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09-18-2012, 03:38 PM
Hi everyone, I was diagnosed in July with Lupus. I don't feel as if I need to be put on a lot of medication at this point and generally I have always been cautious of using medications due to the side effects. However, I am on a NSAID due to my knees having fluid on them and my fingers swelling. I am currently just going to my GP but have been considering going to a specialist because although I really do like my GP, he doesn't seem to think my knees and fingers are a Lupus condition and I have read on line that the knees and hands are often targets of Lupus. I still have so many questions.

I am a mother of two wonderful sons; one is newly married and the other is a senior (I home school him). I have been married twenty five years and counting to the most amazing, understanding, and loving man. I am a director with a direct-selling company and a devout traditional Catholic. I don't know what else to say in this introduction....I would like to know if most everyone in this group goes to a specialist or if any use a GP and if so do you have any recommendations on how I can better communicate with him?

09-18-2012, 06:21 PM
hello mamabird hello and welcome to whl family . i would keep a diary with your questions and your symptoms and when they occur so when you go to see gp or speciialist you can be prepared. if you are not happy with gp get a second opinion a lot of us have had the same problems with doctors that is why it is good to keep diary. my name is kim and i have been married 29 years to a wonderful man . we have 3 children 1 son 25 1 daughter 24 and another daughter 17. i have great gp and a rheumotologist both manage my lupus. i take prednisone and plaquenil and mexotrexate for my lupus . i first discovered i had lupus 5 years ago. but specialist believes i have had it since i was a child i am 47 years old. my mother has it and my eldest daughter has it. you need to have doctors you can trust and believe in. hope everything goes well hugs kim

09-18-2012, 06:30 PM
Oh, thank you, Kim. Yes, my husband keeps telling me to keep a daily journal. It is nice to have a board where you can share with others. I feel as if I don't want to mention too often to my husband and best friend because I don't want to be a "complainer". I am just bewildered by all the different things happening to my body. I keep saying it is because I am getting "old' (although I really do not consider 45 to be old). I will start journal. So is Lupus genetic? My doc told me no but I think my sister should be checked.

09-18-2012, 07:18 PM
Welcome Mammabird
I would find myself a ruhematologist if I were you.
I have both a ruhemy and a GP and they both work together-but they both have different functions.
Most specialists won't address anything outside of thier specialty and most GP don't know enough to handle lupus in all its various forms.

Once you start to read up you will be amazed at how lupus can affect us.When I was first diagnosed it was due to skin rashes .
I have since connected the dots and lupus explains alot of the symptoms I have had for many years.

Like you I figured I was just getting old( I'm 51) but now that I am on meds for lupus I feel alot better in many respects.
Sometimes a bad knee is just that a bad knee-I got one that gives me problems-but its not due to lupus.
But most of us lupies suffer from bone,muscle and joint pain which can be improved upon.So don't be shy make yourself heard!
A journal is a great idea.

My father was never diagnosed but I believe he hed lupus. My brothers and sister all have mentioned to thier drs that I have lupus but so far I'm the only one.

Take Care Niall

09-19-2012, 12:44 AM
Hi mamabird! Welcome to WHL. We are really glad that you are here and decided to join in the conversation. Make yourself at home and I look forward to getting to know you

09-20-2012, 01:28 PM
Definitely get a rheumatologist. You have inflammation, and inflammation causes damage, and leads to other inflammation. It can get into a viscious cycle...