04-26-2012, 05:39 AM
Dylan had an infusion/clinic appt. on Monday. His labs were very good!!!! Creatinine was 1.6 which may seem high, but for him that's low. WC was 7.9, one of the best yet. His Nephrologist asked him on a scale of 1-10, 10 being the best you've ever felt, how do you feel? And he said 9!!!!! Almost made me cry. She said that she is VERY happy with his progress. That was extremely sick when she first met him. Now if I can just quit being an overprotective mom, and let him "just be a 14 yr. old kid". Thought you'd all like to hear some good news! Oh, she also lowered his oral pred. to 15mg everyother day. She said that once he gets to 10mg, they can start tapering off his monthly solumedral infusions!!! There were some other changes made as well. All for the good!!! Very happy mommy!!!!