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chikititalinda
12-13-2011, 02:02 PM
I cant stand the pain in my fingers. I wake up and feel as if my hands are swollen and my fingers the size and shape of a lightbulb ? they feel swollen and leathery when I touch them but they're actually not swollen. The joints hurt as if they had been smashed and feel hot.
I called my rheumy and spoke to her nurse who suggested I call my pain management doctor. Im already on pain killers I want to know why Im feeling this pain.

Any suggestions? I HATE THIS LUPUS!!!!!

steve.b
12-13-2011, 06:55 PM
i have a similar problem.
for me it is fibromyalgia.

the worst time of day is from wake up - until about 10:00am.

i take depression medication as part of my anti fibro regeme.
i take it not because i am depressed....
but it works against the pain recepters, dulling the pain sensation.
i also take anti inflamitory medication at night.

both of these have greatelly reduced my morning problems.
i still hurt, but not anywhere as bad as i did.

chikititalinda
12-13-2011, 08:58 PM
I was on cymbalta and gabapapantin for my fibro but I found it wasn't helping. Dr put me on lyrica hope this helps. I thought fibro only affected the muscles?

steve.b
12-13-2011, 09:45 PM
it appears that cymbalta is the "drug of choice" for fibro.

it did nothing for me iether.
i take a low dosage of noten at night
and then a slightly higher dosage of lexapro in the morning.

i also found lyrica not that beneficial.
the dosage required to have a good effect is too high.
doctors in australia do not like prescribing that high a dosage.
a friend has had a severe motor bike accident.
he has a script for very high dosages. and has good effect.



an interesting fact about fibro, i discovered is :
fibro effects the pain-transmitting nerve itself. (substance P in the cerebrospinal fluid ).
The most widely acknowledged biochemical abnormality is abnormally low serotonin levels.


another important discovery is
Using single photon emission computed tomography (SPECT); researchers in France were able to detect functional abnormalities in certain regions in the brains of patients diagnosed with fibromyalgia, reinforcing the idea that symptoms of the disorder are related to a dysfunction in those parts of the brain where pain is processed.
The researchers confirmed that patients with the syndrome exhibited brain perfusion abnormalities in comparison to the healthy subjects. Further, these abnormalities were found to be directly correlated with the severity of the disease. An increase in perfusion (hyperperfusion) was found in that region of the brain known to discriminate pain intensity, and a decrease (hypoperfusion) was found within those areas thought to be involved in emotional responses to pain.

i hope this helps explain a little about fibro.


my best advise,
and please speak to your care provider first,
take good dosage of fish oil everyday.
use magnesium suppliments as required.
(tablets daily, and powder for fast acting benifit when feeling low.)
i also use a slow acting pain medication. (panadoel osteo)
and daily anti inflamitaries.

remember that like lupus........ everyone can react differently.
so what works for me, may or maynot benefit you.

Melodyroseak
12-14-2011, 04:16 PM
I know how you feel. I have the same pain too. They started me on methatrexate injection a couple of years ago. Has helped allot. But, still have the finger pain in the a.m. We just tried lowing my dosage, but, too much pain in other joints that I forgot about.

I wish I could tell you it gets easier. But, reality does not. But, I have found reading the boards here helps allot. Sometimes I post. So, keep coming back. It does help with other people understanding where you are.