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View Full Version : I just miss how it used to be.



siege929
11-27-2011, 09:20 PM
Me and Kc were just looking through her "box of memories" and were talking about what her and I, and all my other sister used to do together, and about how much fun we would have. And she was talking about her old friends from when she was in high school, and her trip to Hilton head with her best friend, that she was invited to every year. I feel so bad because it seems that her lupus stole all of that away from her, and robbed this family of everything it used to have. When she was at my mom's house she told my mom that she just wished that she could back in time, and my mom asked "how far back in time Kc?. Kc said that just a year ago... Which is when right before she was diagnosed with her lupus. I wish we could, I wish that we could have never gotten this. It just see,s completely unfair for this to happen to our family. Nothing good will come from this. Not one family should deserve this.

If anything, it would have been better off for me to get lupus, not Kc. I can't stand seeing Kc in pain every day emotionally and physically. I want to take it from her and everyone else. I hate what happened. And I don't think that anyone in my family has accepted the sudden Lupus.

sincerely,
CJ

magistramarla
11-27-2011, 09:40 PM
CJ,
I know that it is rough for you and your family right now, but you will get used to the "new normal". Give KC some time to get everything sorted out and to get onto the right combination of meds. She'll get used to her "new normal" and go on from there.
Look through the threads here - there are quite a few young people here at WHL. Ritzbit is working through her illness and is a pre-med. Another two of our young ladies - Leksie and Britt - have both just had their second babies. Life really does go on after an AI diagnosis - it just changes.
The greatest gift that you can give to your sister is to treat her like any other normal person - and to have a great life of your own in which you are willing to include her.
Get inspired - do great in school and who knows? Perhaps you could be the scientist who discovers the cure for your sister and the rest of us!
Hugs to both of you,
Marla

siege929
11-28-2011, 09:39 PM
I wish i could come up with a cure as much as anyone else does. =)