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leaann
04-17-2012, 01:06 PM
I don't understand the government. I have a lawyer, his is my 4th denial. The first 3 were without the lawyer.According to the disability office my doctor says I am disabled but the disability doctor says different. At the rate they are going I will die waiting on disability. I need the funds to pay for my medical since I have to pay for lupus my self and no one wants to pay for this. Last week alone we spent over 200 just on meds and doctors. We have lost our house because of this and even moved closer to the doctor to help. My son has stopped his life just to stay home to make sure nothing happens to me. I have so many problems.

This is just plain crazy.

Any one with any suggestions

Marine wife
04-17-2012, 02:06 PM
I'm so sorry. I can only imagine how frustrating this must be for you. I guess we have to be on death's door to get help but people in better health are on disability! Makes no sense to me.

leaann
04-17-2012, 02:11 PM
I agree there are some people that are on disability that I feel don't even need it and then there's those that need it and can't get it. My friend her husband has cancer and he applied for disability and he was told that he would be dead before the first check arrived so they denied him. I thought to my self, that they could have said that differently and if I were him I would want to go down and punch the person in the face that said that. but that's just me

At least I have a lawyer fighting for me that does make it easier. I just can't afford to keep paying for all this.
Thanks for you post.

Marine wife
04-17-2012, 02:15 PM
That would make me so angry I would probably punch someone for saying that! This is an example of people that don't need it have it...my own brother. He is "legally blind" and can't work. But he DRIVES!!! Figure that one out!

I' m glad you have a lawyer. Let them fight for you. One less thing that's stressing you out trying to deal with it alone.

leaann
04-17-2012, 02:31 PM
That is crazy about your brother, however I had an uncle that was blind and he drove as well, but you didn't want to ride with him cause he was old and crazy and lots of times would wind up in ditches but he never drew disability.

I know that the government has to crack down but it's just crazy. Maybe the lawyer will figure something out. We will have to just take it one day at a time.

Mica
04-17-2012, 03:01 PM
I seriously just posted something similar to this I am going through the same thing. I seriously think if I can't find some charity to help I might die waiting for a court hearing for disability. Our government really should change this when people like us really need help.

leaann
04-17-2012, 03:16 PM
I fully agree Mica, this is crazy, I started MTX last week and with my new steroids and other meds it is hard. Plus I am suppose to have a biopsy on the vein in my head and I am having to put it off because of no insurance. I have had to hold off on a lot of stuff, My Copd keeps acting up and I hold off on treatment for that and the doctor says that's not good. But what else can you do, you just live day by day hoping to get to the next day.

Mica
04-17-2012, 03:31 PM
I know, it's depressing and stressful.

running girl
04-17-2012, 06:24 PM
I'm sorry Leaann...so stressful!

hugs

debbie-b
04-18-2012, 04:17 AM
Hi Leaann,

I am sorry, that you were denied again.
It is just crazy. I work in a grocery store and see every day, how many people get disability who are not really disabled.
One woman forgot her walking cane in the store, she came RUNNING back into the store, to get her stick and yes, she was parked in the " disabled" parking spot. After she retrieved her cane, she limped out of the store.
One woman, ( a regular customer) always uses the store wheelchair, one day it was raining and she RAN across the parking lot, to get to the only wheelchair and RAN back to her car after she finished shopping. She has a disabled sticker in her car. I couldn't run that fast, if the devil was after me.It is not fair, that's for sure.
I am already scared, when the time comes, when I HAVE to apply for disability.
Good luck to you, my friend.

Debbie

fhallock
01-01-2013, 08:16 PM
There is little I can say beyond my empathy for your situation except keep on fighting. Get another doctor to diagnose you and declare that you are disabled. Write your newspaper, call your congressman and shout from the rooftops until you get some real action. A friend twenty years old who could not get treatment through her insurance and could not afford the medications and frequent labs and doctor visits asked me what to do. While it is crazy I told her to move to Canada. She now lives and works in Vancouver where her disease is treated at no expense to her. This is not an answer for you except the get crazy part. Don't let the slim and stupid people, doctors and courts wind up killing you.