View Full Version : I see the Hemotologist tomorrow

05-21-2012, 05:19 PM
This is when I find out what the protein in my blood means. I had received a packet of info that I didn't even open until yesterday. I have SO MUCH paperwork everywhere that I don't bother with trying to get ahead. I just try to stay afloat!

Well, when I opened the big envelope, the entire packet was about cancer. I was a bit freaked out but until I talk to the doctor, I'm not borrowing trouble. Everything I've looked up ends up coming down to cancer. Well, I'll let you guys know what's going on. It would certainly explain the unbelievable pain that I've dealt with for years. It would also explain the never-ending fatigue. Who knows, if it is cancer, I will know my oponent and fight with every weapon I have!

Then again, I just don't think that's what this is. I'll keep you posted!

Marine wife
05-21-2012, 05:59 PM
I hope you get some answers. Please let us know what you find out.

05-22-2012, 02:04 AM
wishing you the best of luck today at your appointment

05-22-2012, 07:04 PM
Thank you for your positive thoughts! They truly are appreciated. I did see the doctor today. Unlike so many specialists, he didn't rush or make me feel stupid for asking questions. What he went over was unbelievably complicated but I think what it comes down to is that my blood doesn't have the right amount of immunity cells and this condition is the primary reason for my constant infections. I guess it's like my blood has Lupus. Anyway, he's rerunning the test to ensure that there are no errors to begin with and then once things are settled, I'll get IV medicine about every 4 months to bolster my blood. Honestly, the best part was the doctor. It's so rare to work with someone who is genuinely interested in my well-being. I'm also VERY happy to hear I don't have cancer!

05-23-2012, 03:01 AM
No cancer, that is the best news.
It is good to know, that there are good doctors out there. You seem to be in good hands and he will figure it all out and treat you accordingly.


05-23-2012, 05:06 AM
my lupus effects my blood also.
when i was diagnosed....
i had almost no white blood cells.

i am lucky that medication has mine stable.
but i will never go a day without my medication.

Marine wife
05-23-2012, 06:16 AM
So glad it's not cancer! Sounds like a wonderful doctor.

05-24-2012, 09:38 PM
Good to hear that you are finding some answers.
I looked up some info when I read your earlier post and then forgot to post this.
From what I read, protein in the blood can mean several things - one of them just that there is an immune system dysfunction.
It sounds like you're on the right track now.

05-25-2012, 07:16 PM
Thank you for your positive thoughts! We still need to figure out what started the seizures several months back, but hey, it's always something! Like I've said to many friends, all this illness and disability paperwork is ten times more difficult to keep on top of than any job I've ever held. If -- WHEN I get well, I will be a great employee! Heaven knows I've learned a whole lot about researching, organizing, prioritizing and keeping twenty different balls in the air when what I desperately need is a nap!