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Desleywr
11-29-2011, 02:03 AM
My husband just sent me a page titled "first new treatment for Lupus in over 50 years" where and how to I put up this I page PDF doc?....

Desleywr
11-29-2011, 02:15 AM
After reading this it says that the USA federal drug admin has approved Bemimulab Theroperatic inhibiting BAFF?.... Do others know of this is anyone on this and does it work reducing flares?

rob
11-29-2011, 04:55 AM
My husband just sent me a page titled "first new treatment for Lupus in over 50 years" where and how to I put up this I page PDF doc?....

Hi Desleywr,

Bemimulab is the drug more commonly known as Benlysta. Our RSS Bot program that posts lupus related news posted an article from earlier this year with the announcement that Benlysta was approved by the U.S. Food and Drug Administration. It should contain the same info as the PDF you mention. Here's a link to the article-

www.medicalnewstoday.com/releases/218864.php (http://www.medicalnewstoday.com/releases/218864.php)

Also, if you use the WHL search tool at the top right of the page you'll find quite a few threads and posts here on the subject. Just enter the word Benlysta.

Hope this helps,

Rob

Desleywr
11-29-2011, 05:44 AM
Hi Desleywr,

Bemimulab is the drug more commonly known as Benlysta. Our RSS Bot program that posts lupus related news posted an article from earlier this year with the announcement that Benlysta was approved by the U.S. Food and Drug Administration. It should contain the same info as the PDF you mention. Here's a link to the article-

www.medicalnewstoday.com/releases/218864.php (http://www.medicalnewstoday.com/releases/218864.php)

Also, if you use the WHL search tool at the top right of the page you'll find quite a few threads and posts here on the subject. Just enter the word Benlysta.

Hope this helps,

Rob

Ahoy! Thank you Rob I got excited!! I will go off and read! Thank you
Des

Desleywr
11-29-2011, 05:51 AM
Rob
My husband is a science researcher and he is in Nano technology -director of the Stretigic Nano Fabrication Centre at UWA. He isn't in the field but is going to look and make enquiry with other researchers he works with with regard to me using it. I go for my first rhumy appointment next week so I feel itis best to understand all I can re lupus. Thanks for sending me to this article
Des

steve.b
11-29-2011, 08:38 PM
desley, i have written to the two partners in the manufacture of benlysta.
they both have offices in the eastern states.

they do not invisage benlysta being available in australia for at least 4 years.
they have applied for a license, but have not started the government paperwork.

Desleywr
11-29-2011, 09:05 PM
desley, i have written to the two partners in the manufacture of benlysta.
they both have offices in the eastern states.

they do not invisage benlysta being available in australia for at least 4 years.
they have applied for a license, but have not started the government paperwork.
Thanks Steve I got excited to think it was new.... As it was advertised on the conference paper as new.... Colin is going to look at its structure and see how it works! I will let you know what he says. Thanks for keeping me up to date.

magistramarla
11-29-2011, 09:24 PM
Desley,
Your DH sounds much like mine. My sweetie also has several science degrees, and he is always sending me info on research that he has found on AI diseases.
Hugs,
Marla

tgal
11-30-2011, 09:53 AM
Shrugs.. won't do me any good. No insurance and it costs about $35,000 a year. Pitiful!

Hunniebun
11-30-2011, 11:12 AM
Its in no way close to a cure right? Its just a much stronger drug apparently? I don't fully understand what it does. Its not some magic drug that will help us all go back to work. I'm hoping for something with less side affects, that's all I want right now...Because I really, really hate Plaquenil.

rob
11-30-2011, 12:19 PM
Its in no way close to a cure right? Its just a much stronger drug apparently? I don't fully understand what it does. Its not some magic drug that will help us all go back to work. I'm hoping for something with less side affects, that's all I want right now...Because I really, really hate Plaquenil.

I don't fully understand it either, but from what I do know about it, you are correct that it's not a cure, but rather a more powerful drug. I don't know if it can be used as a substitute for Plaquenil. It sure would be nice if it could. I'll be interested in what information Desley's husband comes up with.

Rob

rob
11-30-2011, 01:19 PM
Rob
My husband is a science researcher and he is in Nano technology -director of the Stretigic Nano Fabrication Centre at UWA. He isn't in the field but is going to look and make enquiry with other researchers he works with with regard to me using it. I go for my first rhumy appointment next week so I feel itis best to understand all I can re lupus. Thanks for sending me to this article
Des

Nano Technology-Very cool stuff!

Desleywr
11-30-2011, 05:45 PM
Shrugs.. won't do me any good. No insurance and it costs about $35,000 a year. Pitiful!

Yes I read how much it costs in USA .. Our gov will most likely put a caveat on something that costly and make it so that you can only get it if you have tried the others at less cost...... E.g. I am allergic to Asprin and because of that I am allowed to get Plavix which is very expensive on the the gov list but because I fit the caveat of not being able to take Asprin and having tried it they now let me have the Plavix at our reduced cost of $32 .. This is also on a maximum for the calendar year as once I have spent $1,300 all my meds go down to $5 per script. Not all drugs get on the list but the list is quite extensive. Some drugs are on the list and can only be cheap when used for a specific disease. I do hope USA gets a better health system soon for you all.

Desleywr
11-30-2011, 05:47 PM
Its in no way close to a cure right? Its just a much stronger drug apparently? I don't fully understand what it does. Its not some magic drug that will help us all go back to work. I'm hoping for something with less side affects, that's all I want right now...Because I really, really hate Plaquenil.

I think you are right that it has much less side effects. And reduces the amount of flares. Colin is going to look at its structure and that may give us some better understanding I will post more when he gets the info he is looking for.

Desleywr
11-30-2011, 05:55 PM
Nano Technology-Very cool stuff!

Yes it is very exciting Colin (Raston)is working on growing skin, repairing the damaged spinal cord, he has invented a new machine for use with Nano particles, drug delivery for cancer etc.etc. Working on getting drugs through the brain barrier, he has published 21 papers this year on Nano discoveries he has made and has a wonderful time doing it. When I see what he has done over the years and note his wild childhood ...blowing up boms etc... And I look at many not all but many of the children today who are on Ritilen I am saddened as they are quite possibly the future scientists of the world.

magistramarla
12-01-2011, 10:40 PM
Desley,
I have a daughter who is a neurobiology researcher. She has worked at Cal Tech, Duke and now at NYU. I don't understand much of what she is doing, but I know that it involves studying what part of the brain is involved in eye-hand coordination. There is some work going on at Duke that tries to improve how artificial limbs coordinate with the rest of the body and might be controlled by the brain. Her research feeds into that project.
It is pretty exciting to hear first-hand what scientists are doing.
Hugs,
Marla

Desleywr
12-02-2011, 12:37 AM
Desley,
I have a daughter who is a neurobiology researcher. She has worked at Cal Tech, Duke and now at NYU. I don't understand much of what she is doing, but I know that it involves studying what part of the brain is involved in eye-hand coordination. There is some work going on at Duke that tries to improve how artificial limbs coordinate with the rest of the body and might be controlled by the brain. Her research feeds into that project.
It is pretty exciting to hear first-hand what scientists are doing.
Hugs,
Marla

Maria
That sounds so interesting. I find it so interesting to hear what is being researched. Just thinking about the implications of one thing being successful is so encouraging. I am not a scientist in any way so I always get Colin to explain in terms of application of the research. I was taken by ambulance last week to hospital due to chest pain and I had morphine squirted up my nose. Colin told me at a friend of ours had developed that morphine being say ethic and I noted it didn't give me any sick stomach like the normal stuff does. Great hey!