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CarolynD
01-17-2012, 04:10 PM
I have not been around for some time but They have just diagnosed me with Organic Brain syndrome along with my lupus sle. Went for MRI yesterday to see how bad or how far progressed it is. Does anyone know about this?

tgal
01-17-2012, 04:55 PM
Hi Carolyn and welcome to WHL. Organic Brain Syndrome (OBS) is basically a way of saying that your brain is involved with your illness. OBS can be associated with many things, Autoimmune disorders being one of them. Often times we lump OBS in with CNS (central nervous system) issues. Several of us have that here. I am going to provide you with a link to some information because I believe that we should all be informed however, you must not forget that the doctors have medicines that can help this stop progressing.

You are not alone here so please feel free to come and talk, vent, cry, laugh or whatever you feel like doing. You are now a part of our WHL family and we will be here for you.

OBS (http://www.nlm.nih.gov/medlineplus/ency/article/001401.htm)

rob
01-17-2012, 04:56 PM
Hi CarolynD,

To the best of my knowledge, the term Organic Brain Syndrome is, or was, a term used in psychiatry to differentiate between mental disorders stemming from actual physical (organic) causes, such as traumatic brain injury and/or disease, and mental disorders caused by psychiatric (non organic) causes within the brain.

I've asked my Neurologist about the term, and he says it's more or less an obsolete term, and is no longer used because it was far too general in scope, and because modern imaging and other diagnostic techniques can now target various brain disorders and their causes much more accurately. Of course, his is only one opinion, and it doesn't mean that other specialists don't still use the term as part of a diagnosis.

Lupus can certainly cause mental disorders. The majority of us have experienced lupus induced cognitive dysfunction, AKA brainfog, as well as depression that is a direct result of disease activity. Lupus is indeed an organic cause of mental disorders in many people, myself included. However, how this term applies to your own situation and diagnosis, I don't know.

Rob

steve.b
01-17-2012, 07:03 PM
hi carolyn,
and welcome.

both of the people before me are very well regarded on this site.
they both have brain issues.

please feel at ease with the loose term used by your doctor.
he has stated that further testing needs to be done.....
not that you are loosing your mind.

talk to the 2 people above, they are a wealth of wisdom.
based on there personal experiences.

CarolynD
01-17-2012, 09:36 PM
HI and thanks.
They sent me to the Phyc guy for 3 hours of testing to determine if my memory loss was due to depression and he determined it was not and wat MCI Moderate Cognitive Impairment, which my Neuro is following up with the MRI that I did yesterday. I have had the Lupie and Fibro fog but it just keeps getting worse. Now the waiting game to find out the results. Only positive thing they told me is that I still had a brain in there. lol Cant place words I need to say. Lose everything I touch and working shift work SWING SHIFTS does not make it any easier. I forgot to go to work one day. Swore it was my day off. That was my holy crap I need to do something about this. I believe shift work has a lot to do with it. 6 days daylight 6 days nights and 6 days afternoon with two off in between. Dont sleep and don't know what day it really is~

Mica
01-18-2012, 08:46 AM
Ive never heard that term but I can see that being a lupus thing. Lupus is crazy with all it's little symptoms(brain fog) and I too had a phyc test me too for my disability claim, he told me I wasn't crazy just sick. It didn't help that I was so sick that day and and ended up crying for no reason but he understood. I forget things constantly, example: forgotten I had dogs and left them outside all day luckily there was water outside, this happened like 3 days ago. Even if the tests do come back as showing depression talk to the WHL family we all understand, lupus is frustrating and we all get depressed from it every now and then. I have realized though that now that I found the right sleeping pill for me and sleeping soundly now my word constipation and memory has improved. Hope things get better.

rob
01-18-2012, 09:31 AM
HI and thanks.
They sent me to the Phyc guy for 3 hours of testing to determine if my memory loss was due to depression and he determined it was not and wat MCI Moderate Cognitive Impairment, which my Neuro is following up with the MRI that I did yesterday. I have had the Lupie and Fibro fog but it just keeps getting worse. Now the waiting game to find out the results. Only positive thing they told me is that I still had a brain in there. lol Cant place words I need to say. Lose everything I touch and working shift work SWING SHIFTS does not make it any easier. I forgot to go to work one day. Swore it was my day off. That was my holy crap I need to do something about this. I believe shift work has a lot to do with it. 6 days daylight 6 days nights and 6 days afternoon with two off in between. Dont sleep and don't know what day it really is~

Hi Carolyn,

Working swing shift is hard to do for a healthy person, let alone somebody with health problems. Just reading your description of symptoms, it sounds just like the brainfog I experience from lupus flares. You are stressed, overworked, and tired. I would be surprised if you didn't have memory problems right now.

Brainfog is so hard to deal with, because it's so elusive, and hard to explain and understand. If you cut your hand, you put a band-aid on it. Break a bone, and they put a cast on it. But if you have brainfog, there's no simple remedy or cure. It's frustrating.

In regards to depression, having Lupus and coping with all that comes with it can easily cause depression. Plus, Lupus disease activity itself can induce depression through actual chemical changes in the brain. It's a vicious cycle. Being depressed is not something to be ashamed of. It happens to nearly all of us, and some of us fight it on a regular basis.

I hope you can get some answers and solutions ASAP.

Till then, hang in there to best way you can,

Rob

rob
01-18-2012, 09:36 AM
I have realized though that now that I found the right sleeping pill for me and sleeping soundly now my word constipation and memory has improved.

I've never heard the term "word constipation" before. I love it!

That would make your sleeping pill Ex-Lax for the brain!

(insert big smiley face)