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scubagramplit
11-17-2011, 05:27 PM
I got notified yesterday that I have been approved for ssdi. I just wish I felt better, we could celebrate.

BonusMom
11-17-2011, 10:10 PM
A mixed blessing for sure. I'm glad you were approved.

Gizmo
11-18-2011, 03:46 PM
Congratulations. I know that can be a long, discouraging battle. Hopefully you can turn your energy to better things now.

debbie-b
11-18-2011, 04:18 PM
That is great news.
How long did it take?
Now you can focus on your well being.

Debbie

scubagramplit
11-18-2011, 04:56 PM
It took me a year and a half. I was pretty fortunate to be able to draw ca. disability for about one year and have been hitting my retirement since. I'm to darn young to be drawing out of my retirement but I gotta live. I didn't buy the book but I followed the advice from an ad I picked up on here, the dissability digest, I hope its ok to use the name on here just in relation to my story, but it did help in my confidence filling out the forms.
On a seperate note, does any body have problems with their doctors refusing to fill out paperwork ie: dissability forms for both state and fed? My rheumy's policy is that he does not do them. I have already got a lead on another rheumy which is actually about 15 min. closer for me.

Gizmo
11-18-2011, 05:44 PM
What good is a doctor who won't fill out the paperwork? I know most charge something for their time to do it, but jeez! How rotten that you have to start over again with a new doc. Hopefully he/she will do a better job for you overall.

mdawncooper
11-18-2011, 07:36 PM
I am so sorry you have had to apply but I am thrilled that you have been approved.

debbie-b
11-19-2011, 06:41 AM
It took me a year and a half. I was pretty fortunate to be able to draw ca. disability for about one year and have been hitting my retirement since. I'm to darn young to be drawing out of my retirement but I gotta live. I didn't buy the book but I followed the advice from an ad I picked up on here, the dissability digest, I hope its ok to use the name on here just in relation to my story, but it did help in my confidence filling out the forms.
On a seperate note, does any body have problems with their doctors refusing to fill out paperwork ie: dissability forms for both state and fed? My rheumy's policy is that he does not do them. I have already got a lead on another rheumy which is actually about 15 min. closer for me.

My Rheumy has a sign in his office saying that he does not do the disability paperwork and that your primary doctor has to do it, but he will provide the nessecary information.

Debbie

magistramarla
11-19-2011, 08:26 PM
Hey Jim,
It's good to see you here again! You've been missed.
I'm glad that you were finally able to get disability. It's a shame that it takes so long.
You are lucky to be eligible for it, though. Texas schools "opt out" of paying into Social Security and force teachers into paying into their crummy retirement system.
Because of that, I haven't paid enough into SS with my work in other states to qualify, so no SS for me until the hubby retires. It's a good thing that he has a good job and insurance.
I hope that you keep coming back to WHL. Are you doing better in Oregon than you did in CA?
Hugs,
Marla

scubagramplit
11-19-2011, 08:31 PM
yea I tried that too, didn't fill it out right and we are going to drive the 4 hours to chico back to the doctor there and hand deliver the paper work to the EDD office. Right now I am pretty fed up with my doctors both rheumy and pcp, I am going to fire them both, the problem is finding a new pcp, I think I got a new rheumy lined up, we'll see.

My Rheumy has a sign in his office saying that he does not do the disability paperwork and that your primary doctor has to do it, but he will provide the nessecary information.

Debbie

scubagramplit
11-19-2011, 08:36 PM
hey there marla, hope you are doing well. I never really left whl, I've just been sitting back on the sidelines watching for a while. Not really been feeling all that good. finally got off the prednisone, it didn't take but about month and I'm right back where I started at the beginning. That being said I have more bad days than good days.

magistramarla
11-19-2011, 08:42 PM
Jim,
I'm sorry to hear that. I don't remember - have they tried you on Plaquenil and/or MTX or anything like Imuran?
Perhaps that new rheumy will come up with something other than prednisone for you.
Take care of yourself, my friend.
Hugs,
Marla

scubagramplit
11-19-2011, 08:56 PM
yea, we have tried all of it with no positive results. Rheumy wanted to try the new lupus drug( the name escapes me, fog? haha ) however the insurance company denied it. glad the ins. co. knows more about medicine than the doctors, wow, sounds like I'm starting to get frustrated, down boy:~} I've been on generic plaquinel from the start, if it has ever done anything for me I don't know it. I will say one thing since getting off the prednisone I can feel all the pain in my body that it was hiding or whatever it was doing.

magistramarla
11-19-2011, 09:04 PM
Yes, insurance companies are a pain. Try the new rheumy and ask him/her to write a stronly worded letter to them - maybe it will work.

jmail
12-08-2011, 03:07 PM
Yeah Jim, they probably haven't added it to their "approved list" yet. The insurance company probably just needs a bit of prodding from doctors and the pharmy company, along with a polite, concise letter from a patient... 'course, if you're like me, you might have a bit of trouble coming up with "polite" words... tic