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n.mac
04-06-2012, 02:37 PM
I went to my ruhemy yesterday for my 3 month check up (had blood work done a few days ago so he already had the results)sed rate slightly elevated but as usual my ds-dna was elevated and this is what concerns him.
So its time to try a new drug-already tried mtx and imuran so now we are trying cellacept.

I stopped at the pharmacy to pick up my prescription and the girl said that will be $122.17- I said don't forget I have insurance- she said thats with your insurance-your insurance saved you $877. dollars

Makes you appreciate good old inexpensive plaquenol!

Take Care Niall

ritzbit2
04-06-2012, 02:45 PM
Are you taking the generic of cellcept? Its much cheaper and just as effective. When I was first prescribed it my mom was amazed to see what it would normally have cost and it was almost that much as well however the insurance covered the generic and only partially covered the actual cellcept. I have done very well and see no reason to think the generic is not as good as the brand name. Its the most expensive medication I'm on it amazed me the prices of these pills without insurance!

Hunniebun
04-06-2012, 03:10 PM
Without insurance that prescription costs $877?? A month?? Or a year?! Or am I confused? I am so glad you have insurance.

Holy cow, the United States continues to amaze me...

ritzbit2
04-06-2012, 03:21 PM
Its that much for a month if you don't have insurance! Isn't that nuts??? I would be spending well over $1,000 a month on meds if my mom didn't have good insurance. I'm so glad I get to stay on it until I'm 26. I don't know what will happen after that.

DrinkofWtr
04-06-2012, 04:36 PM
It's a crime what some of the prescriptions cost. I heard that we in the United States subsidize the medicines in third world countries, plus the research costs connected with getting a drug on the market, pharmaceutical markups, etc., etc., really bring up the cost of medicine here in the U.S. Without insurance or some type of medical plan, the individual is pretty much had. My Dr. explained this to me one day in his office, only he was much more detailed in his explanation.

n.mac
04-06-2012, 04:46 PM
The retail price for 120 pills is $939.99.
Initial dose is 1pill(500mg) twice daily for 2 weeks-then increasing to 2 pills twice daily.
So 120 pills will last 30 days after the first 2 weeks.

The name on the bottle is mycophenolate mofetil -so I'm assuming this is the generic.

I do have good insurance-thats why it surprised me.
Although the dr. told me many insurance co. balk at cellacept because it is expensive and it is not specifically a lupus medication rather it is classified as an anti-rejection med.

SleepyInSeattle
04-06-2012, 05:02 PM
I have a friend who has a different kind of autoimmune issue, and her meds run $30-$40K per year. It's INSANE. And if she doesn't take them...she dies. What kind of situation is that? It's just ridiculous. Her whole life revolves around making sure she has insurance coverage....

ritzbit2
04-06-2012, 05:48 PM
The retail price for 120 pills is $939.99.
Initial dose is 1pill(500mg) twice daily for 2 weeks-then increasing to 2 pills twice daily.
So 120 pills will last 30 days after the first 2 weeks.

The name on the bottle is mycophenolate mofetil -so I'm assuming this is the generic.

I do have good insurance-thats why it surprised me.
Although the dr. told me many insurance co. balk at cellacept because it is expensive and it is not specifically a lupus medication rather it is classified as an anti-rejection med.

That seems so insane to me. I have the mycophenolate mofetil as well and I only pay $10 for it. Maybe you can ask insurance why you still owe so much on it? I'm sure they could explain it to you. That just seems like such an insane price for something that is needed every month. While its not a lupus specific medication, technically nothing we take is "lupus specific" they are all sort of borrowed from other things when people discovered how useful they were for our treatment lol like plaquenil is an anti-malaria drug. Cellcept is really common as a lupus treatment.

DrinkofWtr
04-06-2012, 06:34 PM
So true. Is there a lupus drug which was formulated exclusively for Lupus, then maybe used for other illnesses and problems?

Codi98
04-06-2012, 08:14 PM
Im very sorry to hear that i work in a pharmacy and even that seems high to me but make sure they did bill for the genric and kknow your not aloone that drugs are some of the most impotant part yet can get out of hand quick. One piece of advice is go to local owned pharamacy not only will give you fairest price and get advice on all you meds

tgal
04-06-2012, 08:17 PM
The newest medicines, benalsta, is $35,000 a year without insurance. Yes,, $35,000. Any takers?

magistramarla
04-06-2012, 09:44 PM
I mostly avoid the expensive meds, so I've managed fairly well with my insurance on that front.
My problem is with tests, such as MRIs. The docs keep wanting me to go get them, but each one costs between $300 - $500 out-of-pocket for me.
I've just refused to go get them. I would really like to know if my muscle spasms and pain are the return of AVN, Spastic Paraplegia or simply another weird symptom of Lupus and/or Sjogren's, but I hate to go into debt just to find out.
Hugs,
Marla

Nonna
04-07-2012, 05:11 AM
I have pretty good Insurance and take generics except for my hormones. Generics don't work there. So that's 2X50 in copays. I have also found out that someone either the pharmacy change or the insurance company or the government is dictating which pharmasuitcal company they buy from. After taking the generic for mirapex for 3 years the pill suddenly changed size and color. When it asked about it; I was told they changed companies. Didn't think anything about it as we are told the quality is the same. Hockey pucks!!!! My symptoms became worse , and I asked why the change I was told they were told to use section 8 generics. I requested they order from the old company and my temors are better again. I don't appreciate someone experimenting on me or trying to save money.

My point is beware of what generics you take. Some are of better quality than others.

Mica
04-07-2012, 10:34 AM
No get this with insurance I have paid over $6,000 in the past year on medication and this was with insurance. I think without it ends up being over like 10 grand.

tgal
04-07-2012, 11:35 AM
I have none and I pay between 3 and 4 hundred a month for insurance and, at last count, I owe about $80,000 in medical bills. That will go up after being in the hospital for two days this week. I am one of the lucky ones I guess. I will get my medicare in Oct. Who knows how much I will owe by then

Hunniebun
04-07-2012, 12:08 PM
I am so sorry that it is like this for you guys, it sounds so wrong and unfair. I do not pay for anything, all of my tests big or small are free and so are all my medications. I never get sent a bill and I will never owe.

However people with high paying jobs have to pay premiums to their medical plans to help cover the costs of themselves and others, but it is a monthly payment that is still quite low.

magistramarla
04-07-2012, 09:15 PM
Hunniebun,
Yes, Canada is a lot more sensible about health care than the US.
We're thinking about retiring somewhere other than here. With a PHD in cyber security, Jeff just might be able to teach in a university in another country as a "retirement job". Perhaps we could wind up at a university in Canada - it would be fun!
Hugs,
Marla

steve.b
04-07-2012, 10:20 PM
in australia, i am on a medical disability pension.
i pay $5.80 per script. up to a limit each year. once the limit is reached, scripts become free.
most doctor visits and tests are free.

what i pay for is the room hire.
doctors pay increadable room fees.
this part of there bill is not covered by medicare.
it is not unusual for each patient to pay $110.00 for a specialist in room hire.
multiply that by the number of patients in a day.

(owning a medical suite is a license to print money)
(anyone got a spare few bricks....
we could all get free health care with that type of money)

running girl
04-08-2012, 06:05 AM
I, like Hunniebun, have most of everything covered. I pay 80% per prescription to a maximum of $200 for our family per year. We reach our maximum before the end of January each year, then pay $6.99 per prescription.

I feel so fortunate to have the coverage that we do in Canada. I think we have to wait longer for treatment though and I choose to travel to a bigger city where there is a wider selection of expertise.

Mari, I'm sorry you have the added stress of this debt.

Marla, I work at a university with a renowned School of Computer Science. Come, we'll make snowmen and drink cocoa.

It's a gorgeous day today, and my tulips are blooming. Take care everyone.
Brenda

Mica
04-08-2012, 12:40 PM
Yea our health care is a big problem here, if I can't get qualified for medicaid disability I won't be able to pay for my medical care anymore and I won't be able to get a court date for SSI disability for another 9 months. I mean I don't think it's right that people have to choose between paying medical bills and the rent.

runnergirl68
04-16-2012, 01:51 PM
My sister and brother in law were hit by a 4th offense drunk driver and their medical bills that they are responsible for are now at the $3.2 million mark. This is after the medical community has written some off and there insurance which was maxed out. Because private insurance for small business owners is so expensive they had a cap of $500,000.00 and it didnt cover much. And u seen that correct...$3.2 millions dollars.