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alihogg99
02-20-2012, 03:19 PM
Hey All. I am an activist for marriage equality in Melbourne, Australia. I was also a photographer before I got too sick and my arms got too sore to hold the camera long enough at work. I came accross this website by googling lupus + body feels like lead.because that is how I feel today.
I am on the public health care system and have to wait once every 2 months to see the rheumatologist so it is difficult to walt that long to ask questions about new symptoms and how to treat them. It's very frustrating. I found reading the threads about symptoms very useful. I so far have not been given any medications because I am having a series of more tests and he is going to give me medication options in April. In the mean time I've been told to pace myself and not use up all of my energy at once.

steve.b
02-20-2012, 06:35 PM
hi ali and welcome.
i am on the other side of our great land.
there are quite a few other aussies who are members here.

fatigue is a big problem for many of us.

quite a few of us write our personal information on our profile page.
this is a way we can let others know what we want them to know about ourselves.
please read mine and consider writing something about yourself.

again welcome

cheryl g
02-20-2012, 08:04 PM
Hi and Welcome, It can certainly be scary to be waiting, but hang in there. Get lots of rest when you can. I started taking S***E recently and it seems to help. Plaquenil has been good as well. You are not alone. Cheryl

tgal
02-20-2012, 08:24 PM
Hi and Welcome, It can certainly be scary to be waiting, but hang in there. Get lots of rest when you can. I started taking Sam-E recently and it seems to help. Plaquenil has been good as well. You are not alone. Cheryl

Please note that Plaquenil is the only medically proven medicine of the two mentioned. It takes several months to start working but please talk to your doctor about starting on it as soon as you can.

rob
02-20-2012, 08:46 PM
Hi and Welcome, It can certainly be scary to be waiting, but hang in there. Get lots of rest when you can. I started taking Sam-E recently and it seems to help. Plaquenil has been good as well. You are not alone. Cheryl

WHL has a strict policy in regards to advocating so-called "natural treatments" such as Sam-E. It is not allowed here. The reasons for this policy are explained here-

http://forum.wehavelupus.com/showthread.php?11253-How-To-Get-Banned-From-WHL

Thank you,

Rob