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ritzbit2
04-11-2012, 10:42 AM
I really hate people who go out and say things about natural "cures" all over lupus boards. This guys name is even simliar to what he is(Charlton)! He posted this message all over a lupus group on facebook today spamming everywhere and then wants to be a "professional doctor". "i think I have the answer. There is a natural way to reverse Lupus! I can have you talk to a someone who had it really bad but now no pain and no bad days!" I went off on him and the other woman posting it. He is listed online as a doctor of sorts, but any professional would not go around spamming "cures" all over lupus boards. I don't understand people like this.

tgal
04-11-2012, 10:58 AM
We have them here too, Ritz. The difference is that we have a zero policy tolerance for such talk and they get banned on their first, and sometimes before. They are all over out there and we believe they cause harm (See "How to get banned from WH (http://forum.wehavelupus.com/showthread.php?9843-How-To-Get-Banned-From-WHL)L"). WHL is always to be a safe haven from those people. It is now and it will always be that way.

ritzbit2
04-11-2012, 11:07 AM
I wish it was so easy on facebook. We're trying to get him deleted from our group and I'm trying to get him banned from facebook. What self respecting "doctor" spams a lupus support group. Just blows my mind.

DrinkofWtr
04-11-2012, 12:03 PM
Unfortunately, charlatans have been around forever preying on people. You are doing the right thing by trying to get them banned.

ritzbit2
04-11-2012, 12:08 PM
I reported him as a spammer to fb and we reported him to the admins of the group so hopefully him and his groupy will be deleted at least while fb hopefully takes care of the rest. He didn't even spell his made up company name right on his facebook page. He spelled natural wrong! DUH!

rob
04-11-2012, 12:11 PM
I understand, and share your anger Ritz,

There are people out there who are willing to do some pretty horrible things to make a dollar. Taking advantage of frightened and sometimes desperate people who suffer from a chronic illness just to make a buck, is disgusting behavior. I guarantee you that this person really doesn't give a damn about Lupus, or the people who live with it every day. The "concern" this person is expressing is nothing more than a sales pitch.

Wanna piss off a snake oil peddler? Ask them for the clinical trial data for their so-called "cure". Then ask them for their credentials that prove they have expertise in the relevant field of research they claim to be an "expert" in.

When confronted, they tend to either tuck tail and run, or lash out with profane personal attacks on the person asking the questions. And don't hold your breath waiting for them to answer your original questions, because you will not get any answers.

Since there is no cure for Lupus, anyone claiming to have one, is a liar, and a fraud. I can't speak for other websites, but I can promise you that you will never see these charlatans pushing their fraudulent products here on WHL.

Rob

ritzbit2
04-11-2012, 12:19 PM
Thats why I love WHL :) I have become the one reporting this stuff on facebook because they are all so obviously making everything up. Me and a handful of others attacked them until they stopped posting. I was just so mad because this 15 year old girl joined our group the other day and was on there while this guy was spamming everywhere. I emphasized about 5 million times to her to never listen to guys like him because they are liars and terrible disgusting people. She, like me in the past, has already learned about the dangers of stopping your meds and I would hate to see her or anyone else thinking this idiot can help them.

Hunniebun
04-11-2012, 01:15 PM
What facebook group is this? I have been trying to find one on FB and I haven't had much luck.

ritzbit2
04-11-2012, 01:20 PM
Its just called "Lupus". Its an open group. I belong to a few of them I think the one I like the most is 28 Below which is a secret group so I don't think you can even find it in a search someone from the group has to add you. Its for young adults with lupus. There's also one called "Butterflies-Lupus Survival Group".

Hunniebun
04-11-2012, 01:29 PM
Thanks. That's what's been confusing me, I do searches and nothing shows up.

Edit: Got them to show up finally, found 2 of them thanks.

ruziska
04-11-2012, 01:40 PM
snake oil salesmen have been around forever and will never go away unfortunately. Always someone trying to make a fast buck without any regard for what is right. Thankfully we have WHL and our members are loving and supportive and knowledgeable. WHL helps us figure out what is right, wrong, good and bad.

ritzbit2
04-11-2012, 01:46 PM
I've been the facebook police today because I was recliner bound all day. I got a discriminatory group deleted who were posting nasty things about people with placards. They actually had a list of things to do like park in a handicap spot and steal a placard from someones car. Where do these people come from??? And people wonder why I "dislike" so many people..

ritzbit2
04-11-2012, 04:25 PM
How do you think I could find out if this man is actually ripping people off and if I think he is who should I report him too? I doubt facebook takes care or actual scammers. I have seriously been obsessing over figuring out who this guy is for hours and I have found him on websites that say they have been updated as early as last month and they list accepted health insurances and such and it listed medicare so I thought I would look him up on there to see if he's real and I couldn't find him so I did a search for naturopaths covered under medicare and came up with a page from medicare saying that naturopaths are never covered by them. What do you guys think of all this? Should I look into it more or drop it? He posted on his facebook wall that he can cure cancer and lupus and diabetes and all this other bull. What if people really follow this guy and listen to him and end up dead? I don't know what to do but as you can see its really bothering me lol

magistramarla
04-11-2012, 08:56 PM
Ritz,
This is why I've stopped going to FB for the last six weeks, and now I'm a calmer person. People are a bit wild and uncensored there with the awful things that they get by with posting. Friends and relatives were posting things that were upsetting to me, so I'm just staying away.
Hugs,
Marla

steve.b
04-11-2012, 09:56 PM
as a new moderator here.
thefirst thingi was taught was how to "ban spammers".

whl does not and will not let this type of person become part of us.
unfortunatelly other sites do not always have this vidulance, or ability.

another reason why i stay here.
we are family and look after each other.

tgal
04-11-2012, 10:56 PM
as a new moderator here.
thefirst thingi was taught was how to "ban spammers".

whl does not and will not let this type of person become part of us.
unfortunatelly other sites do not always have this vidulance, or ability.

another reason why i stay here.
we are family and look after each other.

HEHE You had no idea how many there were did you? I know it surprised me when I started. Can you imagine if they all made it in?

debbie-b
04-12-2012, 05:18 AM
This German lupus forum, I ones in a while visit, is really bad about, letting any idiot make claims about the so called cures.
It drives me crazy, reading it and even crazier how people respond to it.
That is another reason, why I love WHL, I feel protected.
Thank you guys.

Debbie

ritzbit2
04-12-2012, 06:19 AM
I agree. It just amazes me that there are people out there who put so much time and effort into FAKING being a doctor but can't go and put the same effort into doing something good and productive. I'm so glad I've never had to deal with it here. Yesterday my blood was just boiling from this guy. My mom was amazed at how long I was looking this guy up. I spent hours finding out about him as much as I could through the internet.

Saysusie
04-14-2012, 08:06 PM
Rizbit Sweetie;
I do not want you to involve yourself in anything that makes your blood boil and, thereby, raises your stress level. As everyone has said, there are too many of these snake oil, charlatan, fakers out there and we cannot put a stop to all of them.
I appreciate all of the effort you've put in trying to find out about this guy and get him banned. FB is lucky to have you working so diligently to protect innocent, vulnerable people from him and his kind. But, I do not want you to pursue this at the expense of your own health. Promise me that you will not allow this to cause a set back and try not to obsess about it too much, ok?
Everyone knows how much I absolutely abhor these people and I think that it is providence that I never actually come face-to-face with one of them (lol). So, we make sure that they are promptly dealt with here at WHL and exposed for the frauds that they are.
Take care of yourself, please.

Peace and Blessings
Namaste
Saysusie

Corella
04-22-2012, 05:12 AM
I have had well meaning people quote me various 'programs' and diets that claim to cure Sjogrens and Lupus, being a Sjogrens sufferer, I am fed up with people including naturepaths telling me that they have the 'perfect thing to boost my immune system' I am now getting impatient and fed up with explaining that my immune system does not need boosting - quite the opposite and could they suppress it for me? Which meets with a blank stare.

My sister - again, only with the best intentions has found some doctor Andreas or something that does the liver and epsom salt detox to 'boost the immune system' and it cures Lupus/AI diseases. (this is where I smack my head on my own wall in frustration)

So now, when I get offers of 'cures', I just tell them to run it by my specialist first - they never do of course and then I end the conversation with 'If they really have a cure for Sjogrens and Lupus then there will be no people suffering from this by the end of the week'.

And of course there are always those of us that suffer which tells me that there is no cure - we have accepted it, why cant they?

Snake oil salesmen - treat them like a diseased politician, don't trust them and avoid at all costs.

ritzbit2
04-22-2012, 08:09 PM
One of my well meaning friends told me I just needed to eat better a week or so ago and I just changed the topic because I was too tired to argue.