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yxhewc
06-13-2006, 12:26 PM
Hey guys (actually more gals than guys, but we needn't be so PC over things yes?)

I'm back. Good news. My gf had her operation and was successful. She's looking forward to go back to work in a few days time (after 2 weeks of rest and boredom at home). I'd like to thank you guys for keeping her in your mind and prayers.

I do have a question though. Regards your ex-american president, John F Kennedy. I read somewhere (Reader's Digest I think), some time ago, that JFK had an autoimmune disease, and that he took predsinone and cortisoid drugs to control the disease.
A search on Wikipedia turned out nothing, so I'm wondering if JFK had SLE or lupus of any other kind?

Hmm, if possible, can we have a list of other famous people who have lupus? I've found a positive technique to boost her confidence - through examples of famous successful people.

Micheal Jackson... I didn't use him as an example. Er.. who wants to use a pedo as an example?

I used Halle Berry and Sharon Stone (both have Type II diabetes) as an example... so I was wondering if I can find any famous people who are successful and are coping with lupus

Thank you.

Sheryl
06-13-2006, 03:37 PM
Don't know, but I think I have a list in a book at home somewhere.

Actress Teri Garr has MS, though. Lots on the internet about her.

Hope your GF is recovering well!

SoleSinger
06-13-2006, 11:47 PM
Seal has lupus,

MJ doesn't have lupus...

Charels Corrult had Lupus

One of the backstreet boy's sister had lupus

James Gardener's daugher

Hip hop producer Jay Dee had Lupus...

SoleSinger
06-14-2006, 12:08 AM
Oh yeah... I forgot to say that they THINK that JFK might have had undiagnosed Celiac's disease.... They don't seem to REALLY know, though...

Missy
06-14-2006, 05:55 PM
I didn't know Seal has Lupus......

Plus, there's that reality tv girl/model from "America's Next Top Model" show - I think her name was Mercedes. She didn't win the show, but I think she became a spokesperson for the national lupus foundation or something.

Oh, and there is a writer - her name is Eugenie Seifer Olson. She's a chick lit writer. My aunt gave me a book of her's "The Pajama Game." A character in it struggles with lupus diagnosis among other things. It was cute.

ButterflyRN
06-14-2006, 05:59 PM
I remember watching the top model episode with the model who came out and said she had lupus. I didn't know about Seal! Interesting!

SoleSinger
06-14-2006, 11:57 PM
No way!! That's what the pajama game is about??? I guess I should actually SEE the play!!! LOL!

ihate2shave
06-15-2006, 09:29 AM
I've heard that Elizabeth Taylor has SLE. This from several women I met through a support group. Rumor is, LFA or other group has pleaded with her to speak publicly about this illness, but she has refused b/c she did not want to diffuse all her great work for AIDS.

Don't know if it's true or not.

There are others in entertainment who have it too, but are fearful that they may not work again if it is known; Teri Garr has said on Larry King that she's had friends go to bat with networks for series ideas for her but she's been nixed because of her MS. It's always hard to say though, b/c women over 40 have a terrible time maintaining their careers no matter how healthy and talented they are.

silverlioness
06-17-2006, 11:24 PM
Pietra Cherniak (a model), Billy Bob Thornton's ex-wife, has lupus.

Also, concerning Mercedes from America's Next Top Model - on a "where are they now" show, she described lupus as a "chronic illness where it attacks your immune system." I was mad and e-mailed LFA. They didn't respond, but I hope they fired her :)

Missy
06-20-2006, 11:39 AM
Yeah - Mercedes seemed really young and naive about her own disease. I guess at least she brought some awareness........

silverlioness
06-21-2006, 03:07 PM
I agree.

stjames13
06-22-2006, 07:39 AM
8)
JFK HAD HASHIMOTOS"S SYNDROME.

Which is a fancy way to HONOR the man who discovered this THYROID problem.
He was HYPO vs HYPER...so he had to take SYNTHEROID.
This is a common problem that alot of people with LUPUS end up getting.

So if you;re feeling run down and out of gas....have your DOC do a quick
TSH ,T-4 test and find out if YOUR thyroid is working right.....it may be the cause of HAIR LOSS, FEELING OUT OF GAS ALL THE TIME, LOSS OF APPETITE, HARD TO SLEEP and MOOD SWINGS !!!!

You see with LUPS in My case and from what I understand is that USUALLY we get one auto-immune disease, then another, then another and FINALLY we get a Doctor who realises something is wrong and hopefully he sends you to a rheumotoligst., then the diagnosis of LUPUS is found....
I unfortunately have been diagnosed with BOTH SLE and DISCOID LUPUS ( ain;t I lucky?!?!)

With this specialist hopefuly he will run the right tests and diagnose you correctly.
With the THYROID problem it can be EASILY treated with THYROID HORMONE REPLACEMENT....ie' SYNTHEROID.

WE rely on Doctors to know it all and be on top of everything.

I have found that the more research I do and provide my Doctor with everything I find new and old makes it easier for him to make me feel better.
So do not be afraid to do your own research and bring it in to your Doc's next time you have an appt.
Especially if you have other auto-immune problems and can not take certain drugs.....
I was recently told that I now have cataracts which I am 99% sure they came from the constant bombardment of PREDNISONE.

So now I have become even more vigilant about what drugs I allow them to give me and what I take.

I am also a LIVER CANER SURVIVOR...or should I say I am one of the very few to have my LIVER CANCER go into remission.
So I stay on top of every drug my doc gives me both for pain and all my auto-immune problems.
There have been several times that I was given a drug that I should not be taking....and with all the problems that I have it's hard for the Doctor to remember every little thing that's wrong with me.

SO the BEST thing to do is to HELP the Doctor HELP YOU !!!!

He will not take it as you are trying to outsmart him but rather that you are helping him treat you and a patient who is active in there treatment will get better much easier than one who gives there doctor no input at all.

One last thing about the THYROID PROBLEM.....DO NOT get this test done right after having a cold, when you are really run down, or when you are STRESSED out or else you thyroid will give off un-realistic readings.

BEST REGARDS
St JAMES

SoleSinger
06-22-2006, 08:22 AM
All Hashimoto's is is Hypothyroidism? REALLY... I thought it was something totally different... Wow, so I've had Hashimoto's all this time and didn't even know it.... Wow... Learn something new everyday! Thanks James!

stjames13
06-22-2006, 02:09 PM
YES MAM !!!

I hope you are being properly treated for it.

St James 8)

SoleSinger
06-22-2006, 03:17 PM
Yes, sir! I am on .075mg of synthroid and they test me all the stinkin' time... LOL!

I knew my grandmother had Hashimoto's, but my doctor, (the one who tried to kill me) just said hypothyroid, so I thought they were different! There IS a genetic link after all!! I'm not just the freak of the family... Well, at least not in THAT way! LOL!

:lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol:

stjames13
06-23-2006, 05:37 AM
8)
The reasons why my doctors had such a hard time diagnosingme with alotof what I have is due to the fact that I never knew who my BIOLOGICAL mother was.

She left me and my dad when I was just 6 months old.
I found out alot once she died.....funny the women never once talked to me and when she was in my life was a terribel mother from what my grandmother told me, but she left EVERYTHING to me, I guess she was hoping for forgivness....NO WAY !!!!!

But anyway I did get one goo d thing from her pasing ans that was all her mdeical records and she had 50% of the auto-immune problems I do and the one thing that scares the heck out of me is that she and 5 siblings ALL died from COLIN RELATED CANCER......thanks

Maybe that's why I ended up with LIVER CANCER but was oneof the VERY FEW to get it to go into remission. The DOc's said that the reason why my Liver took to the treatment and re-juvenated itself is because
I NEVER DRANK LIQUOR!!!!!
I saw how it made my father become abusive and how foolsih all the adults acted when they drank and when I did I found it to be a sloppy high and cetainly far from fun or Euphoric.

But YES it is HERETIC !!!!!!, but don;t bother even trying to talk to other family members as most will take the defensive side and say things like so It's MY fault your sick !!!! WEll at least that's what I heard.

You really do NOT need to be tested but just once a year or every 6months....your doc is WAY over doing it...probably because you have GOOD insurance....but I was told this by my MAIN RHEUMOTOLIGST in NYC and he is on top of everything related to LUPUS and the IMMUNE SYSTEM.

HOPE YOU HAVE A GREAT WEEKEND

St James :)

SoleSinger
06-23-2006, 09:42 AM
Well, my doc pretty much tests for everything everytime I go in... except my cholestrol... which I think is odd... I think they figure if they have to stick me anyway, they may as well check on everything...