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New2Lupus
03-14-2012, 07:40 PM
My name is Ciji and I'm new here.

I have been suffering from chronic joint pain, rashes, heat fatigue, and overall pain in my legs for years now. I have been treated individually for these ailments. Now, my new doctor recently did an ANA test that came back positive. I am now waiting to see a Rheumy at the end of the month.

I wanted to ask, someone in here mentioned "an ANA test with strong positive". What determines a "strong positive"? For example, what's high and what's low? Just curious because the doctor told me I was full of inflamation. A confirmed positive of Lupus would be a great relief. I want treatment to deal with this disorder effectively. For so long I've felt that it was more than just OA, skin irritations, etc.

Well, I'm glad to be here. Nice to meet you all!

Ciji

tgal
03-14-2012, 07:57 PM
Hi Ciji,

First let me welcome you to WHL. Having a positive ANA does not mean that someone has lupus but it is an indication that Autoimmune diseases need to be looked into. ANA with a titer of 1:320 or higher is considered a high positive but it is also important to know what the pattern is. It is a wonderful thing that you are going to go see a specialist! So many of us go for months or years just as you have and it is such a relief when someone finally listens to us!

I am going to post a link below that give the criteria for diagnosing Lupus (I think there is a new one but I can't seem to find it). The problem with getting the diagnosis is that all of the symptoms can be caused by other things and they have to be ruled out in order to get the diagnosis. Hopefully your appointment will go well and you will get started on the right meds so you can start feeling better!

Until then, welcome again to the WHL family. We are really glad to have you!

http://forum.wehavelupus.com/showthread.php?2592-Criteria-for-Lupus-Diagnosis

steve.b
03-14-2012, 08:48 PM
hi ciji,
may i ask where you are from.
we have members from all over the world.
it is nice to know that this type of support exists.

ana is a test for anti nuclea antibodies.
the number after it is the amount of dilution that can happen and they still see the antibodies.
it starts with 1:10. then it halves each time.
1:20, 1:40, 1:80, 1:160,1:320, 1:640, 1:1280.

so the higher the number.... the more antibodies in the blood sample.


i hope you have a productive visit with your rhuemy.
may i reccommend that you write down your questions for the rhuemy, before you go there.
they will tell you a lot of information, and it is easy to forget someting you wanted to know.

New2Lupus
03-15-2012, 07:36 AM
Thanks Steve and Tgal!

My results were 1:640. That is great advice to write down questions, I think I'll compile those over the coming days so I don't forget. I do have so much to ask. I'm hoping that it is (sounds crazy maybe) Lupus so we can get started on the road to a healthier lifestyle and effective treatments.

I'm so glad I found you all! :)

Ciji





hi ciji,
may i ask where you are from.
we have members from all over the world.
it is nice to know that this type of support exists.

ana is a test for anti nuclea antibodies.
the number after it is the amount of dilution that can happen and they still see the antibodies.
it starts with 1:10. then it halves each time.
1:20, 1:40, 1:80, 1:160,1:320, 1:640, 1:1280.

so the higher the number.... the more antibodies in the blood sample.


i hope you have a productive visit with your rhuemy.
may i reccommend that you write down your questions for the rhuemy, before you go there.
they will tell you a lot of information, and it is easy to forget someting you wanted to know.

tgal
03-15-2012, 12:02 PM
We are glad that you found us too! Another thing that helps is to write down all of your symptoms and when they started. That way you don't have to remember it when he/she asks