View Full Version : newbie
06-12-2012, 05:34 PM
Hello. I'm new to the forum and new to Lupus. I was just recently diagnosed with Lupus. At first they thought it was Rheumatoid Arthritis but after all my blood work they decided it is Lupus. I don't know mush about it. I'm learning. I don't like the specialist that I have been seeing. I'm going to go to a new one as soon as they can get me in. Anyways. My doctor didn't tell me anything except "you have lupus. take this medicine and I will see you in a month." I'm not sure what to think. So I'm taking the medicine. I still hurt. I'm still having days I have to call off work. I just don't know what to do. The way things are going I'm going to end up getting fired. I love my job and I don't want that to happen. Enough about my Lupus let's talk about me. I'm a 30 year old mom to two boys. My kids are my world. I enjoy photography, crocheting, swimming, and spending time with all my pets. I'm a bit of an animal lover. We have 2 cats, 5 dogs, 5 ferrets, and 2 rats. I work as a CNA at a nursing home. I love my job. I've been doing it for almost 5 years. I'm looking forward to getting to know everyone and hopefully learning from all of you.
06-12-2012, 09:05 PM
Welcome to WHL. This is a great place to arm yourself with lots more knowledge about your disease. Read the stickys at the beginning of each forum. They are full of information. Read through some old threads that interest you. You will find that we discuss anything and everything about autoimmune diseases. Feel free to add comments or questions to any thread. We have members in many time zones, so there is usually someone hanging around who will answer.
What is the medicine that your doc has you taking? Many of us take Plaquenil - that is usually the first-line drug for AI diseases. Prednisone is also common, but it has quite a few undesirable side-effects.
I'm an animal lover, too. We have two cats and I have a German Shepherd service dog. Our five kids are all adults now, but our house was full of critters when they were growing up. Our youngest daughter is a professional animal trainer/veterinary technician. When she lived with us, we never knew what kind of animal might come home with her!
06-14-2012, 10:56 AM
Yes the doctor put me on Plaquenil. Right now my family doctor has me on azithrmiacin and prednisone for an upper respiratory infection too. I'm also take some all natural things to help with joints and other health issues.
06-14-2012, 11:40 AM
You have come to the right place to learn more about lupus, its symptoms, its treatments, etc. Plaquenil is a pretty innocuous drug, and it takes a while to become effective, so that is likely why your doctor wants you to come in again in a bit-- to see how you're doing. It's too bad the doctor didn't provide you with more information, though. Lupus can be an overwhelming diagnosis, and doctors should provide patients with counseling regarding what it means to have lupus, in my opinion. Is the doctor who diagnosed you a rheumatologist? I'd suggest that when you go in to see him next, you bring along a written list of any questions you may have, so you can be prepared to ask him about things you may want to know. (I like to write things down because I often get flustered at doctor's visits, and having a list helps me remember to ask questions!)
I am glad you have a job that you love, and as the medications help your symptoms balance out and wane, you'll likely find it easier to continue to do your job. Have you talked to your supervisor about your ongoing issues? You do have protections under the law (i.e., FMLA) that can help you preserve your job even if you have to take a chunk of time off to recover from an illness.
I'm your age, too, and I know it's frustrating to get a chronic illness diagnosis when we're so young. And I can't imagine trying to cope with children, too-- that's a lot of work, but we're here if you need to vent, ask advice, or whatever.
Nice to meet you!