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kim,l
05-11-2012, 11:37 PM
hi my daughter sarah has had eyesight changes and she has had symptoms of her head squeezing she said she feels like it is in a vice and her head is tightening. eye specialist wants her to have mri could anyone tell me is this head tightening a symptom of multiple sclerosis. and should i be worried thanks kim.

steve.b
05-12-2012, 01:28 AM
i cannot comment on ms.....

but i do feel the head squeezing.

i tell my doctors i know when my blood pressure is raised....
as i can feel it in my head.
the doctors tell me i am imagining it, as it is impossible to feel.
what do i know lol (i dont have a degree)

kim,l
05-12-2012, 05:22 AM
thanks steve she suffers from low blood pressure. eye specialist is worried it is ms or her lupus but her lupus is only mild compared to mine. so i do not think it is that she is also having trouble with her liver it is not functioning. stupid eye specialist frightened the daylights out of her and told people die from lupus and from ms and she should go to westmead if she feels worse. she could not stop crying he does not even know if she has either one but she thinks she might die now and i am worried about her i wish they could just watch what they say and wait for the proper diagnoses. instead of scaring her. thankyou for caring my friend.

Saysusie
05-12-2012, 09:31 AM
Oh my gosh, how unprofessional and totally uncaring! I just don't understand some medical professionals who never take the time to think how their words and actions affect their patients.

I cannot tell you if this is a symptom of MS, but I suffer from severe migraines and, often, they feel as if my head is in a vice that is being tightened. The pain gets worse if I move, hear any sounds or am subjected to any form of light.

At any rate, here are some websites that list the symptoms of MS:
www.webmd.com/multiple-sclerosis/.../recognizing-multiple-sclerosis
www.nationalmssociety.org/...multiple-sclerosis/...ms/symptoms/inde.
www.medicinenet.com ... neurology az list (http://www.google.com/url?url=http://www.medicinenet.com/script/main/alphaidx.asp%3Fp%3Da_64&rct=j&sa=X&ei=xY-uT7SWF87RiALI6JmFBA&ved=0CHwQ6QUoADAE&q=symptoms+of+multiple+sclerosis&usg=AFQjCNH9vtki8bJiKE3hwrX3lJ7o0UxXCw) multiple sclerosis index (http://www.google.com/url?url=http://www.medicinenet.com/script/main/forum.asp%3Farticlekey%3D422&rct=j&sa=X&ei=xY-uT7SWF87RiALI6JmFBA&ved=0CH0Q6QUoATAE&q=symptoms+of+multiple+sclerosis&usg=AFQjCNFI_uEFsxJKrxEdTYNY_8y5vO86Xw)

Please let me know if you need any more information. I do hope that your daughter's fear subsides and that you both get some needed answers. I wish you the best.

Peace and Blessings
Namaste
Saysusie

magistramarla
05-12-2012, 08:44 PM
Kim,
HUGS to both of you! I just had a killer migraine on Wednesday, and I feel for SaySusie having them often.
I agree that you should investigate migraines as a possibility. Also, I know Rob suffers with Trigeminal Neuralgia.
I wonder if that could be a possibility for Sarah?
You know the drill - research and then ask lots of questions.
Hugs,
Marla

kim,l
05-17-2012, 11:36 PM
well sarah saw neurologist he has ordered mri to check what is going on. she seen eye specialist again yesterday. another fields tests eye sight deteriated even further . he said to her which i find quite stupid if you get worse and cannot see at all come back and see me. i am really worried she is sleeping all the time only awake a few hours a day i just wish they could hurry up mri but it will not be done till 1st of june. i just want to know if she has ms or complications from lupus. she has dry eyes as well i was wondering if she could have fibromalgia and do you get severe headaches like your head is in a vice. she is always scratching she said her skin feels itchy all the time. she had a a few seizures a year ago and they said it was all in her head. but neuro is now asking questions about that maybe if they had payed more attention then thing s would not be as bad now. it so frustrating as she was finally starting to get back on track she had recovered from her ptsd and had stopped councelling. as most of you know she was molested by my sister and her partner when she was a child and this caused her mental illness. and her endometroisis was under control. she has never had a relationship or been with anyone due to trust issues and was considering trying to get job and meet someone and this happens she is 24 years old and has been through so much . just once i would like her to feel happy again. thanks for listening kim

running girl
05-18-2012, 04:29 AM
Oh Kim, I'm sad to hear your daughter is having such a difficult time. June 1st will be here before you know it and in the meantime you will keep your eyes on her and take her to the hospital if her condition gets out of control. Take a deep breath. I know how hard it is to have a child with troubles. You just never stop worrying about them.

I recently saw a motivational speaker who said "don't think about what thinking about can't change". It took me a minute to understand what he was saying but what he meant was that worrying can't change the outcome. Easier said than done, I know.

Well we're all here for you. Try to stay strong.
Hugs
Brenda