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Dellee10
01-14-2012, 02:48 PM
Hi! I'm newly diagnosed with mild lupus (whatever "mild" means) and osteoarthristis in my knees. I'm so tired of being tired! I have spent a year trying to find out what is wrong and was finally sent to a Rheumy 2 weeks ago. They have put me on hydroxychloroquine 250 mg twice a day on top of all my other meds. I already take vimovo for my knees. What can I expect??

Thanks so much for letting me join your group. I appreciate it greatly!

debbie-b
01-14-2012, 05:53 PM
Hi Dellee,

Welcome to WHL.
I don't know exactly what mild lupus means, but maybe it means, that it was caught early enough, before it could do to much damage.
Being on meds is the first step to prevent to much damage.
It is hard to say what you can expect, because everybody is different, when it comes to Lupus.
What kind of symptoms do you have? What has send you to the Rheumy?
If you have any questions, go ahead and ask.

Debbie

tgal
01-14-2012, 05:56 PM
Hi! I'm newly diagnosed with mild lupus (whatever "mild" means) and osteoarthristis in my knees. I'm so tired of being tired! I have spent a year trying to find out what is wrong and was finally sent to a Rheumy 2 weeks ago. They have put me on hydroxychloroquine 250 mg twice a day on top of all my other meds. I already take vimovo for my knees. What can I expect??

Thanks so much for letting me join your group. I appreciate it greatly!

Hi Dellee and welcome to WHL! I am sorry for what you are having to go through but I am glad that you found us.

Sadly there is no answer to "what can I expect". Lupus is different to each of us. Since it is our body simply attacking itself it really depends on what part it decides to attack. Hopefully with the plaquenil that you are on (same as hydroxychloroquine) you will feel much better and your symptoms will ease. It does take it several months to really work so don't fret when you don't feel any changes right away. While you may hear some negative things about the drug it is the first line defense for Lupus and the vast majority of us take it with little or no problems. It is important, however, for you to get to an ophthalmologist and have a "plaquenil eye test". It is just a full eye exam and you want to have one now to use as a base for the ones you need yearly while on this medicine.

Please make yourself at home and welcome to our WHL family. I look forward to getting to know you!

tgal
01-14-2012, 05:57 PM
Hi Dellee,

Welcome to WHL.
I don't know exactly what mild lupus means, but maybe it means, that it was caught early enough, before it could do to much damage.
Being on meds is the first step to prevent to much damage.
It is hard to say what you can expect, because everybody is different, when it comes to Lupus.
What kind of symptoms do you have? What has send you to the Rheumy?
If you have any questions, go ahead and ask.

Debbie

It won't let me "thank" you under this post (odd) but I did want to do so. Well said

debbie-b
01-14-2012, 06:54 PM
It won't let me "thank" you under this post (odd) but I did want to do so. Well said

Well, how rude.lol

Thanks Mari.

Debbie

Desleywr
01-14-2012, 08:03 PM
Hello Dellee
I have been put on the same drug for the past month and I was told that it will take up to two mths to be fully working.. I have seen improvement after a week and slow improvement each week. So good luck, and welcome!

steve.b
01-14-2012, 08:24 PM
hi dellee,
and welcome.

elcome to what many of us call our cyber family.
we like to treat every member as a family member, (with love and compassion).
it is hard to find "normal" people who understand.
here we all understand.


it is hard when doctors cannot give a definitive answer.
unfortunatelly, with auto immune disorders, so many symptoms overlap.
some of us have spent many, many years trying to sort out our problems.

usually mild lupus refers to lupus that has not yet started to effect any major organs.
this is good.
plaquenil is avery common drug for auto immune issues.
as mari said, please see ayour doctor for a referal to an eye specialist.
a base line test to see how your eyes are is required.
this is because plaquenil can, (but usually doesnot), effect our eyes.
you will then need follow up tests for the rest of your life.
it is no big deal, but makes sure you are safe, and do not loose any sight from the drug.

tgal
01-14-2012, 08:24 PM
Hello Dellee
I have been put on the same drug for the past month and I was told that it will take up to two mths to be fully working.. I have seen improvement after a week and slow improvement each week. So good luck, and welcome!

You are lucky if you get full results in 2 months. Usually it is about 4 but for some can be a month or two more. If you are already feeling it then you should be feeling really good in a couple more months! Yay you!

kim,l
01-14-2012, 11:16 PM
hello dellee welcome to whl family we are here to be your support and now are part of our family.

Dellee10
01-15-2012, 12:37 AM
Thank you so much for the warm welcomes! This is such a confusing time for me and I appreciate all the support. I see my opthamologist every 3 months already as I have a problem with blurry vision and severe dry eyes. They can't figure out what the cause is, but it comes and goes. I will go a period of time with my vision being fine and then suddenly it will go very blurry. I use drops in my eyes daily and a gel at night. I also am a diabetic and have thyroid problems. My legs swell bady. for which I take a water pill and they hurt. I can't seem to stand or sit for very long at a time. My hands and feet are extremely cold, I'm tired all the time, have sores in my mouth, break out in a rash when in sunlight, and I'm generally achy all the time. My Dr. was out of his office for almost a year and the person filling in for him was trying to figure out what was wrong with me. I was diagnosed with diabetic neuropathy, fibromyalgia, arthritis, PVD, and sun allergies. My Dr. returned to his practice and redid all my bloodwork and said I had none of those. that my bloodwork and symptoms were all linked to lupus and osteoarthritis. He then sent me to a Rheumotologist, who did more tests and confirmed his diagnosis. I have been off of work because of all of my problems and hope that the new med will help me to be able to return. Again, thank you so much!

Della

rob
01-15-2012, 04:53 AM
It won't let me "thank" you under this post (odd) but I did want to do so. Well said

It worked for me. Intermittent glitch?

charcross
01-15-2012, 01:58 PM
I know what u are saying about the eyes being blurred and double vision. My has gotten so bad I really cant read, even being on the comp. is hard. I went to my eye specialist and he kinda made me mad this last time he told me I had Chemical Eye Toxicity from my medicines. But he didn't give me glasses or any opions just sent a letter to my Dr. and then when I told my Dr. she just shrugged her shoulders. It kinda scares you,like leaving u in the dark. ikno the meds i take are bad for my eyes but I think they should tell you whats going on b/c I dont even know what Medicine Toxicity. Here's a list of my meds but I was sure only the first 3 could effect your eyes which happen to be my most needed. Lyrica,Plaquenil,Topamax,Cestor,Kadian,Fosamax,Flu oxet,VitD,Aciphex,Amitiza,Proxicam,Oxycodone, Folic Acid,Baclofen,Zanex ER,Ambien,,Magnesium Chloride,Acidophilus w/ Pectic ,Aspirin, and Diflucan quite often ,beside that are my inhalers for my COPD. Also if you can get your Dr. to order Phyical Therapy it really does help even when you think it isnt, my problem was say after your say 6 week session they,re like "Do u think u can do this at home?" I'm like sure. HAHA not But you're young and need to do whatever you can. Try to keep a good outlook. ((HUGS))

magistramarla
01-15-2012, 10:18 PM
Hi Dellee,
Welcome to WHL. I'm also in the "mild Lupus" boat, along with "mild positives" for Sjogrens, RA and Psoriasis. There are lots of AI diseases, and they can overlap, as in my case.
I also deal with very dry eyes, and the blame for that was placed upon the Sjogren's. Your ophthalmologist can do a quick test for it (called the Schirmer's test). If that is positive, then the rheumy can order the blood test for SSA or SSB antibodies, or even a lip biopsy (proves the dry mouth part of it).
I'm using Restasis, which has helped my eyes, and Pilocarpine for the dry mouth.
LOL - the pilocarpine helps me to have a bit more saliva. My hubby accidentally took a pilocarpine one morning, and he drooled for two hours!
Hope this helps.
Hugs,
Marla

Dellee10
01-16-2012, 09:48 PM
Thank you so much! I will mention the tests to my opthamologist. The blurry vision is such a pain. I love to read and it would be so nice if there was a way to help with it.

Dellee

BlueBertie
01-17-2012, 12:09 PM
Hello! i am new here too, i was diagnosed with lupus last summer and started the plaquinel then, i was nervous at first but i have so much more energy since taking it! Stay positive and I hope you get some relief soon!! :yes:

tgal
01-17-2012, 04:08 PM
Hello! i am new here too, i was diagnosed with lupus last summer and started the plaquinel then, i was nervous at first but i have so much more energy since taking it! Stay positive and I hope you get some relief soon!! :yes:

Hi Bertie! Welcome to WHL. We are really glad to have you with us

steve.b
01-17-2012, 06:56 PM
hi bertie.
welcome to our cyber family.
nice to see you fitting in.

rob
01-18-2012, 08:37 AM
Hello! i am new here too, i was diagnosed with lupus last summer and started the plaquinel then, i was nervous at first but i have so much more energy since taking it! Stay positive and I hope you get some relief soon!! :yes:

Welcome to WHL!