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View Full Version : Mysterious Abdominal Pain Continues to be Mysterious



Derrie
08-21-2012, 06:29 PM
As some of you may remember, I've been having moderate pain in my lower right abdomen for a few months now. I went to a gynecologist and had an ultrasound, and there was a not-huge simple cyst on my right ovary. Though the doctor thought it was a bit small to be giving most people trouble, she figured that was definitely what was causing my pain, and told me to come back for a follow up ultrasound in about a month.

So, the pain has continued, and I go to my follow up ultrasound, fully expecting the cyst to still be there or even bigger. But you know what? Completely gone. Cyst-free.

But I'm still in pain. The pain is strange. It is not GI pain -- it doesn't change with eating or bowel movements. And I can pinpoint exactly where the pain is (honestly, right about where my ovary is, just a few finger widths' in from my hip bone); the pain is not diffuse, and it does not migrate. It does sometimes come and go. My ultrasound was totally normal. It hurts the most when I am sitting upright, like at a table or desk.

The doctor now believes that the original cyst was not causing me pain at all, and that this pain was caused by something else. The cyst, she thinks, just happened to be there not causing me any trouble when I got the first ultrasound, and we incorrectly assumed the cyst was causing my pain.

The gynecologist can't think of anything else to do, has no idea what it is, and just told me to call her if it gets worse. Which is just crushing for me to hear-- more pain I'm just supposed to suck up without even knowing what's causing it?

"Maybe it's your connective tissue disease," she shrugged. Maybe it is. Who knows.

Have any of you had such pin-pointable, chronic abdominal pain? If so, do you know what caused it? Grasping at straws here.

steve.b
08-21-2012, 09:36 PM
sorry i cannot offer advise.

but i do have a wide shoulder.

debbie-b
08-22-2012, 03:13 AM
Could it come from your back? I was told by my doctor, that alot of times, pain in the lower abdomen comes from the back- back pain. Is that a possibility?
As I am sitting here, I have a pain on the right side of my lower abdomen, which I feel comes from my hip, that is what my rheumy thinks too.
Hope they can figure it out for you.

Debbie

magistramarla
08-22-2012, 02:35 PM
Derrie,
When my daughter Meg was a young teen she had a similar experience. After her continuing problems with ovarian cysts was ruled out, her doc sent us to a gastro. He suspected Chrone's disease, so she had a colonoscopy. The good news was that it wasn't Chrone's. The even better news was that it was an odd kink in her intestine, which the colonoscopy solved by straightening it out.
Have you seen a gastro? Just throwing this out there for you.
Hugs,
Marla

Derrie
08-22-2012, 03:00 PM
Derrie,
When my daughter Meg was a young teen she had a similar experience. After her continuing problems with ovarian cysts was ruled out, her doc sent us to a gastro. He suspected Chrone's disease, so she had a colonoscopy. The good news was that it wasn't Chrone's. The even better news was that it was an odd kink in her intestine, which the colonoscopy solved by straightening it out.
Have you seen a gastro? Just throwing this out there for you.
Hugs,
Marla

Yes, that is a good suggestion, Marla. My internist's nurse mentioned a GI doctor when I called in about this, and I got skittish.

I was so exhausted by my nine months of testing for my leg pain and foot and hand tingling -- three MRIs, lumbar puncture, thousands of dollars in blood work, NCV/EMG, four biopsies -- that I am quite honestly terrified of starting up the Diagnostic Hunt again. Every time I have thought about that the past couple of days, I've actually started to tear up and cry, heart rate rising just thinking of the prospect, which is pretty unusual for me. It truly scares me to think about starting all that up again. "Just this one test" or "let's just see what this one specialist thinks" always seems to lead to another and another and another...

But that is a useful story to hear, Marla. I will make myself remember how seeing a GI helped your daughter, especially when I'm feeling like bolting in the other direction.

charmed60
08-26-2012, 10:48 AM
I'm sorry you're experiencing this pain. I'm having a very similar experience with pain in the exact location however it sounds like it's a different type of pain I get to you. Mine is very sharp almost electric shock type and radiates down the back of my knee to my ankle most of the time. It only lasts a few seconds (but those few seconds are so so painful and take my breath away). I've visited gynaecologists to and they have no answer. I haven't however been diagnosed with lupus so all of this may be irrelevant (am awaiting to see a doctor) but just wanted you to know you're not alone in mysterious abdominal pain! Had mine nearly 3 years now with no diagnosis.

Ronnie
08-27-2012, 07:20 AM
I am truly sorry you are feeling this pain. I have been diagnosed with lupus and have had some really weird things happen and you just don't know if all symptoms are lupus or if there is something else going on that is bad. I too have had bad pain on my right side. I recently had a sonogram and they found cyst on right ovary, fibroid in uterus and hyperplasia which is a thick endometrial. Ihave to go back in 6 weeks for another sonogram. I truly believe lupus patients have all this inflammation and when something out of the ordinary is going on, like a cyst, the area gets even more inflammed so we really feel it. I have found some information online about studies that lupus is caused from an imbalance of hormones. I know for sure that during ovulation and for sure during my period and right before, my symptoms flare the worst. One other thing you might look at is your appendix and gallbladder. I had my gallbladder removed 5 years ago. They kept saying nothing was wrong with my gallbladder after several different tests, but then they did a functional test and the lady doing the test was shocked because my gallbladder wasn't functioning at all. It was as if it was dead. I litterally had to threaten my doctor because I knew something was wrong. I got sicker and sicker. I totally get how you don't want to start any more testing up. I have anxiety over dealing with anything else that is wrong. Going through heck just getting diagnosed with lupus was enough for me. I know I need another colonoscopy to check things out because I was diagnosed with ulcerative colitis 5 years ago as well and I never went back for my follow up colonoscopy. Those things aren't fun at all. I am so tired of getting things checked out and always finding something is wrong. It truly gets old. I feel like those around me think I am a hypocondriac. They don't realize what I go through and how much I hate going to doctors! Hang in there and don't give up. If the pain doesn't get better or it gets worse, you need to push your doctors to check it out.

Derrie
09-02-2012, 10:06 AM
Thanks, all, for the useful feedback. The pain is continuous and bothersome enough that I just might -- might -- make an appointment with my internist after the holiday weekend. I just know they'll probably want to do some test, like a CT, or send me to a specialist, like a GI doctor, and I find the prospect of all that very upsetting.

And Ronnie-- my aunt who is a doctor suggested because of the location of the pain, it might be some kind of chronic or subacute appendicitis. Unfortunately, I'd need either a CT (radiation, eek!) or exploratory surgery (anesthesia and scalpels, eek!) to confirm.

I'll let y'all know if I work up the nerves to get this checked out and if I find out anything.

Thanks again, everyone, for being awesome.

Derrie
09-04-2012, 08:13 PM
CT tomorrow. Doctor totally argued me into it. He made a convincing plea, I must say. No one told me I'd have to drink two huge bottles of this chalky, artificially-flavored, berry-berry-barium "smoothie," though. Unsure if I would have agreed to this had I known about that.

Feeling anxious. My luck is always that tests are pretty much normal, and then I'll have guzzled barium and been irradiated for nothing and still be in pain.

Saysusie
09-04-2012, 09:26 PM
Please let us know how the CT was and if they found out exactly what is causing your pain. Best of luck

Peace and Blessings
Namaste
Saysusie

wendya432
09-04-2012, 11:06 PM
I hope your CT goes well! I'm having pain in that area right now, too, actually. I have a feeling mine is a kidney stone, but it worries me that it's in the appendix area. I'm up in pain right now at 2am, knowing that the morning is going to be hell getting the kids on the bus after no sleep. But I just can't sleep with this pain!! I'm wondering if I should go to the ER or not, but if it's just a stone then I just have to wait for it to pass anyway. And, I know I have 12!! stones right now, so that is the most likely explanation for me.

Let us know what you find out from your CT!

The Survivor
09-05-2012, 11:05 AM
It could just be your lupus causing the pain. I'm so sorry that you're going through this and I wish I could be more of assistance to you.

Derrie
09-05-2012, 03:45 PM
Normal CT. Looks like it's just my autoimmune self being a jerk to my body again.

So it goes.