View Full Version : Any other Men w/ Lupus go on TRT HRT because of Low Testosterone?

09-11-2012, 08:34 PM
I am 35 (lupus and probable Sjorgen's diagnosed app. 3 yrs ago), started on TRT HRT because my Testosterone was so low.....it can be anyway with age, but mine so bad assume Lupus wrecked my hormones. Super low DHEA and SUPER HIGH PREGNENOLONE, as well as high estrogen.

Any other men out there with lupus? Have you had hormones checked? Anyone on Testosterone therapy?

I am curious, has it helped your overall energy. Does your Rheumy know? Do they approve?

I didn't realize we are twice at risk with SLE for "Lupus patients are twice as likely to develop atheroscleroisis or hardening of the arteries and to suffer cardiovascular events like strokes and heart attacks."

Just before everyone stopped calling me crazy and I got diagnosed, I did see heart specialist for chest pain, heart super strong he said, but just in case anyone else does one of my walls is a bit abnormally thick. This is before TRT HRT.

If any males out there with Lupus on TRT HRT please email me or any that are still say under 50 and trying to maintain training in Martial Arts to fair amount.

Thank you,
DanTheWolfman.com Ironic, I had this nickname before Lupus diagnosis too

09-11-2012, 08:37 PM
I do not come on these boards often so if you can bump this thread for others with a comment, bump, TTT please perhaps someone else out there is in similar situation, thank ou

09-12-2012, 08:43 PM
hi dan,
i am 50, and dont participate in any rigorous activities.
i dont have the strength..... and the recovery time is soooooooooo long.

i also am not on any testosterone medication.

sorry i cannot help,but wanted you to know your post is being read.

09-12-2012, 09:11 PM
Ummm I know this is weird and i'm a girl but I actually went through this. Uhhhh so last year I found out that I wasn't making enough of my own testosterone, when I got on the spray it did give me a bit more energy. From what my doctor told me that it was pretty normal for us lupus peoples bodies to stop making it's own hormones and vitamins. The treatment for me was just a spray twice a day behind my knees and elbows.
Sorry if you wanted to hear from guys but I saw this and thought i'd let you know.