View Full Version : Was I wowed and learned a lot
09-22-2012, 12:42 PM
The Georgia Chapter of the ALF gave a local symposium. As a member of the local group I went and volunteered to help set up. They had a team of specialists to speak. A neurologist, a cardiologist and 2 rheumies (sisters who practice together). They really focus on lupus and their specialties. They gave us a lot of good meaningful information. I'd recommend attending any gathering your local groups offer. It is well worth it. I met lupies from all over the area. Of course I was very interested in what the neuro and cardio guys had to say.
It was recommended that we who are computer oriented learn to keep our medical history and test results current on zip drives.
Anyway - there are docs out there who really care and focus on us. We just have to keep looking. They also recommended using your Pcp as the gateway doc or main link between the specialists for exchange on info
It was a good morning.
So glad you likes it and thanks for sharing the information. I know I often want to give up on specialists and I needed a reminder not to do that
09-23-2012, 08:18 PM
Where do you live??? Lol! I need a doc that will listen, and sooner then later:) I hope they do something like that near me! Sounds very interesting
09-23-2012, 08:26 PM
I felt the same way when I attended a Sjogren's conference. It was so great to listen to speaker after speaker - docs who actually "got it".
It's great to know that they are out there. It was also that much more of a downer to listen to my rheumy and the neurologist that she sent me to telling me the exact opposite of what I had heard at the conference.
I wish that we could force our docs into some "continuing education".
09-24-2012, 04:03 AM
One of the things brought out was the fact the the medical community is trying to educate itself on Lupus. ER doctors spend only a short time in each branch of medicine. There are now guidelines being posted for them. We have to be open and help them understand. Bitching is not going to help us. We need to say have you read this article or have you heard about this guideline. Most doctors are just practicing. They don't have time to research anything unless they have to. We have to help them out and point them in the right direction. Most will thank us, only the egomaniacs will be downers.
Think about it. Yes we bitch and vent a lot. We need to relieve our frustrations; but do we do anything to educate ourselves and help the docs understand. We need to be more positive in our attitudes and that will also help us.
Well I'll get off the soap box now. It really hurt me to hear a Lupie say that the online site was nothing but a big bit h session. I know that was only her viewpoint of us. But what if others feel that way. We are here to help one another cope with this condition.
Positive thoughts produce good feelins produce a healthier being
Hugs, Good thoughts and my caring love to all of you