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tripLexie
01-23-2012, 12:50 PM
Hello all.

I was wondering if anybody else experiences this symptom.

They're sort of 'electrial' feeling.. Random bursts of shooting pain that can be localized to virtually ANYWHERE on my body- from head to toe. Very brief, only lasting about 10 seconds. Sometimes they can cause me to wince, sometimes it's just an overwhelming annoyance that goes away very quickly. It's throbbing and very sharp in nature. I have yet to connect anything regarding the area of my body it occurs most frequently.. Nor have I figured out a certian time period they happen most commonly.

Anyone ever have something similar?

rob
01-23-2012, 01:15 PM
Hi tripLexie,

I get this same kind of pain frequently. What I experience is neuropathic (nerve) pain that is a result of peripheral neuropathy caused mostly by Multiple Sclerosis, and partly from the effects of Lupus on my central nervous system. Peripheral neuropathy and other neurological problems are fairly common in people with Lupus.

If the pain you are experiencing is indeed neurological in nature, there are meds available to treat it. Have you ever spoken to a Neurologist about these symtoms?

Rob

tripLexie
01-23-2012, 01:57 PM
No, I haven't. Over the years I've mentioned it to a PCP but it was written off as a 'no big deal'. I'm in a new area and searching for a repuatable new PCP as well as a rheumy and I'm hoping my symptoms (especially this one, along with some ongoing chest pain) will be taken more seriously. Thanks for the info!

rob
01-23-2012, 05:10 PM
I'm in a new area and searching for a repuatable new PCP as well as a rheumy and I'm hoping my symptoms (especially this one, along with some ongoing chest pain) will be taken more seriously.

I think any woman packing an AR-15, and an AK-47, ought to be taken seriously! (insert smiley face)

SleepyInSeattle
01-23-2012, 05:41 PM
Yup I get those too. i have absolutely no clue what causes them, so I am not very helpful, but wanted you to know you have company.

They haven't been frequent/bad enough for me to seek medical attention for them - plus, they're so hard to pinpoint and describe. 'Random shooting pains" doesn't give a doc much to go on, I guess. For me, they tend to come in groups - I'll have several in different places over the course of a couple weeks, then I won't have any for several weeks. I usually don't have more than 2-5 a day (but not every day), and they only last maybe 10-20 seconds, if that. No muscle cramps or anything with them.

I also get shooting/stabbing pain headaches sometimes, but that's different - always in the same place, and usually preface to a migraine sometime in the next few days. Those COMPLETELY SUCK, and just about knock me over. But my neuro knows about those. He can't tell me much about them, LOL - but at least he knows. : - P

tgal
01-23-2012, 06:13 PM
I used to get them really badly but they are not as bad now. I noticed that my TGN med actually lowered the amount of the "shocks" that I got elsewhere. I do understand what you are talking about though

tripLexie
01-24-2012, 06:59 AM
Thanks everyone. Although it's still troubling to know exactly what these pains actually are, it's good to know that other people feel things similar. I could drive myself crazy wondering if what I'm experiencing is completely unheard of! Sometimes I wonder if I just don't know how exactly to describe what I'm feeling. But I guess my description fits, if y'all are capable of understanding me haha!

Oh and good eye, Rob! That's exactly what I was thinking, too.

magistramarla
01-24-2012, 11:00 PM
Count me in as a yes to these pains, too. When one strikes suddenly in a leg, it can pull me down to the floor.
Here's something else that I've noticed - every time that I have one of these little jolts of pain, or a muscle spasm, it is followed by itching in the area where I just felt the pain or spasm. My hubby thinks that it is all part of my mixed up neurological signals. The docs just dismiss it.
Hugs,
Marla

rob
01-25-2012, 08:28 AM
Here's something else that I've noticed - every time that I have one of these little jolts of pain, or a muscle spasm, it is followed by itching in the area where I just felt the pain or spasm.

Yep, me too Marla. I get the same thing. And it's a weird kind of itch, like it comes from under the skin. It sometimes burns too.

magistramarla
01-25-2012, 04:44 PM
Rob,
Yes, it causes giggles at night. My leg will spasm so hard that Jeff feels it. Then I hear him say "Wait for it..." When I start scratching, he says "I knew it." That's when I have a fit of giggles.
Sometimes, you just have to laugh......
Hugs,
Marla

rob
01-25-2012, 04:57 PM
Rob,
Yes, it causes giggles at night. My leg will spasm so hard that Jeff feels it. Then I hear him say "Wait for it..." When I start scratching, he says "I knew it." That's when I have a fit of giggles.
Sometimes, you just have to laugh......
Hugs,
Marla

Most of mine happen in the area between my shoulderblades where I can't reach. Karen will ask "is it the right blade itch, one inch below the big freckle?" I say Yep...

Scratch away my dear.

You definitely have to laugh!

magistramarla
01-25-2012, 08:33 PM
LOL - I get those itchies between the shoulderblades every night, too. Jeff got so tired of me asking him to scratch it, he gifted me with a bamboo back scratcher, which I keep on the headboard, next to my eye drops.
Hugs,
Marla

NaturalMystic
01-26-2012, 07:34 PM
I get those sharp bursts of electricity too. I don't know what causes them either, but it's nice to know I'm (We're) not alone! Sometimes mine are followed by or along with a muscle spasm. They get bad enough at times that I have fallen because my leg hurt so bad or because I couldn't move it. It happened a few times when I was walking - which is why I'm a little afraid to drive now. I don't want to get hurt or hurt anyone else.

Blessings, Love & Aloha,
Ty :)

Nonna
01-27-2012, 06:23 PM
At least I know I'm not alone with the itches on the back that can't be reached. I get the electric shocks also. Rob has MS, I have PD

macell
02-02-2012, 10:39 AM
I get them too. Electrical shocks and then pain, spasms. I was told it is neuropathy. I call it sucky--LOL. It was happening at night alot. Electrical shocks and spasms so bad that I would keep my poor husband awake. Our fix to this...a tempurpedic mattress...now he doesn't feel me and he can sleep all night.

Ronnie
02-04-2012, 07:09 AM
I just spoke to my rheumi last week about the same exact thing. I described it like an electrical shock. So bad it almost made me wreck my car. I had a really bad one that lasted for 4 days under my left arm pit. It would come and go. I actually caught myself holding my armpit on and off for days. My doc told me it is part of fibro and they call them zingers????????

tgal
02-04-2012, 02:11 PM
I just spoke to my rheumi last week about the same exact thing. I described it like an electrical shock. So bad it almost made me wreck my car. I had a really bad one that lasted for 4 days under my left arm pit. It would come and go. I actually caught myself holding my armpit on and off for days. My doc told me it is part of fibro and they call them zingers????????

I will tell you that these are things we hear of often but I will also say I just did a search and while I saw individuals calling them "zingers" I didn't see anything of a concrete nature with that name. I am not saying that your doctor is wrong but I am saying you might want to make sure that the symptom isn't just dismissed because, in his mind, it is "a zinger"

Ronnie
02-05-2012, 01:26 PM
Tgal, I couln't agree more. I am just telling you what she said to me. I felt the same way you responded. I feel like when they don't have an answer they just come up with something. She never even touched my under arm to feel if there was anything wrong. I find it so strange that doctors never touch you. All my rhuemi ever does is look at my hands and ask questions. She does listen with her tethescope, but thats all. They don't even take my temperature. I just don't understand that. If you have pains don't you think your doctor would want to look at certain parts of your body or even to feel that area? So confusing to me. Oh well, I am guessing thats normal. I just wish I new of a good rheumi and neurologist in St. Louis. Someone that specializes in Lupus and Lupus with CNS involvement. My rheumi says I need to deal with my Neurologist and my Neurologist says I need to deal with my Rheumi???

magistramarla
02-05-2012, 10:04 PM
Ronnie,
I have the same frustration with my current rheumy. I had a fantastic one in San Antonio. She insisted that I come in every 4-6 weeks for a quick blood draw because I was on methotrexate. Even that short visit was started with a weigh-in, temperature-taking and a blood pressure check. Every 3 months, I was seen and really checked over by either the rheumy herself or her para-medic. They always had me to fill out a questionnaire, checked over my whole body, and asked lots of questions.

We've moved to CA, and the rheumy I have now sounds like yours. She only requests blood work once a year. She only sees me twice a year, and when she does, she doesn't even examine me. She just refills my prescriptions and writes referrals and then walks out. I'm frustrated that my insurance pays her so much for those few minutes. A decent PCP, if I could find one, could do that much! I haven't had weight, temp & blood pressure taken at a doctor's office since we moved here in Sept. 2009. My hubby is convinced that most rheumys are just in it for the nice, cushy job of "taking care" of little old people with arthritis, and when we present them with a challenging case of autoimmune disease, they simply don't want to deal with us.

Because I have a chronic disease, my insurance has a nurse call me and follow up on me. She's been exasperated when I don't have any stats to give her, so she urged me to keep track of my BP myself, so I give it a quick check every time I go to the drug store. Isn't that ridiculous? I have to keep track of my health myself, and a nurse on the telephone is more concerned than my rheumy!

BTW - I grew up near St. Louis - across the river in Hartford, Ill. My hubby and I graduated from St. Louis University, and my first teaching job was in Florissant.
I haven't lived there since 1981, so I can't help you on the docs. We used to have a member here who found some good ones at Washington Univ, I think.
Good luck,
Marla

Ronnie
02-13-2012, 09:38 AM
Thank you so much Marla. I guess I always thought that is all they are supposed to do as rheumi's. I guess maybe I should find another doc. I just wish I could get a good referral. I hate going from doc to doc. Thanks again for your reply.