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serand4
05-13-2012, 12:39 PM
Hi everyone. First, I really did mean to write protein in blood and not in urine. Apparently one of my new Rheum Dr.s' tests discovered this and wanted me to see a hemotologist. My internist wrote down "light chain disease" under diagnosis when he wrote the referral. Of course, it takes two months to see any specialist so I have actually been back to my Rheum Dr. and asked him what this meant. He told me to discuss this with the Hemotologist in a tone that made it clear that he wasn't going to give me any information. He did mention that with the onset of seizures (they started about five or six months ago), he wants me to get a spinal tap and fortunately I had an appointment with her in the next couple of weeks. As I have never had any ANA count, he's concerned that this is the lupus that involves the central nervous system.

There has been so much that has taken place with my health in past year, there's not enough space to write it all down. Right now, my life is mostly pain, fatigue, and frustration. But I do know that I have some good days so I hold on to that. I really have learned to run all the necessary errands the moment I feel decent. I just continue to pray ardently that they get at least a ballpark idea of what's going on so that we can start some type of treatment other than just 10mg of prednisone (and 20 other meds that go with fibromyalgia and endless gastro illnesses).

If anyone knows about protein in blood or about the light chain disease, I would be very grateful for the information.

Thank you - God bless, and for all you moms, Happy Mother's Day!!

serand4
05-15-2012, 05:24 PM
Wow, no one has any answers. This should be an interesting appt. with the blood Dr. later this month. I'll share the info when I get it.

Take care to all.

Marine wife
05-15-2012, 06:02 PM
Let us know what you find out, please. You have peaked my interest as to what it is.

serand4
05-16-2012, 04:22 PM
In the "can you believe he said this!" catagory, my new dentist was grilling me like I was a convict (I take pain meds so I am often treated like a junkie) when I mentioned the protein in the blood. He actually looked at me in an off- the - cuff manner and said, "well, if there's something involving the blood, it usually means...and then he caught himself. I looked him right in the eye and finished his sentence, "cancer". Fortunately, he stopped with the interagation after that. These doctors sometimes say the darnedest things!

magistramarla
05-17-2012, 02:34 PM
Hi Serand,
I'm glad to see you back, but I'm sorry that you have such a puzzle. Docs make me so mad when they won't explain things thoroughly to us.
I'll ask my sciency hubby what he thinks this evening.
Keep us informed as you find out more.
Hugs,
Marla