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LilJenni
06-19-2012, 11:35 PM
I was getting ready to spill my "Lupus story", what I have been diagnosed w/ meds & so forth, but was over come w/ sadness. I sit here now crying & overwhelmed from all of it. One would think seeing how I have lived w/ Lupus for half of my time on this earth (I was diagnosed at 16 I am 32 now) I would have excepted it by now, yet I can't help but feel broken. This last year has been the hardest yet. Despite all the meds I am on & a good Rheumatologist along w/ all my other specialist, I am still in a BAD flare, that seems like it will never end. On the upside I stumbled across this forum & I look forward to the support this group has to offer :)
It's the little things that keep me going ;)

steve.b
06-20-2012, 02:41 AM
hi jenni,
and welcome.
joining this group, has made you come to terms with what lupus is doing to you.
that is why you have become overwhelmed.

we all face this hurdle, some many times.
when i had to admit i could no longer work, i had my hardest time.
and of course stress is not kind to us, just to make matters worse.

but on a brighter side.......
you now have friends and a cyber family to help you.
you are never alone, when we are here.

theLword
06-20-2012, 08:07 AM
Welcome Jenni,

I hope that you find support and unconditional empathy from this forum, I know I have.
I wish you only the best.

tgal
06-20-2012, 11:35 AM
Hi and welcome to WHL! We are so glad that you found us. This is a nasty disease and sometimes, no matter how long you have fought, the stress gets to you. We understand that. We are here for you. Welcome and please make yourself at home

SleepyInSeattle
06-20-2012, 01:47 PM
WELCOME!!! I hope we can help you feel better, at least emotionally. I'm sorry you're suffering right now!!!! There is lots of support and love and understanding here....

rob
06-20-2012, 07:11 PM
I was getting ready to spill my "Lupus story", what I have been diagnosed w/ meds & so forth, but was over come w/ sadness. I sit here now crying & overwhelmed from all of it. One would think seeing how I have lived w/ Lupus for half of my time on this earth (I was diagnosed at 16 I am 32 now) I would have excepted it by now, yet I can't help but feel broken. This last year has been the hardest yet. Despite all the meds I am on & a good Rheumatologist along w/ all my other specialist, I am still in a BAD flare, that seems like it will never end. On the upside I stumbled across this forum & I look forward to the support this group has to offer :)
It's the little things that keep me going ;)

Hi LilJenni,

I'm glad that you happened upon this place, and that you chose to join and say hello.

You know, there are more than a few dams in the world where the water was allowed to raise a little too high, and then had trouble with opening the floodgates to relieve the pressure because the water had become so deep from being held back for so long. The solution, was to let out a little water at a time until the pressure went away.

You have been living with SLE for twice as many years as I have. The fact that you are overcome with sadness upon trying to write your story, is very, very understandable. I'd even go so far as to say that this reaction is normal for us.

The important thing, is that you are reaching out, and talking. Not opening the floodgates immediately is not a bad thing.

Welcome to our group,

Rob

lynday
06-20-2012, 07:20 PM
welcome jenni,
i do not know alot about any of the conditions that we are all suffering, but I wanted to welcome you and tell you there are some great people on this sight. I hope you find the forum as useful as I have!!!

OmaLaura
06-20-2012, 08:34 PM
LilJenni,

Welcome,

Personally, I don't believe the number of years spent fighting this disease makes a difference in regards to emotions. Whether it's day one or day 1001, you were feeling the need for suppot and the important thing is that you reached out for support.

Tomorrow will better, it has to be. And, if not tomorrow, the next day, or the next.... ♡

I, too, am new (today) and understand your flood of emotions. Even now, 17 years later, when I have to relate my long list of ailments I find myself in tears, wishing I could rip up the doctor's forms; change the subject; or I hit the delete key. For me, it's a sign of frustration that after all this time, healthwise, I am still where I was the day I was diagnosed. My husband reminds me that though I may still be sick, I have made many new friends through forums like this, I have armed myself with knowledge and I am obviously stronger than I give myself credit, because I am still fighting.

Hang in there,
Laura

magistramarla
06-20-2012, 10:18 PM
Hi Jenni,
You have found a cyber family full of people who understand exactly why you feel the way you do. Lean on us whenever you need some support.
There is usually someone hanging around here who is willing to "listen" and help out if we can.
Welcome to WHL!
Hugs,
Marla