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lhuntd
02-22-2012, 10:22 AM
hi,
I have had Lupus for over 17 years now and beginning Benlysta tomorrow. Anyone on it?

steve.b
02-22-2012, 09:19 PM
hi and welcome.
one of our members slim has started a blog on there benlysta.

tgal
02-22-2012, 11:34 PM
The user is slim. I would find the blog but I am here on my phone and it is hard to search. Good luck to you!

rob
02-23-2012, 08:59 AM
hi,
I have had Lupus for over 17 years now and beginning Benlysta tomorrow. Anyone on it?

Here you go, Slim's Benlysta Blog Entries-

http://forum.wehavelupus.com/entry.php?379-Had-my-first-Benlysta-treatment

http://forum.wehavelupus.com/entry.php?381-Benlysta-round-2

Adventure Racer
04-09-2012, 07:18 PM
I have had three rounds of Benlysta thus far. First round had me sound asleep for 3 days. Likely from the Benadryl. :)
I can tell a slight improvement in terms of my malar rash. It had been severe every day before Benlysta, and now I only have it a couple of times a week. I am patiently waiting for improvement in the joint & muscle pain, overwhelming fatigue, and cognition issues.

tgal
04-09-2012, 07:55 PM
Thanks south for this information! It is very helpful to those thinking of trying it!