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debbie-b
11-03-2011, 10:16 AM
Three days after coming back from my Texas vacation, I started to get sick. I had mostly a bad dry cough, fever, aching joints and very painful skin, I could not touch my skin, it hurt so much.
So I thought, it's the flu, drank alot of fluids, took over the counter cough medicine and went to work, feeling like I am going to die.
Feeling a little better now, but far from feeling good.
Yesterday I went to get my blood checked, because of my high liver enzynes, today my rheumy called, telling me that my platelets a very low. That makes me think, that it might be a flare, as we all know,
a flare feels like you have the flu.
I am going to see the rheumy on monday.
What do you guys think, flu or flare?

Debbie

Gizmo
11-03-2011, 08:49 PM
Debbie, I have no idea which it is - maybe it was the flu, which caused a flare. In any event, you've had a whole lot going on lately, and the stress could make you more vulnerable to either the flu or a flare. Glad to hear you will see your rheumy on Monday. In the meantime, be very careful with knives, razors and any other sharp objects and don't climb any ladders with your low platelet count.

debbie-b
11-04-2011, 03:42 AM
The rheumy called back again yesterday and he said that he thinks, that it is a flare, because of inflammatory markers, or something like that.
In his opinion the lupus is attacking the liver and the blood.
He is going to give me a steriod shot into my butt, that always helps, to get me through the brunt of the flare.
The newest think I have with this flare is, terrible headaches, where nothing helps.
My eyes and throat( not mouth) are very dry, my eyes burn all the time, even with eye drops.
I have to work all weekend, 12-8 today and 7am-4pm tomorrow.ugh

Debbie

Gizmo
11-04-2011, 12:04 PM
Ugh indeed! Sending good thoughts your way, Debbie. I wish there was a magic wand for you that didn't need a needle in the butt to work.

Melodyroseak
11-29-2011, 10:59 AM
With me, I found that I will start to get the cold or virus and turns quickly into a flare. So, I always tell my friends, "I love you dearly, but, if are sick or if you think you might be, please see me when not sick." Most of them are really understanding about it.

debbie-b
11-30-2011, 07:49 AM
That is what happened to me, I found out that I had the flu, which turned into bronchitis ( it always does). After taking the anti biotics, cough syrup and Symbecort ( for lung support), I felt a little better. But than I ran right into a bad flare, which is still going on.

Debbie

Gizmo
11-30-2011, 08:21 AM
Glad you are recovering from the flu and bronchitis, but sorry about the flare. Hang in there!

tgal
11-30-2011, 09:45 AM
Glad you are feeling better but I know it takes time. I have a question though...

Has anyone ever said that you have fibro as well as Lupus? "I could not touch my skin, it hurt so much". Many of us with fibro have that issue when it is acting up. Some of my worst flares (this one for example) are with my Lupus and my firbro decide to flare at the same time.

debbie-b
11-30-2011, 01:46 PM
Glad you are feeling better but I know it takes time. I have a question though...

Has anyone ever said that you have fibro as well as Lupus? "I could not touch my skin, it hurt so much". Many of us with fibro have that issue when it is acting up. Some of my worst flares (this one for example) are with my Lupus and my firbro decide to flare at the same time.

Hi tgal,

Yes, I do have Fibro as well as Lupus and RA. But when my skin hurts from the Fibro it feels different.
I have tissue problems because of the Lupus, according to my rheumy. When I say my skin hurts, I really mean that it is a deep tissue pain, it's kind of hard to explain.

Debbie

rob
11-30-2011, 01:57 PM
With me, I found that I will start to get the cold or virus and turns quickly into a flare.

Melody,

That's exactly what happens with me.

Debbie,

I hope you get to feeling better soon. Flu or flare, it sucks either way.

Rob

debbie-b
11-30-2011, 02:01 PM
Melody,

That's exactly what happens with me.

Debbie,

I hope you get to feeling better soon. Flu or flare, it sucks either way.

Rob

Thank you Rob. So far it still sucks, feeling pretty bad.

Debbie

debbie-b
12-15-2011, 09:16 AM
I have felt better for a few days, now I am coughing again. I cough and cough and cough.
Going back to my primary doc tomorrow, I already know that he is going to send me for a lung x-ray.
Does anybody have a bad cough, that is just not going away? Could it be lupus lung involvement?
Oh yeah, when I have a coughing fit, I get real dizzy.

Debbie

krystleg87
02-14-2012, 04:34 PM
Three days after coming back from my Texas vacation, I started to get sick. I had mostly a bad dry cough, fever, aching joints and very painful skin, I could not touch my skin, it hurt so much.
So I thought, it's the flu, drank alot of fluids, took over the counter cough medicine and went to work, feeling like I am going to die.
Feeling a little better now, but far from feeling good.
Yesterday I went to get my blood checked, because of my high liver enzynes, today my rheumy called, telling me that my platelets a very low. That makes me think, that it might be a flare, as we all know,
a flare feels like you have the flu.
I am going to see the rheumy on monday.
What do you guys think, flu or flare?

Debbie

I know i'm a little late on this topic, but you mentioned painful skin to the touch. Was there any rash or anything visible that could have caused the pain? Because there's already been two incidents where almost overnight I'll have a painful to the touch spot on my upper thigh and it burns to wear I almost can't walk. At first I thought it was due to dehydration because the more water I drank the less it hurt. But I highly doubt it's possible without any visible skin lesions.

debbie-b
02-15-2012, 05:17 AM
I don't have a rash with my painful skin. It is the tissue that hurts and I get it alot.

Debbie

krystleg87
02-15-2012, 12:14 PM
Yeah, that's how I get. It lasts for a few days then just lessens and disappears like it never happened. My mom said she's also gotten it quite a few times in the past month as well. I hope you feel better!!

debbie-b
02-16-2012, 11:58 AM
Yeah, that's how I get. It lasts for a few days then just lessens and disappears like it never happened. My mom said she's also gotten it quite a few times in the past month as well. I hope you feel better!!

I do, thank you, exept for the painful tissue, I have that every day. Not a good feeling.

Debbie