a sore and swollen joint. This result sent me to Johns Hopkins ( I happened to be near Baltimore and was lucky enough to get in with a specialist there) and they did a battery of tests. The doc said I had to meet 4 of the 11 signs, and not necessarily all at the same time. Because my blood work was slightly "off" and I have had a few "sores" inside my nose( I thought these were from blowing my runnynose) she said I definitely have Lupus. It seemed like a rush diagnosis to me. She put me on plaquenil 200mg twice daily. My hair is thinning.....and I wonder if a second opinion is in order. I just don't feel sick ( accept extreme anxiety at this point) I'm so scared, I"ve been through so much over the last 5 years( ecomony, husbands job loss, moving to find work, his diagnosis with cancer, 9 months later he dies, I'm left living full time in our RV with no home, no roots, and now this?)

sometimes I'm just ready to give up. I know stress is terrible for a person who is in good health........so I need to get a handle on this. I'm in a small town now with only a family doctor who I have never seen before. My main Dr. is in AZ at the Mayo. Should I fly back there???

12-22-2012, 09:55 PM
We are not Dr's. and we cannot tell you if you have a good diagnosis or not. What we can tell you is that many of us wait months, and even years, trying to get the diagnosis while this disease ravages out body. Just because you can't see problems doesn't always mean there are not any. If it were me, I would see if the medicines made me feel better (it takes about 6 months). You have to follow your gut instincts though. Only you know what is best for you

12-22-2012, 11:06 PM
thanks..i know that. I probably should have thought a bit more before I just started typing away with random worried thoughts. I'm just so alone and I've heard that I have to do the best thing for me since my husband died....and now this.... it's more than I can bare sometimes. Anyway, thanks. I'd delete the post if I could....

12-23-2012, 01:45 AM
No No! You vent away! That is what we are here for! We understand being scared and feelin alone. We just have to make it clear that we are not doctors but we are here so you have a place to ask questions and get all the scary feelings out! Please don't apologize for that! We are glad you found us and glad that you are a part of our WHL family!