View Full Version : HELP...Muscle Fatigues Fast and then pain..Is that part of lupus?

08-20-2012, 10:18 AM
I was finally diagnosed 5 months ago with Lupus and Raynauds and Livido Reticularis. I also have female issures being watched right now and a tricuspid and Mitral valve regurgitation. I have had many issues, but the one I am concerned with now is how fast my muscles fatigue and then they don't work and then the pain comes within hours. For example, for over a year now, if I try to walk somewhere quickly my feet stop working and my toes will drag. I can't seem to pick up my toe area of my foot. If I walk at a slower pace I can keep walking. Now, most recently, I washed my little car yesterday with a sponge and didn't wash it to great, but by the end of my car wash, I was struggling to move my fingers and hand. I had to keep switching hands and almost couldn't finish. By about 2 hours later, I noticed pain in my arm and it continually got worse. By bed time I couldn't bear the pain. I was in tears. I had rubbed bio freeze on it, then an ice gel, and then had to take pain pills. I have raynauds and lupus. It seemed like the issue was blood flow or something. It just throbbed like the blood was coming strongly into the arm and that my arm was going to burst. I still have some pain and weakness today, but not as bad. Does anyone know if this is part of the raynauds or lupus???? Or is it something else...like a heart issue. The pain is in my right arm but that is the arm that I did most the work with. Any help would be greatly appreciated.

08-20-2012, 10:59 AM
I have muscle pain, fatigue, stiffness, and occasional weakness that appears to be related to my autoimmune/inflammatory condition. And it definitely gets worse the more I use the muscles-- it takes me days to recover from things like even pretty gentle hiking. So, it's entirely possible that lupus could cause muscle inflammation (though I don't think that's common), or it could be another autoimmune condition affecting your muscles because, as we know, these AI things like to run in packs.

It sounds like your muscle pain and fatigue is severe enough and troubling enough to you that is sounds like you should definitely make an appointment with your doctor! I'd start with an appointment with your primary care doctor, who can evaluate whether this problem is likely related to your lupus, or something new. He or she will likely run bloodwork, probably for muscle enzymes that can show up in your blood when your muscles are affected by an inflammatory condition. Then he or she can refer you to the proper specialist, if necessary.

I really encourage you to see your doctor about this. Will you let us know how it goes if you do? I am always interested to hear how others deal with muscle problems.

08-20-2012, 12:01 PM
I too encourage you to talk to the Dr. You might want to get to a Neuro so they can check muscles and such.

08-20-2012, 12:14 PM
Yeah, like Mari says, you may end up seeing a neurologist. When I first developed muscle issues, I saw a neurologist, and I underwent a test called a nerve conduction study and EMG to see how my muscles and nervous system were communicating. That is something they do to rule out problems with your nervous system, myositis, etc.

08-20-2012, 12:19 PM
Yes, I think my doctor has said something about myositis when they were trying to figure out why I was in so much pain. Not sure what she is thinking now though that she diagnosed me with Lupus.

08-21-2012, 09:41 AM
Thank you all so much for your replies. My Rhuemi called back and said she believes it is the Lupus and the inflammation that I have. That the inflammation is affecting a nerve in my shoulder. My GP's nurse called me back and said GP said I should go to ER because some lupus patients have issues with anticoagulant in there blood and it could be a clot. I have taken the Rhuemi advise to wait 5 days. Today is the third day and it doesn't hurt as bad just hand burns deep and arm and hand are still weak. I can't afford to run to the ER unless it is a have to. I sure hope my rheumi is right and my GP is wrong. Thanks again.

08-21-2012, 05:46 PM
My muscles are just... exhausted. Some days I can't even hold up my hair-dryer long enough to dry what's left of my hair. I'm thinking of getting a seat to put in the shower because some days I got so weak half way through and have a hard time finishing washing up. Going up the stairs makes my legs burn. It just plain sucks. I'm guessing it's just all the inflammation, but it would be nice if it would go away!!!

08-22-2012, 03:21 AM
My rheumy is now sure, that my muscle pain and weakness come from lupus inflammation, since all the pain and weakness was gone, when I was taking Prednisone for a few weeks.
Of course, it is back now, that I am no longer taking the pred.


08-22-2012, 05:20 PM
(Cross-posted from another thread)
Muscle problems are my biggest complaint. My joints used to hurt, but the Plaquenil seems to have that under control.
My calf muscles are in a constant spasm, and now the thigh muscles are tightening up too. Sometimes a sudden spasm will pull me to the floor if I'm caught off guard.
I also have very weak hips. It is just plain difficult to turn over in bed.
One of my docs thought that it could be Spastic Paraplegia, but I saw a neurologist who is an expert on that a few weeks ago, and she ruled that out.
She and her team are scratching their heads, since it is definitely "something neurological" going on.
It seems that a lot of us here at WHL and on the Sjogren's World site seem to have these complaints, so I'm thinking that it is a part of either Lupus or Sjogren's. I thought that rheumys were supposed to know about this, but mine just keeps saying that it isn't and swearing that SJS is nothing but dry eyes and dry mouth. I wish that there was a doc out there who really understood our diseases!
I'm at the point with my rheumy that I only rely on her for prescriptions. (My last appointment was four minutes flat!) I'm waiting until we move back to Texas to ask my good rheumy back there all of the questions that I have.
My arms are not nearly as bad as my legs, but I do have some tenderness and weakness in them. When I pointed out the tenderness near my elbows, the rheumy said "just a little tendonitis", but didn't go any further than that. The muscle or tendon leading into my left thumb is always painful and I drop things often. I've gotten used to using my right hand to lift things, etc.
If anyone gets a good explanation about the muscle pain, please let me know!