05-10-2006, 11:06 AM
I had a son on 5th March this year (38wks pregnant) but sadly he was stillborn. I've previously had trouble getting pregnant but had two healthy children and an early miscarriage before the stillbirth. We've just had all the post mortem results and blood tests back. the post mortem returned nothing but the blood test showed up i had lupus but they need to re-test because it can be wrong. the placenta was inflammed which would happen if lupus was the cause. i have always had muscle problems doing certain things made me ache so much. i went to doctors several times but never found anything. they never tested for lupus. i am always tired but just put it down to everyday life. i do hate going out in sun but never thought much of it. as anyone else had similar problems? what will happen if the results come back the same (that I have lupus)?
05-23-2006, 06:22 PM
I am so sad to hear about your loss!
I have been treated for years for muscle aches and spasms and just a few months ago, the dr. checked me for lupus. I have SLE lupus and also discoid lupus (usually out in the sun or UV light I start getting red scaly marks that then scar). I am also new to this site. And new and confused to this whole thing of lupus. I'm also trying to find answers. I hope I didn't not bother you, but when I read your post my heart went out to you! I hope you find your answers and hope you do well!
God Bless You!
05-24-2006, 04:58 AM
I'm sorry I have no answers. Just a virtual *hug*
05-24-2006, 09:28 AM
I am so sorry to hear of your loss. I know, all too well, how the loss of a child can affect every part of your being.
For most women with lupus, a successful pregnancy is possible.
Miscarriages tend to happen later in pregnancy, usually in the third trimester. During gestation, the growing baby is nourished by the placenta. About one third of women with lupus have antiphospholipid antibodies (lupus anticoagulatin and anticardiolipin antibody) that may cause blood clots and interfere with the proper functioning of the placenta. This is most likely to happen in the third trimester. The impaired placenta is not able to supply the baby with sufficient nourishment, and the baby's growth is slowed. Around half of all lupus pregnancies don't last the full nine months. If the baby is born after 30 weeks gestation, or if it is at least 1.3kg in weight, its chances of survival are good.
All women with lupus, even if they do not have a previous history of miscarriage, should be screened for antiphospholipid antibodies, both the lupus anticoagulant (the RVVT and sensitive PTT are the best screening battery) and anticardiolipin antibody. A woman who has had a past venous or arterial thrombosis should be therapeutically anticoagulated during the next pregnancy. A woman who has pregnancy morbidity--one or more late losses, three or more first trimester losses, or severe pre-eclampsia or placental insufficiency--should be treated with prophylactic doses of heparin and a baby aspirin during the next pregnancy. Several clinical trials have indicated that the combination of heparin and aspirin is likely preferable to aspirin alone, although some women do have successful pregnancies on aspirin alone.
Even if you are diagnosed with Lupus, with careful monitoring by a rheumatologist and an obstetrician specialist, your chances will be better that you can have a successful pregnancy. Lupus pregnancies, regardless of symptom status, are considered 'high risk'. This means that proper antenatal care is vital in order to anticipate, prevent and solve any problems that may occur. It is also important to closely monitor the growth rate of the baby to ensure that all is well. It is advisable to continue to consult with your rheumatologist and specialist obstetrician throughout your pregnancy.
If you are diagnosed with Lupus and want to become pregnant, it is suggested that you remain free of flares for at least six months prior to conception. Some women report that their flares worsen during pregnancy. Sometimes, it can be difficult to distinguish between a lupus flare and normal pregnancy symptoms. It is important to consult closely with your rheumatologist and your obstetrician because some of the symptoms of pregnancy may mimic those of lupus:Build-up of fluid in the joints, Skin rashes or flushes, Hair loss following childbirth. Also, if your are diagnosed with Lupus and being treated, you should not concieve if your are taking the following medications: Cyclophosphamide, Chlorambucil, Plaquenil or Azathioprine. Or if you have any type of kidney damage.
Peace and Blessings
06-07-2006, 07:51 PM
I am so sorry for your loss. My daughter's birthday is March 5th, so this kind of hit home for me. Please know that I will keep you in my thoughts and prayers.