View Full Version : Old topic, same song
09-15-2012, 06:34 PM
Honestly, what is the matter with doctors who deal with Lupus? Why do we have to visit up to five or more RA Dr.s to get any type of real assistance? What is it that a team of doctors have to wait until you're almost dead to take you seriously? Yes, I'm angry at the industry. Darn it, we get tired! It's impossible to keep up the steam to see every specialist. Next week I have three appts with doctors. Last week, I had two. I'm in a therapy group to help cope with pain without narcotics. When did doctors stop trusting the gut feelings of their patients? Or even the symptoms? I'm just angry because if my first RA would've left me on Cellcept, maybe I wouldn't be hooked up to a cathader bag or facing the liver biopsy. Maybe I would, but at least I would've have been trying to get well.
I don't know what needs to change in this country but the fear of endless lawsuits might be one. I think that definitely contributes to the overcaution of physicians. Instead, they throw pain killers at everything and patients end up like I did - on over 25 medications with at least a quarter of them being narcotics.
I'm sorry to be a downer but this disease and the medical community have definitely not caught up with each other. Perhaps tomorrow I will have a more positive outlook.
09-16-2012, 06:05 AM
I agree with you. I went to my first rheumy visit last week and she told me to exercise and not sit on the couch, and that I don't have RA. Well no kidding, no one every thought I did!! She was so rude and wouldn't even listen to my symptoms. Thank goodness I have an appt for second opinion next week with a different rheum.
You know, there should be a different specialty for all this. Like, an autoimmune specialist. Instead of having to go to these rheumys who deal with RA, and all these other Drs that have their own thing and don't deal with autoimmune very often. So you could go to 1 Dr that knew all about AI issues and could help right away.
09-16-2012, 09:41 PM
Hang in there. We all understand just what you mean. It seems that being arrogant is part of the package for many rheumys.
I'm convinced that the one that I have is making a great living out of doing the minimum for little old people with arthritis.
She acts like dealing with someone like me who has something that is out of the ordinary is more than she wants to deal with.
My last appointment lasted four minutes exactly.
There are good ones. The rheumy that I had in San Antonio was great. I'll be moving back there in six months. I dread going back to the heat and humidity, but I'll be soo glad to see my great rheumy, PCP and otolaryngologist.
09-21-2012, 09:11 PM
I'm soooo with you! I just had ANOTHER very discouraging rhuemy visit. She didn't listen to my symptoms or look at them on my body or on the pics I brought. She rushed me out and said fibromyalgia (but my hair falls out in clumps, I have various rashes, an and sun sensitivity just to name a few non fibro stuff..what about that!) She didn't care. I'm waiting to go to boston now, a lot further from home but willing to get a second opinion. I also found out I've never had an ana titer just the pos or neg which is often false (both ways), nor have I had a sed rate (even when my c reactor was a 16!) She ordered another basic ana and protenuria test and that's it. I left and cried the whole 45min drive home. I'm soooo tired of it! Good luck friend!
09-21-2012, 10:02 PM
Dont give up! and keep trying to stay positive! I went through 3 doctors till I found one that believed in my symptoms. Its a lengthy battle and can be exhausting but dont give up!