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wishingstars
09-06-2012, 01:48 AM
Hey guys, I've been on this site for a while, I just don't post very often.

I guess I just wanted to express my thoughts and feelings.

About 6 years my mom was diagnosed with lupus, and when they caught it, it was really advanced. A few days ago, my sister was doing work experience at a hospital, whereby a doctor told her that our mom would die. Of course I know that is going to happen, and most likely a lot sooner that most of my friends. But it just really saddens me to know my mom might not be around for much longer. She may potentially never see me get married, or meet her grandchildren. My dad isn't around anymore, and my only real close family is my mom and sister.

I don't really know why I'm writing this, but I just wanted to get it off my chest.

If you read this, thank you.

steve.b
09-06-2012, 06:37 AM
i remember when you first joined about a year ago.
unfortunatelly some people do not understand compasion.....
for a doctor to talk like that is irresponsible.

i hope mum has quite a few more happy times with you.
make your time count..... enjoy her.
and may medical miracles help her live a peaceful life.

ruziska
09-06-2012, 07:48 AM
Steve is absolutely right. So don't worry about what might be and enjoy what is. None of us can predict the future. Take life one day at a time and celebrate each and every one of them.

Manderson
09-06-2012, 08:12 AM
Doc needs better bedside manner.

Hugs to you, sweetie!

jmail
09-07-2012, 02:05 PM
Yeah, doc needs to get that stethoscope out of his backside... Thinking 'boutcha, and praying for you and your family, wishingstars.

tgal
09-08-2012, 12:21 AM
Sometimes I DETEST the docs we have to deal with. That doctor was an idiot! Many people with Lupus live to ripe old ages just like everyone else in the world. As long as they take their meds and do the things they should (and not do what they shouldn't) most Lupus patients can live long, productive lives and see everything that all other healthy people get to see.

Don't let that idiot get to you. Sadly you will find that there are way too many of them and they are not worth your time nor thoughts!

rob
09-08-2012, 06:39 AM
My Mom has been living with Systemic Lupus for 23 years now. She's 76 years old, and doing just fine.

That a-hole Doctor doesn't know what the frak he is talking about. If some ignorant fool said such
a thing to me, I would probably punch him in the nose.

You should ignore such uninformed opinions Wishingstars.

Rob

magistramarla
09-08-2012, 01:47 PM
Wishingstars,
As others have said, there are many people here who have been living with AI issues for many years.
Encourage your Mom to get the right treatment from a competent doc and to take her meds as needed.
Flares can be scary, but they can be handled.
Enjoy your time with your Mom, and quit worrying.
I don't let my AI issues stop me. I use my cane, rollator, wheelchair and my service dog, and we travel and enjoy life.
I just enjoyed a week with my son and his new bride. My fourth grandchild is due in a few weeks. I have five kids, who are literally scattered all over the world (one in Germany), so I enjoy traveling to see them.
Life can be good with AI diseases. You just have to slow down and make a few changes.
Hugs,
Marla