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View Full Version : Pleurisy? Costo? Help!



tripLexie
01-16-2012, 09:48 AM
Hello everyone.

I'm new to the community. Starting my diagnosis process next week (problems started very young.. But was told that as I aged more symptoms would possibly appear and help with a more accurate diagnosis would come as well).

When I was younger, the only reason Lupus was a possibility was due to joint pain, an elevated ANA, and family history of the disease. Not too much to go off of, and not too severe to start treating, either. As years have gone by I have noticed a major decrease in my wellness and feel like I'm just ailing faster and faster. Over the years, a few other symptoms popped up (muscle pain, nerve pain, frequent illness and infection.. Some photosensitivty, headaches..) But the most frequent symptom to promt my second try at diagnosis and hopefully some treatment is the worst of them all, for me.




I started having some mild upper back pain on my left side a little less then a year ago. It was almost unoticeable. I only felt pain after playing softball and I assumed it was jsut from swinging a bat and I brushed it off. Soon I started to have pain while breathing, deep in my chest, along with this 'back pain' right behind it. I went to the doctor, explained these minor symptoms, and was told it was costo and to get massages, use low heat frequently, and take anti-inflammatory's. That lasted about a month. It only got worse. The pain started becoming more severe.. A constant ache was present and my pain while breathing deeply became much worse. It has now spread down my arm, and sometimes into the other side of my chest. I also will sometimes feel a 'pop' after breathing out. It's hard for me to pinpoint the exact area of pain. When I try to reproduce tenderness like costo is supposed to, I can't. Generally, pressing on my skin anymore mildy 'hurts' so as far as the increased tenderness that costo is supposed to create, I've yet to find it.

Also, one morning I woke up with a different pain. The everyday sharp pain with breathing was still there, in that same area I still had trouble explaining, and that constant ache was still present also.. But this other pain was so much different. I did not matter how deep I breathed.. I was having an extremly sharp pain that was very close to the normal area I was having inspiring pain, but several inches away from it. And the pain I had been having, which was what I had once described as moderte - severe, was instantly a 'dull ache' in comparison to this extremtly severe pain I was now having. I was literally involuntarily wincing and yelping with every breath. I managed to make it to a minor emergency clinic where they ran an EKG and apparently came back normal. He told me the pain was probably due to costo and to go to the ER if it wasn't better in a day or so. The pain did let up, and I haven't had THAT pain since... But the other one, that is there everyday, is still present and steadily getting worse. Minimal physical activty aggravates it. Lying down used to be my remedy, as I used to not feel the pain while lying down, is no longer a help. The only thing I've found to help is not moving. And even then, my breathing in pain is always present. If I bend to either side irriates it as well.

I want to know if any of you have had this same issue or had any confusion with the ongoing costo or pleurisy issue.

Help!

tgal
01-16-2012, 12:07 PM
Have you been to a rhumotologist and pulmonologist? If you have not I suggest going as soon as possible.

I am not sure what "costo" is so I can't answer that but many people, even those without CNS involvement, have confusion issues or what we call "brain fog". Hope this helps

tripLexie
01-16-2012, 12:42 PM
I apologize, 'costo' is costocondritis. It's the inlfamation of the cartilage that attaches the ribs to the sternum (which does not seem to be what I'm feeling..) Sorry, I'm used to posting on general chest pain forums!

Anyways, I'm getting in to see a general practicioner so I can then be reffered to the proper specialist. I recently moved to a new area and have just been going to clinics for the (all too often) common cold or flu issues. When I started having this pain, I didn't really know WHO to see so I just went there as they are also characterized as a minor emergency care clinic. Though the visit wasn't much help and I'm not too sure they are able to do refferals.

steve.b
01-17-2012, 01:41 AM
hi triplexie.
many of us call this place our cyber family.
because of the care we receive here.

may i suggest you read some of the threads on diagnosing lupus.
then make an appointment with a rhuematologist.

again welcome

Angel Oliver
01-17-2012, 05:16 PM
Wow sounds so painful i am sorry you are going through all this. I had a similiar pain,but after months of being told it was a pulled muscle they found it was a blood clot on the lung.That was ten years ago.More recently,at the beginning of the year i did get pleurisy,then a 2 months ago again i got it and now just getting over my 3rd lot of pleurisy.Oh boy doesnt it hurt so much? Unfortunetly none of my doctors will ever join the dots and try and find out WHY this keeps happening, so i just have to live with it.
I hope you can get the gp to refer you to sort out your issues, make sure you demand they refer you.....its very painful.

love
Amanda.xxxx

tripLexie
01-18-2012, 09:57 AM
Thanks to everyone again! Yeah I just called to try and make an appt with one of the only rheumy's in the area, and the next availible appt. isn't until JULY!!!!! What the heck?! We are so tight on money right now (aren't we all?) I can't afford to just go to yet another doctor/clinic to have them tell me it's a strain or it's costocondritis and to take some otc anti-inflammatory. I've done that the past 6 months along with every night 1+ hour heat, and I've found nothing but the pain steadily getting worse. I was also (nearly) forced into seeing a chiropractor that a family friends SWEARS by, and I'm pretty sure his adjustments (only 2) made this even worse. Literally brought me to hysterics. Hopefully I can get some answers or at least a break from the pain!