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Shine
03-02-2012, 03:02 AM
Saw my Rheumy for the first time the other day, William Hill in Adelaide, and I was very pleased. I feel like I was listened to and understood. He was very pleased with the list of symptoms I took with me, thanks for the advice guys.

He said I have SLE in the form of Acute Palindromic Attacks. From the appointment I gather this means very short sharp bouts of the auto-immune reaction. Anyway, it makes sense. I was just wondering if anyone else has experienced the same and can tell me more about it?

I've been given Plaquenil to try, 100mg from a while then to increase to 200 in a few weeks. Back to see him in 2 months (unless anything dodgy pops up in the bloodwork I just had done.) I know it takes a while for the plaq to work, I'm struggling abit with the sickess and weak legs but fingers crossed the side effects will subside and i'll feel the benefits soon.

Any advice or experiences are much appreciated xx

steve.b
03-02-2012, 10:08 PM
quite a few people have an upset stomach after taking plaquenil.
if you do.....
take it just before bed time.

i take mine in the morning, just before breakfast.
i then cover it, (in my stomach), with breakfast.
this cuases me no ill side effects.

tgal
03-03-2012, 09:41 AM
Hope the plaquenil kicks in quickly but be prepared that it can take from 3 to 6 months to feel the full affects.

E42brchick
03-04-2012, 08:03 AM
I've been on plaquenil for a month now but I feel like I am starting to see some progress. Small, but progress. Keep doing what you are doing and we will be here to support you!

Shine
03-09-2012, 10:02 PM
Thankyou guys.

Does anyone know anything about Acute Palindromic Attacks and what it means though? All I can find is Acute Palindromic Attacks of Rheumatism and something about it developing into RA. But the doc specifically said I have SLE. Confused.