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View Full Version : 10 years of SLE but new to Australia



dancer82
11-29-2011, 12:04 AM
Hello all,

Ive been dealing with a very nasty SLE for the last 10 years and Ive had pretty much everything finishing with itis (nephritis, vasculitis, pleuritis, arthritis and the list goes on and on) but I havent managed to find a VERY EXPERIENCED lupus specialist in OZ yet like Ive had in Europe and Americas. Im a fan of aggressive approach but as i suffer a lot with vasculitis and turns out to be not the biggest consense amongst docs its where i struggle the most. Anyone has a good name to recommend in any state? For an idea Ive heard from a private one recently that my bloods scared the hell out of him and he would need the guys in a public big hospital, who recently said they also never managed such a case and dont really know what to do at this stage. Any help would be appreciated as Im actually contemplating flying out for treatment which will be slightly difficult in the long run.....thanks in advance for any assistance. Cheers!

kim,l
11-29-2011, 05:38 AM
hello dancer and welcome whl what state are you in i am from sydney i have a good rheumotogist in blacktown who has been dealing with my lupus for 3 years also contacting your lupus foundation in your state they may be able to put you on to specialist there is usually groups in each state. hope this helps take care

dancer82
11-29-2011, 05:47 AM
hi Kim,

thanks for the feedback. Im in SA but Im willing to fly as I think Im done here. Do you know if your rhumi has a conservative or aggressive approach for treatment? And if he/she has been dealing with vasculitis specifically? If yes, could you please pass me the contact and I'll chase him/her and see if he/she's happy to take me on board!

cheers

kim,l
11-29-2011, 02:31 PM
hi dancer my specialist name is dr mark liew and his phone number is 0296715986 if you ring and ask all your question about your vasculitis. he is a very nice doctor and he did not hesitate in treating me. but if he cannot help they could put you on to someone in sydney who could take care hope this information is useful. also some of the other members from australia may get on today and they may know someone closer to you i know we have members in wa, melbourne, and brisbane. take care hope this information is helpful.

steve.b
11-29-2011, 08:49 PM
hi dancer.
welcome to our cyber family.
i am from western australia.
i have a very good rhumi also.
he has a sisiter that has lupus, so he has a personal interest in the disease.
he is also into research.

send me a personal message if you want more information.

by the way, there is quite a few other aussies here as well.

there is 10 from wa,
and about the same from the other states combined.

many of us use the "my profile" page.
it is a way of telling others about yourself.

glad you found us, and again welcome.