View Full Version : How long can a flare last?
08-25-2012, 08:41 AM
I'm sure this? Has been asked a million times! But I feel like I've been in different forms of a flare up for over a yr(mild to severe). Also, when your not in a flare up, you can still have permanent symptoms right? They just get worse when in a flare? My life is by far stress free, I watch kids for a living, money's tight, I've been denied ssi twice and now battling a 3rd round, I've been through a lot w my kids (both have had surgery this yr) amongst other things.....if I'm constantly stressed, will I constantly feel like I'm in a flare? Thanks in advance for any input! As always, it's greatly appreciated!
Flares are a strange thing. For me, sometimes a flare can begin suddenly, and a few hours later, end just as quickly as it came on. For the most part though, my flares are pretty regular and somewhat predictable. They last two or three days, and then subside for a couple of days before coming back once again. I've never been in remission.
As far as constant or permanent symptoms go, when I'm not in a flare, I'm still not 100%. For me there is always fatigue and joint pain, even on my best days. I consider it "background noise" and I basically shut it out and ignore it on my good days. On the bad days though, it can't be ignored.
With time, many people learn to recognize the beginning of a flare. For me it begins with mouth sores, and fatigue with the sensation of being held down with a blanket made of lead. I also get bad brainfog. What was easy to write or understand yesterday suddenly becomes hard to understand.
Flares are different for everyone, and no two people will have the exact same experience. If you are thinking that Lupus is an incredibly confusing thing, you would be correct. Then there's stress. Stress can indeed induce a flare for many people. Reducing stress is something we need to do for ourselves, but it's far easier said than done, and not something I'm particularly good at myself.
08-25-2012, 02:18 PM
My flares are simular to Rob's, they usually last about three to five days, but sometimes they last for weeks.
Like Rob, I am never in remission, I also have joint and muscle pain every day and extreme fatigue can strike out of the blue.
My flares always start with bad diarrhea, bad joint and muscle pain, fatigue and brain fog, on day two I do get the mouth and nose sores.
It does take a little while, before you are able to recognize a flare.
Whenever my flare lasts longer than a week, my rheumy gives me a steriod shot in my buttocks and I start feeling better the next day.
08-25-2012, 07:36 PM
I did have remission until November of last year. So it's possible and I hope it will happen again for me. Until then, I just try to do my best.
Like Rob said flares are weird. It can be anywhere from a few days, to weeks, or years. I'm still in a flare and it's been 2 years. The more permanent symtoms are the joint pain, nausea, and other little things like that. Also like Rob said reducing stress will help but I understand that it's hard to do. Times are tough now and it's getting harder for people, especially chronically ill people, to survive without constant stress. With the SI just get a lawyer, i'm still waiting for my trial hearing but since I got the lawyer it was so much easier, they do most the work and you only pay after you get your disability and if you don't get anything they dont charge. Look into that it probably help some with your stress.
08-25-2012, 10:02 PM
i am similiar to rob i donot think i have ever been in remission just some days worse than others . it is different for everyone. i do know that tiredness and stress will make you flare worse. this is so in my case. hugs kim
08-26-2012, 12:47 AM
Gosh this thread was useful, something just clicked and now I can recognise my flares!!! There is a big difference between me on a good day and me on a bad day so I guess the bad days are my flares. Usually lasting a few days every week. I have brain fog so I can't read or write even though I can do those things fine the day before and the day after but for the days I'm having a flare I am pretty much good for nothing. I feel glued to the lounge and just holding things, walking etc is painful. On my good days I will prepare extra food to freeze so that on my bad days I just have to defrost something.
08-26-2012, 08:12 AM
Well I was just dignosed with lupus a few months ago. But have bee battling it as far as I know now for 2 years. My flares are a lil like Rob's and Mica's I can get really bad out of the blue for a few hours and then it just disappear or I can go from having a really good month with energy, able to get up and do stuff slight joint and muscle pain, not bad though. Too horrible pain for months. The current flare I am having has lasted a couple of months now and has yet to go away. It doesn't help that I have a bad back (not bad enough for surgery) but I think my lupus when it flares attacks that bad parts of my back and makes it 100 times worse. Plus I get a lot of fatigue and a brain fog really bad. My flare must be calming down as for I am able to write this without getting confused and loose my attention span. LOL! Good Luck!
08-26-2012, 02:23 PM
Thanks for all the personal Opinions. I think I'm pretty sure I can recognize them now. I'm glad that there are symptoms that stay even when not in a flare. I guess that's why I asked, I don't think I've been in a flare this whole time now:) on the days when I can do every last dish, all backed up laundry, sweep, most, dust and take kids on an outing are obviously days when in not in a flare, even though it still hurts, it's manageable on those days and my overall mood is better as well! You guys are awesome!
08-26-2012, 05:58 PM
I kinda equate "flares" to like a kid constantly drawing on the wall as he walks around the house. You know how they draw, kind of a wavy line? There's almost always a line there somewhere, sometimes up, sometimes down. Sometimes they stop and completely color in an area. As the child ages, he can draw higher up the wall, and sometimes he trips, and/or gets bored and quits drawing for a while. Then they get the itch to do it again, and away they go... Meds and other therapies are like the wall paint you use to "cover it up". One of the problems with the lupus kid, is it never outgrows the practice... Yes, my brain is warped...
08-26-2012, 06:49 PM
No jail, I think your brain is awesome! From a person who runs an in home daycare and teaches Sunday school, as well as a mom...that analogy was perfect! Thank you, and btw, I was reading up on you since I'm new here and I'm sorry to hear what you've been goin through as of laypte, I'm the prayin type o folk, so I'll keep you in them!
08-27-2012, 12:28 PM
'per-shee-ate the prayers, as always, and back atcha too. btw, Just because the "brain is awesome", doesn't mean it's not warped... lolol - Young Dr. Frankenstein thought his creation's brain was awesome... "boo-ah-ha-ha! What's that, Igor? (EYE-GORE!)... I've used the *wrong* brain?"...
08-27-2012, 01:36 PM
It's ok to be a lil lupie isn't it?
08-31-2012, 02:05 AM
I think that if we weren't loopy, and a lil crazy at times we wouldn't make it through all this. SOMEONE HIJACKED MY BODY AND WON'T GIVE IT BACK! I told my doc that and she looked at me like I was crazy. I was being serious. I love being loopy, I would die if I weren't.