PDA

View Full Version : Pain in right arm



artistladie
06-28-2012, 11:40 PM
After 2 years of tests doc finially said it's Systemic Lupus. After reading about all the systems everything seems to add up. I didn't realize there were so many others that have this disabling disease. I was to the point that I could hardly walk before the dr put me on steroids. They help alot but still having lots of pain in my right arm to the point where it keeps me awake at night. Sometimes the pain radiates all the way to my fingers. Heating pad sometimes helps, but not always. Dr. won't give me pain meds because he doesn't want me to get hooked. Does anyonehave any suggestions for the pain?

Derrie
06-29-2012, 05:31 AM
When you say he won't give you pain meds, do you mean any pain med? Have you tried tramadol yet? Tramadol is a synthetic analgesic that is not crazy powerful and addictive like the big narcotics like morphine, percocet, vicodin, etc. Also, if you take it as directed and as needed, you're unlikely to become addicted. For example, I take 50mg of tramadol as needed for pain in my legs. I don't end up taking it every day, but when I do need it, it really takes the edge off the pain.

If it hasn't come up with your doctor before, I'd ask about tramadol.

ritzbit2
06-29-2012, 07:34 AM
When you say he won't give you pain meds, do you mean any pain med? Have you tried tramadol yet? Tramadol is a synthetic analgesic that is not crazy powerful and addictive like the big narcotics like morphine, percocet, vicodin, etc. Also, if you take it as directed and as needed, you're unlikely to become addicted. For example, I take 50mg of tramadol as needed for pain in my legs. I don't end up taking it every day, but when I do need it, it really takes the edge off the pain.

If it hasn't come up with your doctor before, I'd ask about tramadol.


Tell my doctor that :( I was given it during a really bad flare up and now she won't refill the prescription even though 1 bottle lasted me months. She said "you're young and its addictive" and wont give it to me even though its the only thing that has ever touched my pain when I needed it. Now I'm stuck with OTC pills.

Welcome to WHL by the way. Sorry I don't have better advice :/ try talking to your doctor about it again.

Derrie
06-29-2012, 07:55 AM
Whoa, Ritz, your doc wouldn't give you any more tramadol? I mean, like any drug, it can be abused, but it's considered to be one of the least addictive analgesics and a first-line, low-risk pain medication. It's not like the opiates that are really prone to addiction and abuse. It's not even a schedule II drug! What does she think you're going to get addicted to? Not being in pain?

My internist is always happy to refill my tramadol prescription, no questions asked. He knows I have pretty constant leg pain and that I take the tramadol once or twice a day only when the pain breaks through over the naproxen I take daily.

Which of your doctors is refusing to prescribe the tramadol? Maybe if you talked to one of your other doctors about the problem, the other doctor could talk to the doc who is refusing to prescribe about giving you a small prescription for breakthrough pain days. I would try again on the tramadol. It is really a good option for moderate pain-- I love it because I can take it at work and not get dopey like the narcotics will do to you.

rob
06-29-2012, 08:09 AM
Hi Artistladie. Welcome to WHL,

There are many different meds that can treat specific types of pain that are effective, and have little or no potential for being addictive. The pain in your arm sounds very similar to the pain I have that is caused by Peripheral Neuropathy, which is a typical problem for people with Systemic Lupus. For this I take a drug called Neurontin, and it works quite well. It has no significant potential for being addictive. There are also OTC meds that also have prescription equivalents like the NSAID Naproxen (AKA Aleve) that work well for the short term reduction of inflammation. Naproxen/Aleve has no addictive potential at all.

Perhaps you could sit down with your Dr./Specialist and see if your specific types of pain and the specific probable cause could be counteracted by one of these or some other specific meds. Derrie mentioned Tramadol, which I have never taken, however I have read quite a bit about it in anticipation of possibly having to take it in the future. Although Tramadol does have some potential for addiction, because of it's unique pharmacology it is considered to have far less of this potential when compared to opiates such as Morphine, and it comes in a time-release formulation that works well for people with chronic pain.

Addiction to prescription pain meds is definitely something to be very concerned about, but if you are in constant pain that causes you to lose sleep, I'd say that is a far more serious threat to your health than the theoretical possibility that you might someday become addicted to pain meds. Lupus feeds on stress and lack of rest/sleep. The stress and lack of sleep from chronic pain can actually cause the flare you are in to become even worse, and last even longer than it already has. It's self-perpetuating.

You need pain relief. Talk to your Dr. If your Dr. won't help, then get a second opinion.

Rob

rob
06-29-2012, 08:47 AM
Whoa, Ritz, your doc wouldn't give you any more tramadol? I mean, like any drug, it can be abused, but it's considered to be one of the least addictive analgesics and a first-line, low-risk pain medication. It's not like the opiates that are really prone to addiction and abuse. It's not even a schedule II drug! (bolding mine)

You are 100% correct! (when are you not?)

Tramadol (Ultram) has not been scheduled by the US DEA, and does not fall under the Controlled Substance Act. The potential for addiction/abuse is very low for this med.

artistladie
06-29-2012, 04:01 PM
Thank you so much for the info. So far he has only told me to take tylenol for pain and the antinflamatory methotrexate 2.5 mg 3 tabs once a week. I'm going to try the Alieve if that doesn't help I will call him!!

Derrie
06-29-2012, 06:58 PM
Aleve = naproxen, and I take that almost every day and find it very helpful for my leg pain. Let us know how it goes for you!

LenaT14
06-29-2012, 09:28 PM
Hey there, so sorry you are dealing with this issue! I have all kinds of painkiller meds in my medicine cabinet but I hate the way they make me feel and am scared to mix meds so sometimes I would rather suffer than take a chance on mixing meds....as you can probably tell that before I got sick I never took anything stronger than OTC migraine meds! NOW is a different story, although im still a chicken! You should ask about Low Dose Naltrexone therapy, it did wonders for my pain, I also take Lyrica similar to the other person that takes neurontin, great for nerve pain, and my final trick is a Brutrans patch @ 10mcg/hr. I cant tolerate steroids, immunosuppresants, or even a full standard dose of Plaq and I cant function on all the narcotics so my rheumy has to get very creative with my disease/pain therapies......good luck!

kim,l
07-10-2012, 05:54 PM
hi welcome to whl family i also take tramadol i find it most affective like any pain medication it is important you only take when needed i think if some of these doctors actually had our pain they would understand why we need relief.

artistladie
07-11-2012, 09:52 AM
I have been using the releve when needed. Pain hasn't been as bad...not sure if it's the releve or the steroids. At least I've been able to catch up on my sleep.

artistladie
07-11-2012, 09:56 AM
I have been told that if you follow a diet that diebetics follow if will help keep the lupus under control. Such as no white flour, rice, no pasta, no sugar etc. Doctor has not mentioned this at all. Is this correct?

rob
07-11-2012, 11:09 AM
Hi Artistladie,

The short answer is no, there are no "Lupus Diets". For a more detailed explanation, click this link-

http://www.lupus.org/webmodules/webarticlesnet/templates/new_magazineempty.aspx?articleid=2757&zoneid=225

steve.b
07-11-2012, 09:35 PM
I have been told that if you follow a diet that diebetics follow if will help keep the lupus under control. Such as no white flour, rice, no pasta, no sugar etc. Doctor has not mentioned this at all. Is this correct?

as rob has mentioned..... there is no lupus diet.
the diet you mention, may help, as it is a general good food diet.
our body needs to be as healthy as practical, to help us fight off our different ailments.

unfortunatelly many "snake oil salesmen", use this fact to push there particular fad diet.

healthy eating will usually improve your lupus ailments, only because you are now healthier.

by the way.... i do eat a similar type of diet, to what you have mentioned, but i will not advertise its benifits...... because they are my indervidual benifits. you will have different benifits on the same diet.

magistramarla
07-11-2012, 09:43 PM
Tramadol is my enemy. I tried one, and had an extremely severe reaction. I was violently ill all day and couldn't keep anything down and was seeing double for most of the day. My hubby looked up the info on it and found that it is related to opioids, and I'm allergic to all opioids.
This means that most of the "good" pain relievers are out for me. Aleve is about as strong as I can go.
I can't take prednisone either, because I have AVN.
I can't win for losing!
Hugs,
Marla