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Pat Schulze
05-22-2012, 01:11 PM
Hello, I'm so happy to find this group!
I've had lupus for 2 years. The first year was horrible. Horrible, horrible.
I had to leave my job as faculty at Michigan State University. I never thought I would leave that job, it was too good. But within a month or two I could barely walk, my life stopped abruptly and finally I had to move in with family.
After many, many medications and procedures, I am recovering slowly.
Now I live in Boulder, Co, near my daughter, who is in Colorado University. I am new to this town and trying to get some of my life back.
I'd love to get a friend online and hopefully meet someone in this area with similar struggles.
Pat

debbie-b
05-22-2012, 02:07 PM
Hi Pat.

Welcome to WHL. I had to answer your post, because Schulze was my maiden name ( same spelling).
I am glad that the meds are starting to help. All of us here know, it can take a long time until that happends.
Looking foreward to know you better.

Debbie

tgal
05-22-2012, 03:27 PM
Just wanted to stop in and welcome you to WHL! We are really glad that you found us and even more glad that you are starting to feel better! Please make yourself at home and jump in the conversation whenever you feel like it!

Marine wife
05-22-2012, 03:59 PM
Wanted to say hello and welcome. Glad the second year has been better than the first. Hope it continues to improve!

steve.b
05-23-2012, 04:36 AM
i also want to welcome you.

i used to live in boulder....
boulder, western australia
1/2 a world away.... but with the same problems.

i also have had lupus help me to stop working.

you are never alone with a support group like this behind you.
welcome, please join in where you think appropriate.

theLword
05-23-2012, 06:41 AM
Welcome Pat!

I was recently diagnosed and this forum has provided me with so much support. I hope you feel the same :)

Pat Schulze
05-23-2012, 02:39 PM
Hi M
I love your log in "the L word". Very funny. I also have Raynaud's until my hands were turning black.
What is Secondary Raynauds Phenonmenon?
This forum has already made me feel connected, whether you answer or not, it's still there.
Pat

Pat Schulze
05-23-2012, 02:44 PM
Hi former Schulze

Hope your new name is easier to spell. I was "Allen" for awhile, then went back to Schulze, forgetting how much trouble it was. Hop you're doing well.
I'm good today, happy to have found this forum,
Pat Schulze

Pat Schulze
05-23-2012, 03:04 PM
Hi Steve,
Thanks for answering me in Boulder. I just read your personal history.
I also have lupus, fibromyalgia, raynaud's, fibro muscular dysplasia, whatever the diagnosis it is similar symptoms and struggles.
I liked the way you say that lupus helped you stop working--I feel that too. Lupus made me get out of the highly stressful position I was in at the university and lupus made me get managers for my 3 rental homes in Michigan, two things I thought I would never do! It is helping me get back in touch with life.
Best wishes, take care,
Pat

theLword
05-24-2012, 06:05 AM
Hi Pat,

Thanks! My mom actually came up with my name. When I first found out that I had an autoimmune disease, every time she would refer to Lupus she would call it the L word because she really didn't want Lupus to be what it was. Oh well! ha

So, there are two different types of Raynaud's. There is Primary Raynaud's Syndrome and Secondary Raynaud's Phenomenon. The primary form is mild and occurs without any predisposing factors. Many people have primary and just complain of cold hands, etc. However, secondary is generally associated with the presence of autoimmune issues. Secondary tends to be a lot more severe and often requires treatment. The severity of my Raynaud's is actually how I found out that I have an autoimmune disease.

Not many people know that there are two types. My primary care doctor from when I was younger apparently didn't know either or I would have been tested a long time ago! Do you take anything for your Raynuad's? I recently started taking Amlodipine and I have seen a lot of great changes. Although I'm still funny colors there is a lot less pain and I'm not as worried about lesions, etc.

debbie-b
05-24-2012, 02:49 PM
Hi former Schulze

Hope your new name is easier to spell. I was "Allen" for awhile, then went back to Schulze, forgetting how much trouble it was. Hop you're doing well.
I'm good today, happy to have found this forum,
Pat Schulze

I went from Schulze to an Italian last name, have to spell it as often as I did my maiden name.

Debbie

magistramarla
05-24-2012, 09:53 PM
Hi Pat,
Welcome to WHL. My daughter lives in Littleton, Colorado. I visited there, and I really liked the state.
Like you, I had to give up a job that I loved because of my illness. I was a high school teacher, and I taught until the stress just got to be too much for me.
I still miss "my kids".
Hugs,
Marla

Pat Schulze
05-25-2012, 09:22 PM
Hi M
The Raynaud's is how I found out about the lupus, too. My hands would turn black. I was teaching at the time and would sit on my hands so the students wouldn't see how weird it was. It was like frostbite, painful trying to get the circulation back. I'm taking Procardia. I works like viagra dilating the vessels. I just looked up amlodipine and that's norvasc, I took that at first, but I like procaradia a lot better. I also had fibromuscular dysplasia and had a procedure at U of M where they straightened the veins in my arms with a little frozen balloon. That was found because my hands didn't turn white, then black, just right to black.
What a lot we have to go through with this.
Thanks for listening,
Pat

Pat Schulze
05-25-2012, 09:27 PM
Hi Marla,
Litttleton is near here, I just found it on a map. I wonder if your daughter skis?
What did you teach in HS? What grade? When did you have to stop working?
I taught university undergrads Child Development and also ran a kindergarten class where the students worked.
I miss my classroom, too.
Hugs back,
Pat

Saysusie
05-27-2012, 03:29 AM
Hi Pat;
I just wanted to make sure that I also welcomed you to our group. We are actually a family here and always welcome new members to our family. I am glad that you are starting to feel better and that you are close to your daughter.
We are all here to help you as much as we can..you can learn a lot here and you will find that the people are more than willing to share experiences, advice, comfort, and knowledge.

Again.....Welcome
Peace and Blessings
Namaste
Saysusie

magistramarla
05-27-2012, 09:11 PM
Hi Marla,
Litttleton is near here, I just found it on a map. I wonder if your daughter skis?
What did you teach in HS? What grade? When did you have to stop working?
I taught university undergrads Child Development and also ran a kindergarten class where the students worked.
I miss my classroom, too.
Hugs back,
Pat
Pat,
Kayla moved there from Texas almost three years ago. Her asthma and allergy symptoms, as well as those of her son, have almost disappeared there. For that reason, she says that she'll always stay in Colorado. She's a floor manager at a large Best Buy there near the mall. Her fiancee manages an Office Max. They don't ski, but they love to go up to a mountain resort town, where he often gets sent to help out another Office Max. They get to stay at a nice resort, and his business pays for it!

I taught high school Latin in a huge high school (3000 students) in San Antonio, Texas. I was able to design the Latin program for a brand new HS in 2002 and I taught there until spring, 2009. My health was getting worse, and my husband got the opportunity to go to The Naval Postgraduate School for a PHD. I helped the school to find a new Latin teacher and we moved to California. We love it here, but we'll be returning to SA when he graduates next March.

We have five adult children scattered all over (one is moving to Germany in two weeks!). We have three grandsons and a grand-daughter due in October. I'm no longer teaching, but I keep busy. I'm on the executive board of the Military Spouses' Club, so I've sort of adopted a group of young military wives who are the ages of my own daughters. Once a teacher, always a teacher!
Hugs,
Marla

theLword
05-29-2012, 06:42 AM
Hi M
The Raynaud's is how I found out about the lupus, too. My hands would turn black. I was teaching at the time and would sit on my hands so the students wouldn't see how weird it was. It was like frostbite, painful trying to get the circulation back. I'm taking Procardia. I works like viagra dilating the vessels. I just looked up amlodipine and that's norvasc, I took that at first, but I like procaradia a lot better. I also had fibromuscular dysplasia and had a procedure at U of M where they straightened the veins in my arms with a little frozen balloon. That was found because my hands didn't turn white, then black, just right to black.
What a lot we have to go through with this.
Thanks for listening,
Pat


I completely understand. My feet are a lot worse than my hands, but my doctor told me that it was the worse case of Raynaud's she had ever seen. It sounds like yours is very similar. Although I've lived with Raynaud's for so long and it's not the most pleasant to look at.. I'm grateful that it allowed me to discover my Lupus diagnosis and that I can now begin preventative treatments.

At least it's the summer now - as long as you also live in the US :) ! All we have to worry about now are sandals and air conditioning :)