View Full Version : new member in Kansas

07-09-2012, 04:22 PM
Hi all my name is Brad I am 44 I live south of kansas city and was told 2 months ago that I have lupus I started having some pain in the joints of my hands so the doc did some blood work now I have had a headache for almost 2 months now we have tried a lot of drugs and nothing is working so friday I went in for a cat scan now I'm just waiting not sure how long I have had lupus or if the lupus has had any thing to do with any other things i have had wrong with me or not

07-09-2012, 05:26 PM
Now is that "south of kansas city" in Missouri, or Kansas?... Lee's Summit, Belton?... We used to camp & fish at one of the lakes over there back when I was a kid. Can't remember the name of the park though... Anyway, welcome to the forum Brad! Be sure and look around, read the "stickies", ask questions, etc. I've had autoimmune issues since my twenties, headaches being one of my main "symptoms". I've had several cat scans & MRI's done over the years, and the docs haven't found anything in there yet... tic

07-09-2012, 05:57 PM
sorry kansas I'm in Fort Scott

07-09-2012, 11:43 PM
hi brad and welcome.

there is a few other males who are regularly on here, so you are not alone in this.

please take some time to read a few of the lder posts, they are our personal experiences with lupus.
some of them have been marked as having very good information in them, "stickies", and they are at the top of each sectin.

what medicatin are you n currently.

07-10-2012, 05:11 PM
hi brad welcome to whl family alot of us suffer severe headaches mine can put out of action for a week but it is always good to get scans just to rule out more serious things hope everything goes well.

07-10-2012, 05:30 PM
Welcome to WHL! I think after reading a bit you will find that many of the problems you have had are because of, or a result of, Lupus. Most of us go years without a diagnosis because most of the symptoms can also be from other things. Now that you have a diagnosis they will put you on meds that should make you start feeling better. Some of them take up to 6 months to work but they will help.

We are glad to have you with us and I look forward to getting to know you!

07-17-2012, 06:56 PM
I am Liz and I live in Colby KS, new to this area. But wanted to stop by and say hello.


08-02-2012, 08:15 AM
sorry it's been so long between post but been having some brain fog I'm going to see my rummy for the 2nd time today I will try to post my meds tonight

08-02-2012, 10:05 AM
Take your notes with you!... Don't minimize your issues either when talking with the doc either. I've got a tendency to do that...

08-05-2012, 04:25 PM
ok so the catscan came out good i'm currently on Vimovo 500mg/20mg for my joints and Amitriptyline 50mg for the headaches
I stoped taking the Amitriptyline for 7 days no headaches for 10 days now but the rhuemy told me start taking it again not sure if the brain fog from the headaches is worse then the brain fog from the amitriptyline
rhuemy ordered new lab work so far that is all he has done for me my regular doc is the one that is trying to help me they told me in may of 2012 that I tested pos for lupus so far sore joints and headaches are my main troubles I may have to find a new rhuemy going to have to wait and see what happens next
and thank you jmail about taking notes

08-05-2012, 05:28 PM
Yer like me, they didn't find anything in the cranial cavity?... I know, 'nother bad joke...