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Brandodw
10-12-2011, 06:04 PM
Hello everyone,
For the last two years I have been experiencing several symptoms that I have been unable to attribute to anything specific. After spending several hours browsing the internet, I am somewhat convinced that I may have lupus. I was wondering if anyone here might be able to give me some insight. Here are my symptoms: first, I have had fairly severe fatigue that does not get better with sleep. I sleep at least 8 hours every night; however, I wake up tired, spend the day tired, and go to bed tired. Sometimes I feel like I just want to lie down on the floor wherever I am and just sleep. Secondly, I have had numbness/tingling in my arms, hands, and feet (mainly my arms and hands). I often wake up in the morning with one or both of my arms asleep. Another symptom I have is inflammation of a blood vessel above my left clavicle. I saw a doctor for this who had me get a CT scan. He wasn't able to conclude anything other than I have an enlarged blood vessel that is fairly prominent.

Furthermore, I have a burning, gnawing sensation in my middle abdomen that comes and goes almost on a daily basis. It isn't terribly painful but it is definitely hurts. I haven't noticed any trends, such as before or after eating certain foods. I have also had loose stool for over a year. I'll go ahead and list the rest of my symptoms that may or may not be related: eye irritation (dry, gritty), occasional fuzzy thinking and inability to concentrate (brain fog), some anxiety, and whenever I drink alcohol, my body does not process it as quickly as it should. I will remain buzzed/tipsy for much longer than I should and end up feeling terrible the next day (possibly liver?). Lastly, I recently developed a "butterfly rash" on my face that goes across my nose and onto my cheeks. It does not extend to the outsides of my nostrils or lips. This is what caused me to stumble upon lupus and I quickly drew a connection to my other symptoms.

Sorry for the length and I appreciate anyone who is reading this. Do these symptoms sound familiar to anyone? I plan on asking my doctor about it but I'd like to have a few opinions before I do. I should probably mention that I am a 23 year old male. Thank you so much!

Brandon

Coloradan
10-12-2011, 06:15 PM
Hi Brandon, sorry you're not feeling well. I've had a lot of those symptoms and my doctor has always thought I'm a hypochondriac. Well, she tested me for lots of stuff so I was very grateful, but unfortunately it never came up with anything! I had tingling in my hands and feet and it turned out to be low B12. I'm not sure if there are side effects to having too much B12, but if you research it and there aren't, you could always take a supplement. I take a good quality sublingual. The tingling went away after that! yay.

With regards to the stomach pain/loose stools/brain fog, I finally linked that in myself to: Gluten! I found it hard to try and narrow it down to a specific food, but then realized that while I eat other foods every so often, I was eating gluten (wheat, barley, rye) ALL DAY. It only took a few days to see a HUGE difference! You could try that.

Best of luck with everything! If it is lupus, I hope you get the care you need. It could always be a combo of things too.

Brandodw
10-12-2011, 06:39 PM
Thanks for the reply! That's one of the reasons I've been hesitant to go to the doctor. I'm afraid he might think I'm a hypochondriac. I just feel like there's something going on because my body doesn't feel right. Thanks for the advice, I will definitely try removing gluten from my diet and see what happens!

steve.b
10-12-2011, 07:34 PM
there is actually 63 auto immune disorders.
many of them have similar symptoms.

if you think you have liver concerns......
please get an appointment to see a rhuematologist.

liver problems generally are not reversable.
the problem can be stopped, but damage cannot always be undone.

welcome to our cyber family.
please keep us informed as to your progress.

Brandodw
10-12-2011, 07:43 PM
I have an appointment with a head and neck specialist about my abnormal blood vessel, I will ask him to refer me to the rhuematologist. I appreciate your reply, I'll keep you updated.

debbie-b
10-13-2011, 04:24 AM
Hi Brandon,

You do have several symptoms, that point to Lupus. The only one who can help you figure it all out, is a Rheumatologist.
I would make an appointment with a rheumy, especially since you have problems with your liver.
Oh and welcome to WHL, glad to meet you.

Debbie

tgal
10-13-2011, 09:12 AM
Hi Brandon, sorry you're not feeling well. I've had a lot of those symptoms and my doctor has always thought I'm a hypochondriac. Well, she tested me for lots of stuff so I was very grateful, but unfortunately it never came up with anything! I had tingling in my hands and feet and it turned out to be low B12. I'm not sure if there are side effects to having too much B12, but if you research it and there aren't, you could always take a supplement. I take a good quality sublingual. The tingling went away after that! yay.

With regards to the stomach pain/loose stools/brain fog, I finally linked that in myself to: Gluten! I found it hard to try and narrow it down to a specific food, but then realized that while I eat other foods every so often, I was eating gluten (wheat, barley, rye) ALL DAY. It only took a few days to see a HUGE difference! You could try that.

Best of luck with everything! If it is lupus, I hope you get the care you need. It could always be a combo of things too.

I am so glad the gluten thing is working for you but we do not support any single diet here. What works for one person can actually cause another to become worse and/or die. All topics are welcome but this is one we stay away from because if it gets out of hand one can be banned for it. I know this sounds harsh but I am going to include a link that will explain why we stand firm on the "use this diet/supplement" discussions

How to get banned from WHL (http://forum.wehavelupus.com/showthread.php?9843-How-To-Get-Banned-From-WHL)

tgal
10-13-2011, 09:14 AM
I have an appointment with a head and neck specialist about my abnormal blood vessel, I will ask him to refer me to the rhuematologist. I appreciate your reply, I'll keep you updated.

Welcome to WHL! We are so glad to have you! There are many people here that have not been diagnosed with Lupus or any other AI disease. Some because they don't have it and are looking and others because it can take years to get a firm diagnosis. Make yourself at home and I look forward to getting to know you

Coloradan
10-13-2011, 12:56 PM
Sorry, didn't mean to overstep! Of course a diet is not a cure for lupus and I didn't mean to suggest that. I only meant that if someone has a gluten sensitivity, then avoiding gluten will help, like if one is lactose intolerant, to avoid dairy. My GF diet is not helping whatsoever with the joint pains and sore throats.

Brandodw
10-13-2011, 02:39 PM
Thank you debbie-b and tgal, I appreciate the warm welcomes. I look forward to getting to know everyone here.

Desleywr
10-13-2011, 11:41 PM
Hi Brandon
I had a butterfly rash for over two years before the restof my symptoms settled and my Ana went from 1:160 to 1:640 where it made things easy to be diagnosed along with another skin rash and some organ issues. But I was lucky to get a firm diag of part of my condition within 4years from starting like you. So bepatientand live each day to the fullest and things will happen when they want not when it is convenient for us. I know it is hard to bepatientbutmany on here have gone through many years of concern so we all understand your worry!

lupyme
10-17-2011, 01:34 PM
Could be sjogren's syndrome or fibromyalgia or both. People with sjogrens tend to have fibromyalgia and acid reflux. Possibly your stomach issue.

running girl
10-17-2011, 03:40 PM
Welcome Brandon,

I hope you find some comfort hanging out here with the great folks on WHL.

Brenda

Brandodw
10-25-2011, 04:24 PM
Well I still haven't been able to schedule an appointment with the Rheumatologist but I'm trying. I woke up this morning and my right wrist was in a lot of pain. It got a little better throughout the day but it still hurts. It seems like my joint pain is mainly on the the right side of my body (right knee, right shoulder, and now right wrist). Is this common? Every once in awhile I can feel the left side, but not nearly as painful