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ALLoWeyo
04-27-2006, 06:59 AM
Does anyone else have a low heat tolerance? Every time the air conditiong isn't pointed at me, I begin to sweat a lot. I was wondering if anyne else had this problem.

silverlioness
04-27-2006, 10:42 PM
I'm the exact opposite. If the air is on, I'm trying to find a way to turn it off. My hands (and sometimes my nose) turn blue, get stiff, and start hurting. I will tolerate 110 degree heat to avoid this.

TracyDawn
05-03-2006, 08:26 AM
I'm with silver. I can't stand being cold. I have a space heater in my office at work that I keep on all the time. And even in the summer you will usually find me in sweats and a blanket. I hurt so much worse in the cold weather we have here during the winter and from the A/C being run at full blast in the summer. BUT I don't sweat. The last few years I have noticed my body isn't cooling down when I happen to be outside, all covered up of course to avoid the sun. This is NOT a good thing in FL so I'm always terrified I'm going to have a heat stroke.
Hmmm are you old enough for menopause? I know the other ladies in my office that are that age can't stand the heat and immediately start sweating if the A/C goes off. I've had a hysterectomy (at 26, I'm 31 now) so I take hormone pills. Thank goodness cause I'd sure be a mess if I had to deal with hot flashes and such. ;)

ALLoWeyo
05-03-2006, 10:21 AM
I live in miami and I'm having the same problems. I'm wearing long pants, socks, long sleeves, a hat, and I just can't cool down. I can't stand being cold either. I'm not old enough for menapause... I'm 23, but the thought of early onset has come to mind on more than one occation. :shock:

TracyDawn
05-04-2006, 12:16 PM
Allewayo, I have a question. Do they have indoor pools down there? Up here at the top of the state if you ask about that they think you are nuts. I guess since we live in FL they think we are supposed to worship the sun. LOL I was just wondering if they exist. There is only one in this town and it's at FSU and unless you are a student then you can't go there. I can't afford the YMCA dues so that's out, it was the only other one I managed to find.

PattyLatty
05-06-2006, 04:49 PM
I can't stay cool enough. Any little exertion - a 10 minute run to the store - makes me break out in a sweat. It's awful to have to wear long sleeves to keep the sun off me. And I'm way past menopause plus have had a hystorectomy, so in my caase that isn't it. But it feels like it.

ALLoWeyo
05-06-2006, 06:10 PM
I'm blessed to have gotten the most wonderful, theraputic puppy in the world in the heat of my disease. Unfortunatly, we're house breaking him. So the lovely dear wakes me up at 5 am to go outside, so we go, and I come inside and put sunscreen on (I probably put it on in patches since I don't look and I'm so tired) and then I get dressed in socks, long sleeves, and pants for the 7am walk.

The sun wears me out, but on those days where I feel like I can't get out of bed, I get puppy love to make me move. :)

And I have an indoor swimming pool at my gym. Before all this silly lupus happened, I was an athletic model at the gym 6 days a week. Now I'm content to eat bon-bons. I'm retired. ;)

goodnightjunebug
05-11-2006, 08:26 AM
I'm a definite low cold tolerance kind of gal...(Right now I am FREEZING! Granted, I live in Maine and it is drizzling out!)My family (kindly) laughs at me when I wear polar fleece while they are in short sleeves.

I agree with the others.... a hormone check might be in order for you.
Junebug

pinkjmf
06-15-2006, 02:34 PM
I am always hot..hot..hot.I can't ever get cool.My poor husband is the opposite.You can only imagine what it's like at my house.I thought it was just me .I can show my husband now,someone else does feel like I do.I am sure my neighbors don't even think I live here anymore.One lady asked my husband where's your wife been?It's hot in Texas,and I'm staying inside.

ALLoWeyo
06-15-2006, 02:39 PM
my fiance enjoys that I walk around half naked all the time :oops: :lol: :shock: :wink:

ButterflyRN
06-15-2006, 05:48 PM
I'm always cold! I have a long sleeved sweater or shirt with me all the time because once I get in the air conditioning it's all over. And my feet! They get so cold. My husband hates when my feet are cold and I put them against his legs to warm up. He says I'm draining the life out of him...LOL :lol:

catlady4520
06-16-2006, 11:48 PM
Yes I've got Raynauds so I normally can't stand the heat but in the summer we use a swamp cooler to cool our house. I immediately get blue hands/feet and tip of my nose. I've got lots of summer sandals but can't even look forward to wearing them inside.

I sit in my recliner with an electric blanket and gloves so my husband and son can have the AC on.

daybyday
06-20-2006, 01:02 PM
Neither for me is good. I like 73-76 degrees.....I like AC as long as I'm not directly in front of it.....in the winter I love the space heater right beside of me. I think summer is in some ways harder because of having to cover up and staying out of the sun is always a challange. I love to garden and have learned to enjoy going out in the early morning and later in the evening.

If you do get a hormone test have them check you for antiphospholipid syndrome.....20-40% of Lupus patients have it and hormone replacement is NOT an option...they may cause a stroke. Soft hugs to all,
Lori Hollinger

Sheryl
06-20-2006, 05:14 PM
I have a related question - I'm new to Lupus so I'm still trying to figure out what's going on with me - but what issues do you all have with being in the sun?

I have noticed so far this year that my lips and the part in my hair feel like they are gettting sunburned very quickly. (Way more than I ever did before :( ) I also feel a funny prickly feeling occasionally, when I have been out in the sun. I have started wearing a facial sunscreen every day just as a precaution, but what I'm trying to figure out is: if I don't suffer any other effects or symptoms from being in the sun, do I still need to stay out of it? I mean, can it actually worsen the disease itself, or just temporarily aggravate sypmtoms?

I live for the outdoors, so this is really hard on me!

pinkjmf
06-20-2006, 05:25 PM
I didn't have any symptoms for a long time then one day the sun felt like it was burning my skin,I thought that I was on fire not just the heat but the pain was unbearable.Now I can't be in the sun at all.I am just now recovering from a flare I've had for 1 and a half weeks. I was in the sun for about 4 hours.No more for me I've learned my lesson.I would say keep applying the sun screen and listen to your body it will tell you,believe me.