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Deemarie1223
09-24-2012, 01:44 PM
What's the difference between an ana test that the result is pos or neg only and an ana test where the result is 1:160 etc. And can you have a neg ana on a pos/neg test but then have your titers checked and they be abnormal? How many of you have been dxd with a neg ana? I'm just curious if it makes a difference between tests. Thanks!

tgal
09-24-2012, 05:57 PM
Titers are only checked when positive. Basically they tell you HOW POSITIVE the results are. If the ANA is negative the testing goes no further. Please keep in mind though, that some Lupus specialists do not believe in checking ANA after a Lupis diagnosis and 1 positive result is in the file. There really is no need and we all know our bloodwork changes all the time. Sadly, too many docs want to remove a diagnosis when the positive ANA turns negative but that is because the are idiots!

Deemarie1223
09-24-2012, 07:35 PM
Is there anyone here who is diagnosed who hasn't had a pos ana but lots of other symptoms (including blood disorders and rashes most commenly found in lupus?) And I asked my pcp to do a titer anyway...reason being is cuz I'm literally the girl who had 7 neg BLOOD pregnancy tests yest every URINE was pos. My body is and has always been backwards. Nothing shocks me anymore....I hope asking for the titer just to see what my numbers are exactly wasn't a bad idea??! I just know I'm alway back **swards lol

Derrie
09-24-2012, 07:40 PM
For what it's worth, I have never had a positive ANA, but I definitely have some sort of autoimmune disease according to my doctors. They based that on the fact that I have low C3 and C4 and based on my skin biopsies. So, even if you don't have a positive ANA, other symptoms and lab tests can point to autoimmune disease.

That said, no one has given me a name for what I have. The key, I think, is less getting a definite diagnosis, but more getting adequate treatment based on your whole clinical picture. Like, even though no one know's what's is actually going on with me, my rheumatologist started me on Plaquenil because I look like an autoimmune disease, so he's going to treat me as such.

Are you getting any treatment?

Deemarie1223
09-26-2012, 02:19 PM
Derrie-I agree 100%! I'm not getting any treatment...so I always feel terrible. Although the general consensus is that I do have something autoimmune, no docs are jumping to start any meds to help me. That's why a dx is sooo important cuz if they won't help without a dx, I know they will with one. Its just soooo dicouraging to have so many tell tale signs and blood work indicative of autoimmune and to be shut down...repeatedly. at least there's hope! I don't WANT to have any dx, but I'm sick and tired of being sick and tired and I just want help:( I hope more neg ana people share their stories...thanks derrie!